WEBVTT 00:00.000 --> 00:01.433 align:start position:10% line:84.66% size:5% cc 00:01.433 --> 00:03.033 align:start position:10% line:84.66% size:65% >> So, Dr. Leann Smith has 00:03.033 --> 00:05.300 align:start position:10% line:84.66% size:52.5% developed a wonderful 00:05.300 --> 00:08.800 align:start position:10% line:84.66% size:72.5% intervention for teens on the 00:08.800 --> 00:10.800 align:start position:10% line:84.66% size:62.5% autism spectrum and their 00:10.800 --> 00:12.400 align:start position:10% line:84.66% size:62.5% families, and it's called 00:12.400 --> 00:13.766 align:start position:10% line:84.66% size:57.5% Transitioning Together. 00:13.766 --> 00:15.133 align:start position:10% line:84.66% size:70% It was developed here at the 00:15.133 --> 00:16.366 align:start position:10% line:84.66% size:80% Waisman Center based on research 00:16.366 --> 00:17.866 align:start position:10% line:84.66% size:72.5% we've been conducting, and it 00:17.866 --> 00:20.166 align:start position:10% line:84.66% size:67.5% has grown over the years to 00:20.166 --> 00:23.133 align:start position:10% line:84.66% size:60% become an evidence-based 00:23.133 --> 00:24.366 align:start position:10% line:84.66% size:25% treatment. 00:24.366 --> 00:25.766 align:start position:10% line:84.66% size:77.5% In other words, we've been able 00:25.766 --> 00:29.533 align:start position:10% line:84.66% size:67.5% to compare participation in 00:29.533 --> 00:31.566 align:start position:10% line:84.66% size:65% Transitioning Together, as 00:31.566 --> 00:33.366 align:start position:10% line:84.66% size:67.5% you'll hear, with a control 00:33.366 --> 00:35.333 align:start position:10% line:84.66% size:77.5% group and see the added benefit 00:35.333 --> 00:36.766 align:start position:10% line:84.66% size:65% of Transitioning Together. 00:36.766 --> 00:38.133 align:start position:10% line:84.66% size:70% And what's really remarkable 00:38.133 --> 00:39.566 align:start position:10% line:84.66% size:67.5% about Leann is that she has 00:39.566 --> 00:41.066 align:start position:10% line:84.66% size:70% developed this intervention, 00:41.066 --> 00:42.700 align:start position:10% line:84.66% size:72.5% this program for families and 00:42.700 --> 00:44.866 align:start position:10% line:84.66% size:67.5% their teens from the start, 00:44.866 --> 00:46.833 align:start position:10% line:84.66% size:80% tested it out, involved families 00:46.833 --> 00:48.366 align:start position:10% line:84.66% size:72.5% in the development of it, and 00:48.366 --> 00:49.966 align:start position:10% line:84.66% size:75% gotten feedback from families, 00:49.966 --> 00:51.400 align:start position:10% line:84.66% size:75% modified the intervention, and 00:51.400 --> 00:52.833 align:start position:10% line:84.66% size:32.5% perfected it. 00:52.833 --> 00:55.033 align:start position:10% line:84.66% size:75% So now we're about ready to go 00:55.033 --> 00:56.933 align:start position:10% line:84.66% size:70% to incorporate that into the 00:56.933 --> 00:58.433 align:start position:10% line:84.66% size:72.5% clinical services provided by 00:58.433 --> 00:59.600 align:start position:10% line:84.66% size:47.5% the Waisman Center. 00:59.600 --> 01:01.066 align:start position:10% line:84.66% size:67.5% So it's a real privilege to 01:01.066 --> 01:02.766 align:start position:10% line:84.66% size:55% introduce Leann Smith. 01:02.766 --> 01:06.666 align:start position:10% line:84.66% size:25% [APPLAUSE] 01:06.666 --> 01:07.766 align:start position:10% line:84.66% size:15% >> Hi. 01:07.766 --> 01:08.700 align:start position:10% line:84.66% size:72.5% Hello, and thank you so much, 01:08.700 --> 01:10.800 align:start position:10% line:84.66% size:80% Marsha, for your kind words, and 01:10.800 --> 01:12.333 align:start position:10% line:84.66% size:70% I'm really excited to follow 01:12.333 --> 01:14.733 align:start position:10% line:84.66% size:77.5% Maria's talk because she really 01:14.733 --> 01:17.533 align:start position:10% line:84.66% size:77.5% set the stage for me already in 01:17.533 --> 01:20.633 align:start position:10% line:84.66% size:72.5% terms of why we want to think 01:20.633 --> 01:23.466 align:start position:10% line:84.66% size:70% about providing supports not 01:23.466 --> 01:25.166 align:start position:10% line:84.66% size:65% just to individuals on the 01:25.166 --> 01:26.733 align:start position:10% line:84.66% size:65% autism spectrum but to the 01:26.733 --> 01:28.233 align:start position:10% line:84.66% size:52.5% entire family system. 01:28.233 --> 01:30.500 align:start position:10% line:84.66% size:80% And we can think about behavior, 01:30.500 --> 01:32.633 align:start position:10% line:84.66% size:65% sleep, what's happening in 01:32.633 --> 01:34.733 align:start position:10% line:84.66% size:75% school, and all these reasons. 01:34.733 --> 01:37.533 align:start position:10% line:84.66% size:65% It takes an entire team of 01:37.533 --> 01:40.033 align:start position:10% line:84.66% size:70% partnering with families and 01:40.033 --> 01:41.466 align:start position:10% line:84.66% size:27.5% clinicians. 01:41.466 --> 01:42.933 align:start position:10% line:84.66% size:77.5% So, thank you so much for that. 01:42.933 --> 01:44.300 align:start position:10% line:84.66% size:70% What I'm going to talk about 01:44.300 --> 01:45.566 align:start position:10% line:84.66% size:80% today is Transitioning Together, 01:45.566 --> 01:46.933 align:start position:10% line:84.66% size:72.5% which, as Marsha said, is the 01:46.933 --> 01:48.400 align:start position:10% line:84.66% size:75% program that we developed here 01:48.400 --> 01:50.566 align:start position:10% line:84.66% size:75% at the Waisman Center based on 01:50.566 --> 01:53.500 align:start position:10% line:84.66% size:75% research that's been happening 01:53.500 --> 01:55.566 align:start position:10% line:84.66% size:75% for over a decade here as well 01:55.566 --> 01:57.800 align:start position:10% line:84.66% size:77.5% as with input from families and 01:57.800 --> 01:59.366 align:start position:10% line:84.66% size:72.5% other stakeholders about what 01:59.366 --> 02:02.000 align:start position:10% line:84.66% size:57.5% would be most valuable. 02:02.000 --> 02:05.200 align:start position:10% line:84.66% size:72.5% And so first I want to talk a 02:05.200 --> 02:06.766 align:start position:10% line:84.66% size:72.5% little bit about why families 02:06.766 --> 02:08.700 align:start position:10% line:84.66% size:32.5% need support. 02:08.700 --> 02:11.300 align:start position:10% line:84.66% size:75% So, just by a show of hands it 02:11.300 --> 02:13.033 align:start position:10% line:84.66% size:65% would help me know who the 02:13.033 --> 02:14.900 align:start position:10% line:84.66% size:72.5% grandparents are in the room. 02:14.900 --> 02:16.766 align:start position:10% line:84.66% size:60% If you have a child or a 02:16.766 --> 02:19.266 align:start position:10% line:84.66% size:72.5% grandchild with a disability. 02:19.266 --> 02:20.666 align:start position:10% line:84.66% size:30% Okay, great. 02:20.666 --> 02:22.200 align:start position:10% line:84.66% size:75% So, hopefully this is going to 02:22.200 --> 02:23.633 align:start position:10% line:84.66% size:70% be relevant to you and maybe 02:23.633 --> 02:25.233 align:start position:10% line:84.66% size:55% will ring true in your 02:25.233 --> 02:26.866 align:start position:10% line:84.66% size:65% experiences of seeing your 02:26.866 --> 02:29.033 align:start position:10% line:84.66% size:80% children raising their children. 02:29.033 --> 02:30.866 align:start position:10% line:84.66% size:75% We know that having a child on 02:30.866 --> 02:32.466 align:start position:10% line:84.66% size:65% the autism spectrum can be 02:32.466 --> 02:34.333 align:start position:10% line:84.66% size:65% highly stressful for their 02:34.333 --> 02:35.700 align:start position:10% line:84.66% size:80% parents as well as other members 02:35.700 --> 02:37.733 align:start position:10% line:84.66% size:35% of the family. 02:37.733 --> 02:39.800 align:start position:10% line:84.66% size:72.5% And it's important to keep in 02:39.800 --> 02:42.100 align:start position:10% line:84.66% size:72.5% mind that stress actually has 02:42.100 --> 02:44.600 align:start position:10% line:84.66% size:72.5% long-term effects on parental 02:44.600 --> 02:46.133 align:start position:10% line:84.66% size:55% health and well being. 02:46.133 --> 02:47.700 align:start position:10% line:84.66% size:77.5% So, not just in the moment when 02:47.700 --> 02:49.333 align:start position:10% line:84.66% size:62.5% you're feeling nervous or 02:49.333 --> 02:51.100 align:start position:10% line:84.66% size:62.5% anxious, but there can be 02:51.100 --> 02:53.633 align:start position:10% line:84.66% size:75% cascading effects on both your 02:53.633 --> 02:55.533 align:start position:10% line:84.66% size:70% psychological well being and 02:55.533 --> 02:57.266 align:start position:10% line:84.66% size:17.5% health. 02:57.266 --> 02:58.933 align:start position:10% line:84.66% size:65% So we see higher levels of 02:58.933 --> 03:00.500 align:start position:10% line:84.66% size:65% depression and anxiety for 03:00.500 --> 03:02.300 align:start position:10% line:84.66% size:60% parents, lower levels of 03:02.300 --> 03:03.933 align:start position:10% line:84.66% size:67.5% positive affect, and higher 03:03.933 --> 03:06.333 align:start position:10% line:84.66% size:65% levels of negative affect. 03:06.333 --> 03:09.200 align:start position:10% line:84.66% size:77.5% We see dysregulated patterns of 03:09.200 --> 03:12.533 align:start position:10% line:84.66% size:77.5% cortisol in parents, mothers of 03:12.533 --> 03:14.666 align:start position:10% line:84.66% size:67.5% adolescents and adults with 03:14.666 --> 03:16.200 align:start position:10% line:84.66% size:17.5% autism. 03:16.200 --> 03:17.766 align:start position:10% line:84.66% size:80% And cortisol is a stress hormone 03:17.766 --> 03:19.433 align:start position:10% line:84.66% size:52.5% in your body that, if 03:19.433 --> 03:21.033 align:start position:10% line:84.66% size:62.5% dysregulated, can lead to 03:21.033 --> 03:23.133 align:start position:10% line:84.66% size:47.5% different diseases. 03:23.133 --> 03:24.733 align:start position:10% line:84.66% size:67.5% And we also see an elevated 03:24.733 --> 03:26.300 align:start position:10% line:84.66% size:80% level of health problems, health 03:26.300 --> 03:28.333 align:start position:10% line:84.66% size:22.5% symptoms. 03:28.333 --> 03:30.133 align:start position:10% line:84.66% size:70% So this would be symptoms of 03:30.133 --> 03:31.866 align:start position:10% line:84.66% size:67.5% fatigue but also headaches, 03:31.866 --> 03:34.233 align:start position:10% line:84.66% size:67.5% backaches, muscle aches, GI 03:34.233 --> 03:36.900 align:start position:10% line:84.66% size:22.5% problems. 03:36.900 --> 03:39.066 align:start position:10% line:84.66% size:70% There are a lot of different 03:39.066 --> 03:41.333 align:start position:10% line:84.66% size:70% types of health symptoms and 03:41.333 --> 03:42.933 align:start position:10% line:84.66% size:70% health problems that we have 03:42.933 --> 03:44.766 align:start position:10% line:84.66% size:77.5% observed in parents of children 03:44.766 --> 03:47.166 align:start position:10% line:84.66% size:22.5% with ASD. 03:47.166 --> 03:49.366 align:start position:10% line:84.66% size:70% And I think this goes nicely 03:49.366 --> 03:50.833 align:start position:10% line:84.66% size:67.5% with what Maria was talking 03:50.833 --> 03:51.800 align:start position:10% line:84.66% size:65% about, about the different 03:51.800 --> 03:53.266 align:start position:10% line:84.66% size:70% behaviors that we observe in 03:53.266 --> 03:55.200 align:start position:10% line:84.66% size:77.5% children with ASD and how those 03:55.200 --> 03:57.133 align:start position:10% line:84.66% size:80% can be stressful for parents and 03:57.133 --> 03:59.700 align:start position:10% line:84.66% size:75% the caregiving burden that can 03:59.700 --> 04:01.233 align:start position:10% line:84.66% size:80% be associated with children with 04:01.233 --> 04:03.833 align:start position:10% line:84.66% size:70% those challenging behaviors. 04:03.833 --> 04:06.933 align:start position:10% line:84.66% size:77.5% So this is a slide from a study 04:06.933 --> 04:09.666 align:start position:10% line:84.66% size:77.5% we did a few years ago where we 04:09.666 --> 04:12.366 align:start position:10% line:84.66% size:80% talked to mothers of adolescents 04:12.366 --> 04:14.300 align:start position:10% line:84.66% size:60% and adults on the autism 04:14.300 --> 04:16.100 align:start position:10% line:84.66% size:77.5% spectrum, and we talked to them 04:16.100 --> 04:18.200 align:start position:10% line:84.66% size:72.5% every day for eight days in a 04:18.200 --> 04:20.533 align:start position:10% line:84.66% size:77.5% row, and we asked them what had 04:20.533 --> 04:22.433 align:start position:10% line:84.66% size:60% happened during the day. 04:22.433 --> 04:24.100 align:start position:10% line:84.66% size:75% And specifically we probed for 04:24.100 --> 04:26.033 align:start position:10% line:84.66% size:75% different types of stress that 04:26.033 --> 04:28.133 align:start position:10% line:84.66% size:77.5% parents might have experienced. 04:28.133 --> 04:29.966 align:start position:10% line:84.66% size:80% And this is important, these are 04:29.966 --> 04:31.633 align:start position:10% line:84.66% size:65% parents of adolescents and 04:31.633 --> 04:33.500 align:start position:10% line:84.66% size:40% adults with ASD. 04:33.500 --> 04:35.433 align:start position:10% line:84.66% size:80% So this isn't even the time when 04:35.433 --> 04:37.466 align:start position:10% line:84.66% size:77.5% they're young and going through 04:37.466 --> 04:38.800 align:start position:10% line:84.66% size:57.5% the diagnostic process. 04:38.800 --> 04:40.133 align:start position:10% line:84.66% size:75% We know that can be stressful. 04:40.133 --> 04:41.700 align:start position:10% line:84.66% size:80% This is when children are older, 04:41.700 --> 04:43.566 align:start position:10% line:84.66% size:70% and we actually see elevated 04:43.566 --> 04:45.466 align:start position:10% line:84.66% size:62.5% levels of stress in every 04:45.466 --> 04:47.633 align:start position:10% line:84.66% size:57.5% category that we asked. 04:47.633 --> 04:50.233 align:start position:10% line:84.66% size:75% So, the light blue are mothers 04:50.233 --> 04:52.766 align:start position:10% line:84.66% size:75% of adolescents and adults with 04:52.766 --> 04:55.633 align:start position:10% line:84.66% size:75% autism, and the dark blue bars 04:55.633 --> 04:57.600 align:start position:10% line:84.66% size:75% represent the comparison group 04:57.600 --> 04:59.433 align:start position:10% line:84.66% size:67.5% of mothers who had children 04:59.433 --> 05:01.100 align:start position:10% line:84.66% size:62.5% without any developmental 05:01.100 --> 05:02.933 align:start position:10% line:84.66% size:27.5% disability. 05:02.933 --> 05:06.600 align:start position:10% line:84.66% size:75% And on the vertical axis there 05:06.600 --> 05:08.700 align:start position:10% line:84.66% size:67.5% is the percent of days that 05:08.700 --> 05:10.400 align:start position:10% line:84.66% size:77.5% mothers experience this type of 05:10.400 --> 05:11.900 align:start position:10% line:84.66% size:17.5% stress. 05:11.900 --> 05:13.633 align:start position:10% line:84.66% size:75% You can see elevated levels of 05:13.633 --> 05:15.066 align:start position:10% line:84.66% size:72.5% arguments, elevated levels of 05:15.066 --> 05:16.433 align:start position:10% line:84.66% size:62.5% avoided arguments, and an 05:16.433 --> 05:17.900 align:start position:10% line:84.66% size:70% avoided argument is when you 05:17.900 --> 05:19.233 align:start position:10% line:84.66% size:77.5% know you could get into a fight 05:19.233 --> 05:21.100 align:start position:10% line:84.66% size:80% and you could pick the fight and 05:21.100 --> 05:22.666 align:start position:10% line:84.66% size:72.5% you just choose it's not even 05:22.666 --> 05:24.000 align:start position:10% line:84.66% size:52.5% worth it to go there. 05:24.000 --> 05:25.566 align:start position:10% line:84.66% size:72.5% That's what avoided arguments 05:25.566 --> 05:26.966 align:start position:10% line:84.66% size:80% mean, so you may understand what 05:26.966 --> 05:28.433 align:start position:10% line:84.66% size:40% that feels like. 05:28.433 --> 05:30.000 align:start position:10% line:84.66% size:65% Also higher levels of work 05:30.000 --> 05:31.900 align:start position:10% line:84.66% size:77.5% stress, which might be a little 05:31.900 --> 05:33.233 align:start position:10% line:84.66% size:27.5% surprising. 05:33.233 --> 05:34.533 align:start position:10% line:84.66% size:72.5% If you're at work, you're not 05:34.533 --> 05:36.200 align:start position:10% line:84.66% size:77.5% with your child, why would work 05:36.200 --> 05:37.733 align:start position:10% line:84.66% size:65% be more stressful for you? 05:37.733 --> 05:39.466 align:start position:10% line:84.66% size:65% Well, we actually know and 05:39.466 --> 05:41.100 align:start position:10% line:84.66% size:77.5% that's shown on this slide that 05:41.100 --> 05:42.733 align:start position:10% line:84.66% size:60% you're more likely to be 05:42.733 --> 05:44.200 align:start position:10% line:84.66% size:77.5% interrupted when you're at work 05:44.200 --> 05:45.566 align:start position:10% line:84.66% size:65% if you have a child on the 05:45.566 --> 05:47.033 align:start position:10% line:84.66% size:75% autism spectrum you're getting 05:47.033 --> 05:48.133 align:start position:10% line:84.66% size:72.5% phone calls, you're having to 05:48.133 --> 05:49.500 align:start position:10% line:84.66% size:80% leave work early, which can make 05:49.500 --> 05:50.666 align:start position:10% line:84.66% size:62.5% work feel more stressful. 05:50.666 --> 05:52.766 align:start position:10% line:84.66% size:77.5% Not surprisingly, over twice as 05:52.766 --> 05:56.000 align:start position:10% line:84.66% size:77.5% often parents were experiencing 05:56.000 --> 05:57.800 align:start position:10% line:84.66% size:62.5% stress at home at well as 05:57.800 --> 06:00.300 align:start position:10% line:84.66% size:37.5% network stress. 06:00.300 --> 06:01.933 align:start position:10% line:84.66% size:80% And I think this is particularly 06:01.933 --> 06:04.033 align:start position:10% line:84.66% size:67.5% important for this group of 06:04.033 --> 06:05.933 align:start position:10% line:84.66% size:57.5% families to know about. 06:05.933 --> 06:07.500 align:start position:10% line:84.66% size:80% Network stress is when something 06:07.500 --> 06:09.433 align:start position:10% line:84.66% size:62.5% stressful is happening to 06:09.433 --> 06:10.933 align:start position:10% line:84.66% size:42.5% someone you love. 06:10.933 --> 06:13.233 align:start position:10% line:84.66% size:70% So this could be stress your 06:13.233 --> 06:14.633 align:start position:10% line:84.66% size:67.5% child is experiencing, your 06:14.633 --> 06:16.366 align:start position:10% line:84.66% size:40% extended family. 06:16.366 --> 06:18.666 align:start position:10% line:84.66% size:77.5% So mothers were reported higher 06:18.666 --> 06:20.766 align:start position:10% line:84.66% size:72.5% levels of network stress when 06:20.766 --> 06:22.400 align:start position:10% line:84.66% size:72.5% their child was on the autism 06:22.400 --> 06:26.600 align:start position:10% line:84.66% size:22.5% spectrum. 06:26.600 --> 06:29.900 align:start position:10% line:84.66% size:75% And, again, worth knowing that 06:29.900 --> 06:31.933 align:start position:10% line:84.66% size:75% families are experiencing this 06:31.933 --> 06:34.000 align:start position:10% line:84.66% size:80% stress, and I'm going to make an 06:34.000 --> 06:35.666 align:start position:10% line:84.66% size:67.5% argument that we need to be 06:35.666 --> 06:37.400 align:start position:10% line:84.66% size:72.5% providing support to families 06:37.400 --> 06:39.533 align:start position:10% line:84.66% size:80% not just during the early period 06:39.533 --> 06:41.100 align:start position:10% line:84.66% size:57.5% when the child is being 06:41.100 --> 06:42.966 align:start position:10% line:84.66% size:75% diagnosed with a disability or 06:42.966 --> 06:44.566 align:start position:10% line:84.66% size:77.5% in the early years when they're 06:44.566 --> 06:46.366 align:start position:10% line:84.66% size:80% starting school and the families 06:46.366 --> 06:48.300 align:start position:10% line:84.66% size:80% are trying to navigate IEPs, but 06:48.300 --> 06:49.933 align:start position:10% line:84.66% size:70% we also need to be providing 06:49.933 --> 06:51.466 align:start position:10% line:84.66% size:75% support to families during the 06:51.466 --> 06:52.900 align:start position:10% line:84.66% size:45% adolescent period. 06:52.900 --> 06:54.500 align:start position:10% line:84.66% size:72.5% I don't know if you can think 06:54.500 --> 06:55.866 align:start position:10% line:84.66% size:77.5% back and remember when you were 06:55.866 --> 06:57.233 align:start position:10% line:84.66% size:77.5% a teenager, but a lot of things 06:57.233 --> 06:58.666 align:start position:10% line:84.66% size:55% actually happen during 06:58.666 --> 07:00.166 align:start position:10% line:84.66% size:30% adolescence. 07:00.166 --> 07:02.200 align:start position:10% line:84.66% size:80% A lot of transitions and changes 07:02.200 --> 07:04.900 align:start position:10% line:84.66% size:72.5% in terms of your relationship 07:04.900 --> 07:06.900 align:start position:10% line:84.66% size:70% with your family members, in 07:06.900 --> 07:08.866 align:start position:10% line:84.66% size:80% terms of what you are doing with 07:08.866 --> 07:10.766 align:start position:10% line:84.66% size:75% you peers is really different, 07:10.766 --> 07:12.700 align:start position:10% line:84.66% size:77.5% and even on a day to day level, 07:12.700 --> 07:14.766 align:start position:10% line:84.66% size:70% if you are a teenager on the 07:14.766 --> 07:15.933 align:start position:10% line:84.66% size:70% autism spectrum, you're in a 07:15.933 --> 07:17.433 align:start position:10% line:84.66% size:77.5% high school setting, you may be 07:17.433 --> 07:19.666 align:start position:10% line:84.66% size:52.5% changing classes very 07:19.666 --> 07:21.333 align:start position:10% line:84.66% size:27.5% frequently. 07:21.333 --> 07:23.133 align:start position:10% line:84.66% size:67.5% You may have different peer 07:23.133 --> 07:24.700 align:start position:10% line:84.66% size:80% groups at different times of the 07:24.700 --> 07:26.300 align:start position:10% line:84.66% size:77.5% day, which can be confusing and 07:26.300 --> 07:27.966 align:start position:10% line:84.66% size:75% challenging for someone on the 07:27.966 --> 07:29.666 align:start position:10% line:84.66% size:22.5% spectrum. 07:29.666 --> 07:31.300 align:start position:10% line:84.66% size:72.5% And so not only are you going 07:31.300 --> 07:32.766 align:start position:10% line:84.66% size:80% through these major life changes 07:32.766 --> 07:34.266 align:start position:10% line:84.66% size:75% during adolescence, but you're 07:34.266 --> 07:35.666 align:start position:10% line:84.66% size:80% also going through a day to day, 07:35.666 --> 07:37.166 align:start position:10% line:84.66% size:77.5% a higher number of transitions. 07:37.166 --> 07:38.533 align:start position:10% line:84.66% size:80% And we know that for individuals 07:38.533 --> 07:40.100 align:start position:10% line:84.66% size:55% on the autism spectrum 07:40.100 --> 07:42.633 align:start position:10% line:84.66% size:65% negotiating transition and 07:42.633 --> 07:44.533 align:start position:10% line:84.66% size:55% change is really hard. 07:44.533 --> 07:46.900 align:start position:10% line:84.66% size:62.5% Also, we know that during 07:46.900 --> 07:48.666 align:start position:10% line:84.66% size:77.5% adolescence and that transition 07:48.666 --> 07:50.966 align:start position:10% line:84.66% size:72.5% to adulthood, after teenagers 07:50.966 --> 07:52.400 align:start position:10% line:84.66% size:67.5% leave high school there's a 07:52.400 --> 07:54.266 align:start position:10% line:84.66% size:72.5% significant loss of services. 07:54.266 --> 07:56.800 align:start position:10% line:84.66% size:80% There's no longer entitlement to 07:56.800 --> 07:58.433 align:start position:10% line:84.66% size:75% public education services like 07:58.433 --> 08:01.000 align:start position:10% line:84.66% size:77.5% you have when you're in school. 08:01.000 --> 08:03.200 align:start position:10% line:84.66% size:72.5% Some families even talk about 08:03.200 --> 08:05.033 align:start position:10% line:84.66% size:70% this as falling off a cliff. 08:05.033 --> 08:07.366 align:start position:10% line:84.66% size:75% The shift from having supports 08:07.366 --> 08:08.933 align:start position:10% line:84.66% size:72.5% to not having supports can be 08:08.933 --> 08:10.800 align:start position:10% line:84.66% size:42.5% very challenging. 08:10.800 --> 08:12.300 align:start position:10% line:84.66% size:70% Also during adolescence is a 08:12.300 --> 08:14.766 align:start position:10% line:84.66% size:65% time of increased risk for 08:14.766 --> 08:16.466 align:start position:10% line:84.66% size:60% difficulties in terms of 08:16.466 --> 08:17.833 align:start position:10% line:84.66% size:77.5% symptoms and behavior problems. 08:17.833 --> 08:19.300 align:start position:10% line:84.66% size:67.5% We know that the adolescent 08:19.300 --> 08:20.933 align:start position:10% line:84.66% size:75% years for anyone is when often 08:20.933 --> 08:22.500 align:start position:10% line:84.66% size:80% mental health problems can begin 08:22.500 --> 08:23.933 align:start position:10% line:84.66% size:25% to emerge. 08:23.933 --> 08:25.500 align:start position:10% line:84.66% size:67.5% And so people on the autism 08:25.500 --> 08:27.066 align:start position:10% line:84.66% size:72.5% spectrum, that's the same for 08:27.066 --> 08:28.666 align:start position:10% line:84.66% size:32.5% them as well. 08:28.666 --> 08:30.566 align:start position:10% line:84.66% size:77.5% And so, in general, adolescence 08:30.566 --> 08:33.000 align:start position:10% line:84.66% size:77.5% is a time for families that can 08:33.000 --> 08:35.000 align:start position:10% line:84.66% size:70% be more stressful, actually, 08:35.000 --> 08:36.566 align:start position:10% line:84.66% size:80% than other periods in the course 08:36.566 --> 08:39.233 align:start position:10% line:84.66% size:30% of a family. 08:39.233 --> 08:42.033 align:start position:10% line:84.66% size:77.5% This slide is a little, there's 08:42.033 --> 08:43.433 align:start position:10% line:84.66% size:80% a lot going on, but I think it's 08:43.433 --> 08:44.900 align:start position:10% line:84.66% size:80% really important for everyone to 08:44.900 --> 08:46.600 align:start position:10% line:84.66% size:27.5% understand. 08:46.600 --> 08:48.100 align:start position:10% line:84.66% size:77.5% This is an important paper that 08:48.100 --> 08:50.433 align:start position:10% line:84.66% size:77.5% was done by a colleague in mine 08:50.433 --> 08:52.500 align:start position:10% line:84.66% size:77.5% and Marsha Mailick, and, as you 08:52.500 --> 08:55.066 align:start position:10% line:84.66% size:77.5% can see, the vertical line, the 08:55.066 --> 08:56.933 align:start position:10% line:84.66% size:80% black line, represents the point 08:56.933 --> 08:58.866 align:start position:10% line:84.66% size:77.5% in time that an adolescent with 08:58.866 --> 09:01.200 align:start position:10% line:84.66% size:57.5% ASD exited high school. 09:01.200 --> 09:03.833 align:start position:10% line:84.66% size:80% And so the negatives reflect the 09:03.833 --> 09:05.800 align:start position:10% line:84.66% size:75% time when the individuals were 09:05.800 --> 09:07.666 align:start position:10% line:84.66% size:70% in high school, and then the 09:07.666 --> 09:09.133 align:start position:10% line:84.66% size:75% one, two, three, fours are the 09:09.133 --> 09:10.633 align:start position:10% line:84.66% size:80% four years following high school 09:10.633 --> 09:12.133 align:start position:10% line:84.66% size:12.5% exit. 09:12.133 --> 09:13.766 align:start position:10% line:84.66% size:67.5% And there are two different 09:13.766 --> 09:15.300 align:start position:10% line:84.66% size:35% colored lines. 09:15.300 --> 09:16.900 align:start position:10% line:84.66% size:57.5% The red line represents 09:16.900 --> 09:18.500 align:start position:10% line:84.66% size:65% individuals with an autism 09:18.500 --> 09:20.133 align:start position:10% line:84.66% size:60% spectrum disorder and an 09:20.133 --> 09:21.866 align:start position:10% line:84.66% size:80% intellectual disability, and the 09:21.866 --> 09:23.700 align:start position:10% line:84.66% size:80% blue line represents individuals 09:23.700 --> 09:25.566 align:start position:10% line:84.66% size:75% with ASD without an additional 09:25.566 --> 09:27.733 align:start position:10% line:84.66% size:60% intellectual disability. 09:27.733 --> 09:29.633 align:start position:10% line:84.66% size:80% So the blue line are individuals 09:29.633 --> 09:31.233 align:start position:10% line:84.66% size:75% with intellectual ability in a 09:31.233 --> 09:34.200 align:start position:10% line:84.66% size:32.5% normal range. 09:34.200 --> 09:36.066 align:start position:10% line:84.66% size:75% And what you can see that when 09:36.066 --> 09:39.333 align:start position:10% line:84.66% size:77.5% students on the spectrum are in 09:39.333 --> 09:42.900 align:start position:10% line:84.66% size:75% high school, so the numbers to 09:42.900 --> 09:46.166 align:start position:10% line:84.66% size:80% your left, their autism symptoms 09:46.166 --> 09:47.833 align:start position:10% line:84.66% size:67.5% are going down, which means 09:47.833 --> 09:49.700 align:start position:10% line:84.66% size:72.5% they're improving in terms of 09:49.700 --> 09:51.900 align:start position:10% line:84.66% size:75% their social communication and 09:51.900 --> 09:54.233 align:start position:10% line:84.66% size:72.5% their repetitive behaviors or 09:54.233 --> 09:55.733 align:start position:10% line:84.66% size:75% their rigidity associated with 09:55.733 --> 09:57.100 align:start position:10% line:84.66% size:17.5% autism. 09:57.100 --> 09:58.633 align:start position:10% line:84.66% size:77.5% It's going down so it's getting 09:58.633 --> 10:00.133 align:start position:10% line:84.66% size:67.5% better when they're in high 10:00.133 --> 10:01.466 align:start position:10% line:84.66% size:57.5% school, which is great. 10:01.466 --> 10:02.966 align:start position:10% line:84.66% size:77.5% And this is actually a trend we 10:02.966 --> 10:04.433 align:start position:10% line:84.66% size:65% see in general that autism 10:04.433 --> 10:06.333 align:start position:10% line:84.66% size:77.5% symptoms generally improve with 10:06.333 --> 10:09.000 align:start position:10% line:84.66% size:77.5% time and with maturation, which 10:09.000 --> 10:11.133 align:start position:10% line:84.66% size:45% is not surprising. 10:11.133 --> 10:13.000 align:start position:10% line:84.66% size:75% But what is very concerning to 10:13.000 --> 10:15.566 align:start position:10% line:84.66% size:67.5% me is that when individuals 10:15.566 --> 10:17.566 align:start position:10% line:84.66% size:80% leave high school, their rate of 10:17.566 --> 10:19.266 align:start position:10% line:84.66% size:77.5% improvement significantly slows 10:19.266 --> 10:21.400 align:start position:10% line:84.66% size:12.5% down. 10:21.400 --> 10:23.066 align:start position:10% line:84.66% size:80% So maybe they're making gains in 10:23.066 --> 10:25.166 align:start position:10% line:84.66% size:80% social skills or making gains in 10:25.166 --> 10:26.633 align:start position:10% line:84.66% size:72.5% their behavior, but when they 10:26.633 --> 10:28.333 align:start position:10% line:84.66% size:72.5% leave high school the rate of 10:28.333 --> 10:30.533 align:start position:10% line:84.66% size:57.5% improvement slows down. 10:30.533 --> 10:32.000 align:start position:10% line:84.66% size:75% And this really has to do with 10:32.000 --> 10:33.600 align:start position:10% line:84.66% size:80% leaving high school more so than 10:33.600 --> 10:36.533 align:start position:10% line:84.66% size:47.5% just getting older. 10:36.533 --> 10:39.233 align:start position:10% line:84.66% size:70% But we could think about why 10:39.233 --> 10:41.533 align:start position:10% line:84.66% size:75% might that be the case that as 10:41.533 --> 10:44.500 align:start position:10% line:84.66% size:70% they leave high school their 10:44.500 --> 10:47.166 align:start position:10% line:84.66% size:57.5% improvement slows down. 10:47.166 --> 10:49.100 align:start position:10% line:84.66% size:77.5% Well, we can think about it has 10:49.100 --> 10:50.766 align:start position:10% line:84.66% size:77.5% to do with not having access to 10:50.766 --> 10:52.133 align:start position:10% line:84.66% size:75% services, and maybe not having 10:52.133 --> 10:54.266 align:start position:10% line:84.66% size:80% as many meaningful activities or 10:54.266 --> 10:57.333 align:start position:10% line:84.66% size:75% places to go and things to do. 10:57.333 --> 11:00.666 align:start position:10% line:84.66% size:75% This really points to the need 11:00.666 --> 11:03.633 align:start position:10% line:84.66% size:70% for community activities and 11:03.633 --> 11:05.500 align:start position:10% line:84.66% size:77.5% supports for individuals on the 11:05.500 --> 11:07.233 align:start position:10% line:84.66% size:52.5% spectrum, both during 11:07.233 --> 11:09.133 align:start position:10% line:84.66% size:77.5% adolescence and during the time 11:09.133 --> 11:11.133 align:start position:10% line:84.66% size:70% when they leave high school. 11:11.133 --> 11:12.966 align:start position:10% line:84.66% size:77.5% We see during adulthood, again, 11:12.966 --> 11:14.466 align:start position:10% line:84.66% size:70% like I said, there are fewer 11:14.466 --> 11:16.066 align:start position:10% line:84.66% size:70% services and also just fewer 11:16.066 --> 11:17.833 align:start position:10% line:84.66% size:45% social activities. 11:17.833 --> 11:19.666 align:start position:10% line:84.66% size:77.5% When you're in high school, you 11:19.666 --> 11:21.200 align:start position:10% line:84.66% size:77.5% have peers around you every day 11:21.200 --> 11:22.166 align:start position:10% line:84.66% size:60% because you're in class. 11:22.166 --> 11:23.300 align:start position:10% line:84.66% size:77.5% That's not necessarily the case 11:23.300 --> 11:24.666 align:start position:10% line:84.66% size:35% once you exit. 11:24.666 --> 11:26.000 align:start position:10% line:84.66% size:80% So, again, this is why we really 11:26.000 --> 11:27.766 align:start position:10% line:84.66% size:80% want to be preparing individuals 11:27.766 --> 11:29.500 align:start position:10% line:84.66% size:62.5% on the spectrum and their 11:29.500 --> 11:31.033 align:start position:10% line:84.66% size:80% families for this transition out 11:31.033 --> 11:32.900 align:start position:10% line:84.66% size:37.5% of high school. 11:32.900 --> 11:35.000 align:start position:10% line:84.66% size:75% And just to make this a little 11:35.000 --> 11:37.200 align:start position:10% line:84.66% size:80% more personal and bring the data 11:37.200 --> 11:39.700 align:start position:10% line:84.66% size:72.5% to life a little more, we, in 11:39.700 --> 11:42.066 align:start position:10% line:84.66% size:72.5% the process to developing the 11:42.066 --> 11:43.766 align:start position:10% line:84.66% size:55% Transitioning Together 11:43.766 --> 11:45.466 align:start position:10% line:84.66% size:80% intervention, conducted a lot of 11:45.466 --> 11:47.166 align:start position:10% line:84.66% size:65% focus groups and talked to 11:47.166 --> 11:48.600 align:start position:10% line:84.66% size:77.5% families to find out what types 11:48.600 --> 11:50.266 align:start position:10% line:84.66% size:70% of services or supports they 11:50.266 --> 11:51.600 align:start position:10% line:84.66% size:27.5% might need. 11:51.600 --> 11:53.266 align:start position:10% line:84.66% size:67.5% And one of the overwhelming 11:53.266 --> 11:55.400 align:start position:10% line:84.66% size:72.5% themes in talking to families 11:55.400 --> 11:57.866 align:start position:10% line:84.66% size:65% was the need for community 11:57.866 --> 11:59.633 align:start position:10% line:84.66% size:52.5% activities and social 11:59.633 --> 12:01.533 align:start position:10% line:84.66% size:77.5% connections for their children. 12:01.533 --> 12:03.500 align:start position:10% line:84.66% size:77.5% One parent said, "I want to see 12:03.500 --> 12:05.300 align:start position:10% line:84.66% size:75% community activities for young 12:05.300 --> 12:07.000 align:start position:10% line:84.66% size:20% adults." 12:07.000 --> 12:08.466 align:start position:10% line:84.66% size:70% Another said, "We badly need 12:08.466 --> 12:10.200 align:start position:10% line:84.66% size:47.5% community supports. 12:10.200 --> 12:12.100 align:start position:10% line:84.66% size:57.5% My son has no friends." 12:12.100 --> 12:14.133 align:start position:10% line:84.66% size:72.5% And finally, "Think about all 12:14.133 --> 12:15.933 align:start position:10% line:84.66% size:65% the times the child is not 12:15.933 --> 12:17.866 align:start position:10% line:84.66% size:72.5% included in social events and 12:17.866 --> 12:19.600 align:start position:10% line:84.66% size:62.5% the parents have to avoid 12:19.600 --> 12:21.500 align:start position:10% line:84.66% size:72.5% neighbors, churches, and have 12:21.500 --> 12:23.000 align:start position:10% line:84.66% size:62.5% been blacklisted from the 12:23.000 --> 12:24.333 align:start position:10% line:84.66% size:27.5% community." 12:24.333 --> 12:27.033 align:start position:10% line:84.66% size:70% And these quotes really show 12:27.033 --> 12:29.733 align:start position:10% line:84.66% size:72.5% what it feels like to parents 12:29.733 --> 12:31.666 align:start position:10% line:84.66% size:77.5% and the stress they feel trying 12:31.666 --> 12:33.833 align:start position:10% line:84.66% size:70% to provide opportunities for 12:33.833 --> 12:35.700 align:start position:10% line:84.66% size:72.5% their children and the reason 12:35.700 --> 12:37.533 align:start position:10% line:84.66% size:70% that we need to be providing 12:37.533 --> 12:40.066 align:start position:10% line:84.66% size:80% supports across the life course. 12:40.066 --> 12:41.866 align:start position:10% line:84.66% size:65% So, during adolescence and 12:41.866 --> 12:44.133 align:start position:10% line:84.66% size:17.5% beyond. 12:44.133 --> 12:46.133 align:start position:10% line:84.66% size:75% So, again, we see there aren't 12:46.133 --> 12:47.900 align:start position:10% line:84.66% size:77.5% as many supports, especially as 12:47.900 --> 12:50.733 align:start position:10% line:84.66% size:72.5% families usher their children 12:50.733 --> 12:53.800 align:start position:10% line:84.66% size:77.5% into adulthood even though it's 12:53.800 --> 12:55.633 align:start position:10% line:84.66% size:80% a particularly stressful period. 12:55.633 --> 12:57.133 align:start position:10% line:84.66% size:72.5% So there's a mismatch between 12:57.133 --> 12:58.933 align:start position:10% line:84.66% size:80% the services we are providing as 12:58.933 --> 13:00.533 align:start position:10% line:84.66% size:80% professionals and what the needs 13:00.533 --> 13:02.300 align:start position:10% line:84.66% size:62.5% of families happen to be. 13:02.300 --> 13:03.800 align:start position:10% line:84.66% size:62.5% So we decided here at the 13:03.800 --> 13:05.233 align:start position:10% line:84.66% size:62.5% Waisman Center to develop 13:05.233 --> 13:06.900 align:start position:10% line:84.66% size:77.5% Transitioning Together in order 13:06.900 --> 13:08.300 align:start position:10% line:84.66% size:65% to address this gap in our 13:08.300 --> 13:10.766 align:start position:10% line:84.66% size:60% evidence-based services. 13:10.766 --> 13:13.966 align:start position:10% line:84.66% size:72.5% So the Transitioning Together 13:13.966 --> 13:16.400 align:start position:10% line:84.66% size:70% program, it seeks to provide 13:16.400 --> 13:18.233 align:start position:10% line:84.66% size:62.5% education and support for 13:18.233 --> 13:20.300 align:start position:10% line:84.66% size:72.5% parents as well as to provide 13:20.300 --> 13:22.200 align:start position:10% line:84.66% size:77.5% social opportunities for social 13:22.200 --> 13:23.766 align:start position:10% line:84.66% size:70% interaction and learning for 13:23.766 --> 13:25.333 align:start position:10% line:84.66% size:62.5% adolescents on the autism 13:25.333 --> 13:26.733 align:start position:10% line:84.66% size:22.5% spectrum. 13:26.733 --> 13:29.000 align:start position:10% line:84.66% size:67.5% And the overarching sort of 13:29.000 --> 13:30.633 align:start position:10% line:84.66% size:77.5% theme of being in Transitioning 13:30.633 --> 13:32.200 align:start position:10% line:84.66% size:67.5% Together and the program is 13:32.200 --> 13:33.633 align:start position:10% line:84.66% size:75% really to emphasize positivity 13:33.633 --> 13:35.433 align:start position:10% line:84.66% size:50% and problem solving. 13:35.433 --> 13:37.233 align:start position:10% line:84.66% size:77.5% We know from our past work that 13:37.233 --> 13:39.566 align:start position:10% line:84.66% size:70% using problem focused coping 13:39.566 --> 13:41.000 align:start position:10% line:84.66% size:65% strategies and maintaining 13:41.000 --> 13:42.933 align:start position:10% line:84.66% size:70% positivity within the family 13:42.933 --> 13:45.000 align:start position:10% line:84.66% size:67.5% system is really important. 13:45.000 --> 13:46.700 align:start position:10% line:84.66% size:80% So that's one of the main themes 13:46.700 --> 13:48.600 align:start position:10% line:84.66% size:75% and goals of the Transitioning 13:48.600 --> 13:50.600 align:start position:10% line:84.66% size:42.5% Together program. 13:50.600 --> 13:55.233 align:start position:10% line:84.66% size:77.5% The program is multifaceted, so 13:55.233 --> 13:57.333 align:start position:10% line:84.66% size:77.5% it involves individual sessions 13:57.333 --> 13:59.200 align:start position:10% line:84.66% size:57.5% for families as well as 13:59.200 --> 14:02.033 align:start position:10% line:84.66% size:77.5% multi-family group sessions for 14:02.033 --> 14:03.600 align:start position:10% line:84.66% size:20% parents. 14:03.600 --> 14:05.100 align:start position:10% line:84.66% size:75% So that means multiple parents 14:05.100 --> 14:06.800 align:start position:10% line:84.66% size:77.5% come together into one group to 14:06.800 --> 14:08.666 align:start position:10% line:84.66% size:67.5% be able to dialog and learn 14:08.666 --> 14:10.233 align:start position:10% line:84.66% size:22.5% together. 14:10.233 --> 14:11.800 align:start position:10% line:84.66% size:67.5% There are also eight social 14:11.800 --> 14:13.666 align:start position:10% line:84.66% size:62.5% group sessions for teens. 14:13.666 --> 14:16.400 align:start position:10% line:84.66% size:80% And we provide ongoing resources 14:16.400 --> 14:18.000 align:start position:10% line:84.66% size:35% and referrals. 14:18.000 --> 14:20.000 align:start position:10% line:84.66% size:77.5% So obviously there are a lot of 14:20.000 --> 14:21.866 align:start position:10% line:84.66% size:80% things that are happening during 14:21.866 --> 14:23.200 align:start position:10% line:84.66% size:67.5% adolescence, and you're not 14:23.200 --> 14:24.533 align:start position:10% line:84.66% size:72.5% going to have time to discuss 14:24.533 --> 14:27.666 align:start position:10% line:84.66% size:72.5% all concerns or address them, 14:27.666 --> 14:29.400 align:start position:10% line:84.66% size:77.5% and that's why we would be able 14:29.400 --> 14:31.033 align:start position:10% line:84.66% size:80% to provide resources to families 14:31.033 --> 14:33.333 align:start position:10% line:84.66% size:62.5% that maybe aren't touched 14:33.333 --> 14:35.300 align:start position:10% line:84.66% size:72.5% exactly in the curriculum for 14:35.300 --> 14:37.033 align:start position:10% line:84.66% size:57.5% Transitioning Together. 14:37.033 --> 14:40.200 align:start position:10% line:84.66% size:62.5% And here is a list of the 14:40.200 --> 14:41.800 align:start position:10% line:84.66% size:62.5% different topics that are 14:41.800 --> 14:43.233 align:start position:10% line:84.66% size:75% covered during the eight group 14:43.233 --> 14:44.566 align:start position:10% line:84.66% size:52.5% sessions for parents. 14:44.566 --> 14:46.300 align:start position:10% line:84.66% size:57.5% We talk about autism in 14:46.300 --> 14:48.733 align:start position:10% line:84.66% size:60% adulthood, transitioning 14:48.733 --> 14:50.433 align:start position:10% line:84.66% size:67.5% planning, and transitioning 14:50.433 --> 14:52.266 align:start position:10% line:84.66% size:80% planning involves thinking about 14:52.266 --> 14:54.266 align:start position:10% line:84.66% size:80% employment as well as continuing 14:54.266 --> 14:55.733 align:start position:10% line:84.66% size:67.5% education and also thinking 14:55.733 --> 14:57.366 align:start position:10% line:84.66% size:57.5% about maybe residential 14:57.366 --> 15:00.100 align:start position:10% line:84.66% size:27.5% transition. 15:00.100 --> 15:02.233 align:start position:10% line:84.66% size:77.5% Is the child wanting to live on 15:02.233 --> 15:03.800 align:start position:10% line:84.66% size:25% their own? 15:03.800 --> 15:05.366 align:start position:10% line:84.66% size:77.5% Are they wanting to continue to 15:05.366 --> 15:06.766 align:start position:10% line:84.66% size:52.5% live with the family? 15:06.766 --> 15:08.100 align:start position:10% line:84.66% size:77.5% So we talk about those types of 15:08.100 --> 15:09.366 align:start position:10% line:84.66% size:30% transitions. 15:09.366 --> 15:10.800 align:start position:10% line:84.66% size:77.5% Family topics would be thinking 15:10.800 --> 15:13.366 align:start position:10% line:84.66% size:70% about the impact of having a 15:13.366 --> 15:15.166 align:start position:10% line:84.66% size:70% child on the spectrum in the 15:15.166 --> 15:16.733 align:start position:10% line:84.66% size:12.5% home. 15:16.733 --> 15:18.233 align:start position:10% line:84.66% size:75% So the impact on the siblings, 15:18.233 --> 15:19.766 align:start position:10% line:84.66% size:72.5% but also what are things that 15:19.766 --> 15:21.300 align:start position:10% line:84.66% size:75% families can be doing in their 15:21.300 --> 15:22.766 align:start position:10% line:84.66% size:55% home and in the family 15:22.766 --> 15:24.166 align:start position:10% line:84.66% size:75% environment that's going to be 15:24.166 --> 15:26.133 align:start position:10% line:84.66% size:77.5% most supportive for a person on 15:26.133 --> 15:28.533 align:start position:10% line:84.66% size:32.5% the spectrum. 15:28.533 --> 15:30.566 align:start position:10% line:84.66% size:67.5% We discuss problem solving, 15:30.566 --> 15:32.300 align:start position:10% line:84.66% size:65% which is really important. 15:32.300 --> 15:33.833 align:start position:10% line:84.66% size:65% Thinking about, often in a 15:33.833 --> 15:36.066 align:start position:10% line:84.66% size:75% support group, you get a bunch 15:36.066 --> 15:38.233 align:start position:10% line:84.66% size:80% of people together and you start 15:38.233 --> 15:40.533 align:start position:10% line:84.66% size:75% to discuss all the things that 15:40.533 --> 15:42.700 align:start position:10% line:84.66% size:77.5% are terrible about you life and 15:42.700 --> 15:44.766 align:start position:10% line:84.66% size:80% how stressed you are and sort of 15:44.766 --> 15:47.133 align:start position:10% line:84.66% size:77.5% venting those negative emotions 15:47.133 --> 15:48.700 align:start position:10% line:84.66% size:75% in the moment Maybe you get it 15:48.700 --> 15:50.166 align:start position:10% line:84.66% size:67.5% off your chest and you feel 15:50.166 --> 15:51.700 align:start position:10% line:84.66% size:17.5% better. 15:51.700 --> 15:53.100 align:start position:10% line:84.66% size:62.5% But we actually know from 15:53.100 --> 15:55.100 align:start position:10% line:84.66% size:72.5% research that staying in that 15:55.100 --> 15:57.366 align:start position:10% line:84.66% size:75% negativity and that venting of 15:57.366 --> 15:59.100 align:start position:10% line:84.66% size:80% negative emotions or denying the 15:59.100 --> 16:00.833 align:start position:10% line:84.66% size:72.5% problem and not looking at it 16:00.833 --> 16:04.300 align:start position:10% line:84.66% size:72.5% and facing it actually is not 16:04.300 --> 16:07.133 align:start position:10% line:84.66% size:55% good for psychological 16:07.133 --> 16:08.900 align:start position:10% line:84.66% size:67.5% well being in the long run. 16:08.900 --> 16:10.600 align:start position:10% line:84.66% size:77.5% So what is valuable is to think 16:10.600 --> 16:13.433 align:start position:10% line:84.66% size:62.5% about how can we define a 16:13.433 --> 16:15.366 align:start position:10% line:84.66% size:80% problem, figure out sort of what 16:15.366 --> 16:17.466 align:start position:10% line:84.66% size:77.5% might be contributing, and then 16:17.466 --> 16:19.233 align:start position:10% line:84.66% size:70% make a plan for how we could 16:19.233 --> 16:21.700 align:start position:10% line:84.66% size:62.5% find a workable solution. 16:21.700 --> 16:23.500 align:start position:10% line:84.66% size:75% And so when you bring a lot of 16:23.500 --> 16:24.966 align:start position:10% line:84.66% size:80% families together, they all have 16:24.966 --> 16:26.500 align:start position:10% line:84.66% size:80% expertise in having a child with 16:26.500 --> 16:27.966 align:start position:10% line:84.66% size:62.5% ASD, and so we're able to 16:27.966 --> 16:29.433 align:start position:10% line:84.66% size:75% capitalize on their ideas in a 16:29.433 --> 16:31.266 align:start position:10% line:84.66% size:70% problem solving session with 16:31.266 --> 16:33.433 align:start position:10% line:84.66% size:22.5% families. 16:33.433 --> 16:34.966 align:start position:10% line:84.66% size:67.5% We also talk about risks to 16:34.966 --> 16:36.333 align:start position:10% line:84.66% size:75% adult independence and ways to 16:36.333 --> 16:38.033 align:start position:10% line:84.66% size:77.5% address those risks or barriers 16:38.033 --> 16:39.366 align:start position:10% line:84.66% size:52.5% to being independent. 16:39.366 --> 16:40.800 align:start position:10% line:84.66% size:55% Community involvement. 16:40.800 --> 16:42.900 align:start position:10% line:84.66% size:77.5% Risks to parents own health and 16:42.900 --> 16:44.433 align:start position:10% line:84.66% size:27.5% well being. 16:44.433 --> 16:45.966 align:start position:10% line:84.66% size:70% Again, just like I presented 16:45.966 --> 16:47.666 align:start position:10% line:84.66% size:75% earlier, we see that stress is 16:47.666 --> 16:50.366 align:start position:10% line:84.66% size:75% high, and stress can have sort 16:50.366 --> 16:54.533 align:start position:10% line:84.66% size:77.5% of cascading effects on health. 16:54.533 --> 16:56.300 align:start position:10% line:84.66% size:62.5% And we also discuss legal 16:56.300 --> 16:58.133 align:start position:10% line:84.66% size:77.5% issues, guardianship, different 16:58.133 --> 17:00.533 align:start position:10% line:84.66% size:67.5% powers of attorney, special 17:00.533 --> 17:02.600 align:start position:10% line:84.66% size:75% needs trusts, different topics 17:02.600 --> 17:05.600 align:start position:10% line:84.66% size:67.5% that maybe families haven't 17:05.600 --> 17:07.266 align:start position:10% line:84.66% size:77.5% started thinking about in terms 17:07.266 --> 17:08.833 align:start position:10% line:84.66% size:77.5% of long range planning that are 17:08.833 --> 17:10.300 align:start position:10% line:84.66% size:77.5% important to think about before 17:10.300 --> 17:12.600 align:start position:10% line:84.66% size:42.5% children turn 18. 17:12.600 --> 17:14.266 align:start position:10% line:84.66% size:80% And, again, like I said, we have 17:14.266 --> 17:15.833 align:start position:10% line:84.66% size:77.5% a social group for teens on the 17:15.833 --> 17:17.766 align:start position:10% line:84.66% size:77.5% spectrum, and I completely give 17:17.766 --> 17:19.400 align:start position:10% line:84.66% size:62.5% credit to families who've 17:19.400 --> 17:21.466 align:start position:10% line:84.66% size:80% participated in our focus groups 17:21.466 --> 17:22.933 align:start position:10% line:84.66% size:72.5% for even having a teen social 17:22.933 --> 17:24.333 align:start position:10% line:84.66% size:15% group. 17:24.333 --> 17:26.200 align:start position:10% line:84.66% size:80% That was what parents brought up 17:26.200 --> 17:27.666 align:start position:10% line:84.66% size:67.5% to us, and so we responded. 17:27.666 --> 17:29.766 align:start position:10% line:84.66% size:72.5% For our social group, we do a 17:29.766 --> 17:31.833 align:start position:10% line:84.66% size:55% lot of fun activities. 17:31.833 --> 17:33.466 align:start position:10% line:84.66% size:75% There's a lot of eating, a lot 17:33.466 --> 17:35.900 align:start position:10% line:84.66% size:75% of games, role plays and skits 17:35.900 --> 17:38.233 align:start position:10% line:84.66% size:75% to help practice what to do in 17:38.233 --> 17:39.700 align:start position:10% line:84.66% size:45% social situations. 17:39.700 --> 17:42.166 align:start position:10% line:84.66% size:75% Teens talk about sharing their 17:42.166 --> 17:43.733 align:start position:10% line:84.66% size:70% interests, setting their own 17:43.733 --> 17:45.200 align:start position:10% line:84.66% size:15% goals. 17:45.200 --> 17:46.666 align:start position:10% line:84.66% size:62.5% It's really important for 17:46.666 --> 17:48.166 align:start position:10% line:84.66% size:62.5% students with any kind of 17:48.166 --> 17:50.000 align:start position:10% line:84.66% size:80% disability to start to have that 17:50.000 --> 17:51.600 align:start position:10% line:84.66% size:77.5% sense of self-determination and 17:51.600 --> 17:53.233 align:start position:10% line:84.66% size:60% advocacy for themselves. 17:53.233 --> 17:54.833 align:start position:10% line:84.66% size:80% So that's why we talk about them 17:54.833 --> 17:56.266 align:start position:10% line:84.66% size:60% thinking about their own 17:56.266 --> 17:57.566 align:start position:10% line:84.66% size:20% futures. 17:57.566 --> 17:59.266 align:start position:10% line:84.66% size:70% We also help the teens learn 17:59.266 --> 18:00.866 align:start position:10% line:84.66% size:67.5% problem solving themselves, 18:00.866 --> 18:02.233 align:start position:10% line:84.66% size:62.5% especially social problem 18:02.233 --> 18:03.566 align:start position:10% line:84.66% size:20% solving. 18:03.566 --> 18:05.033 align:start position:10% line:84.66% size:77.5% Kids on the spectrum, it can be 18:05.033 --> 18:07.000 align:start position:10% line:84.66% size:72.5% hard for them when they maybe 18:07.000 --> 18:09.000 align:start position:10% line:84.66% size:75% are being bullied or they sort 18:09.000 --> 18:10.466 align:start position:10% line:84.66% size:72.5% of crash and burn in a social 18:10.466 --> 18:11.733 align:start position:10% line:84.66% size:25% situation. 18:11.733 --> 18:13.133 align:start position:10% line:84.66% size:65% They often don't know why. 18:13.133 --> 18:14.433 align:start position:10% line:84.66% size:80% So they may realize that they're 18:14.433 --> 18:15.766 align:start position:10% line:84.66% size:80% having social difficulty and can 18:15.766 --> 18:17.533 align:start position:10% line:84.66% size:70% even have anxiety or feeling 18:17.533 --> 18:19.800 align:start position:10% line:84.66% size:60% sort of negatively about 18:19.800 --> 18:21.466 align:start position:10% line:84.66% size:77.5% themselves, but they don't know 18:21.466 --> 18:23.033 align:start position:10% line:84.66% size:75% why they're having this social 18:23.033 --> 18:24.400 align:start position:10% line:84.66% size:80% difficulty, and so we train them 18:24.400 --> 18:25.933 align:start position:10% line:84.66% size:70% in doing some social problem 18:25.933 --> 18:27.600 align:start position:10% line:84.66% size:62.5% solving as well as social 18:27.600 --> 18:29.000 align:start position:10% line:84.66% size:22.5% planning. 18:29.000 --> 18:30.300 align:start position:10% line:84.66% size:67.5% So, setting yourself up for 18:30.300 --> 18:32.166 align:start position:10% line:84.66% size:42.5% success socially. 18:32.166 --> 18:33.566 align:start position:10% line:84.66% size:72.5% And the teen group is tons of 18:33.566 --> 18:35.100 align:start position:10% line:84.66% size:40% fun, by the way. 18:35.100 --> 18:37.466 align:start position:10% line:84.66% size:80% So, like Marsha said, we've been 18:37.466 --> 18:39.100 align:start position:10% line:84.66% size:75% doing work around this program 18:39.100 --> 18:40.966 align:start position:10% line:84.66% size:30% for a while. 18:40.966 --> 18:43.633 align:start position:10% line:84.66% size:65% Our first study was funded 18:43.633 --> 18:45.433 align:start position:10% line:84.66% size:72.5% through the CTSA program ICTR 18:45.433 --> 18:47.233 align:start position:10% line:84.66% size:65% here at UW Madison with 10 18:47.233 --> 18:49.033 align:start position:10% line:84.66% size:22.5% families. 18:49.033 --> 18:51.500 align:start position:10% line:84.66% size:57.5% From pre to post we saw 18:51.500 --> 18:53.100 align:start position:10% line:84.66% size:75% differences an improvements in 18:53.100 --> 18:54.533 align:start position:10% line:84.66% size:77.5% parent's understanding of their 18:54.533 --> 18:56.200 align:start position:10% line:84.66% size:47.5% child's disability, 18:56.200 --> 18:57.900 align:start position:10% line:84.66% size:62.5% understanding the service 18:57.900 --> 18:59.400 align:start position:10% line:84.66% size:72.5% system, so, again, increasing 18:59.400 --> 19:00.966 align:start position:10% line:84.66% size:70% parent's knowledge about the 19:00.966 --> 19:02.400 align:start position:10% line:84.66% size:27.5% transition. 19:02.400 --> 19:03.800 align:start position:10% line:84.66% size:75% Parents also reported positive 19:03.800 --> 19:05.066 align:start position:10% line:84.66% size:80% changes in their attitudes about 19:05.066 --> 19:06.300 align:start position:10% line:84.66% size:30% their teens. 19:06.300 --> 19:07.600 align:start position:10% line:84.66% size:60% So, thinking about maybe 19:07.600 --> 19:09.233 align:start position:10% line:84.66% size:72.5% behavior differently and in a 19:09.233 --> 19:11.366 align:start position:10% line:84.66% size:45% more positive way. 19:11.366 --> 19:13.033 align:start position:10% line:84.66% size:75% And also parents were rated as 19:13.033 --> 19:14.433 align:start position:10% line:84.66% size:75% having higher levels of warmth 19:14.433 --> 19:16.133 align:start position:10% line:84.66% size:47.5% towards their teen. 19:16.133 --> 19:17.633 align:start position:10% line:84.66% size:67.5% Again, having that sense of 19:17.633 --> 19:20.800 align:start position:10% line:84.66% size:52.5% warmth and safety and 19:20.800 --> 19:22.900 align:start position:10% line:84.66% size:80% connectedness within the home is 19:22.900 --> 19:24.433 align:start position:10% line:84.66% size:77.5% really important for all people 19:24.433 --> 19:26.033 align:start position:10% line:84.66% size:42.5% and all children. 19:26.033 --> 19:27.866 align:start position:10% line:84.66% size:77.5% So we were excited to see these 19:27.866 --> 19:29.300 align:start position:10% line:84.66% size:70% early findings in this first 19:29.300 --> 19:30.900 align:start position:10% line:84.66% size:15% study. 19:30.900 --> 19:34.100 align:start position:10% line:84.66% size:80% We also are working on finishing 19:34.100 --> 19:36.133 align:start position:10% line:84.66% size:67.5% up a study that's funded by 19:36.133 --> 19:37.600 align:start position:10% line:84.66% size:35% Autism Speaks. 19:37.600 --> 19:39.300 align:start position:10% line:84.66% size:72.5% And, again, Autism Speaks are 19:39.300 --> 19:40.700 align:start position:10% line:84.66% size:72.5% the group that also has those 19:40.700 --> 19:42.400 align:start position:10% line:84.66% size:72.5% nice tool kits that Maria was 19:42.400 --> 19:43.866 align:start position:10% line:84.66% size:70% talking about, and they fund 19:43.866 --> 19:45.400 align:start position:10% line:84.66% size:52.5% research studies too. 19:45.400 --> 19:46.933 align:start position:10% line:84.66% size:65% And this particular study, 19:46.933 --> 19:49.300 align:start position:10% line:84.66% size:62.5% Transitioning Together is 19:49.300 --> 19:51.566 align:start position:10% line:84.66% size:80% designed where it can be sort of 19:51.566 --> 19:53.633 align:start position:10% line:84.66% size:75% applicable to the whole autism 19:53.633 --> 19:55.100 align:start position:10% line:84.66% size:55% spectrum, but for this 19:55.100 --> 19:56.566 align:start position:10% line:84.66% size:60% particular study we were 19:56.566 --> 19:58.366 align:start position:10% line:84.66% size:70% focusing on teens with "high 19:58.366 --> 20:00.600 align:start position:10% line:84.66% size:50% functioning autism." 20:00.600 --> 20:02.733 align:start position:10% line:84.66% size:72.5% And it's a randomized control 20:02.733 --> 20:05.066 align:start position:10% line:84.66% size:72.5% design, so a randomized study 20:05.066 --> 20:08.933 align:start position:10% line:84.66% size:80% which is a good type of research 20:08.933 --> 20:11.500 align:start position:10% line:84.66% size:72.5% method for this type of work. 20:11.500 --> 20:14.633 align:start position:10% line:84.66% size:65% And preliminarily, we have 20:14.633 --> 20:16.800 align:start position:10% line:84.66% size:77.5% preliminary data on 30 families 20:16.800 --> 20:19.266 align:start position:10% line:84.66% size:75% so far of teenagers, and we've 20:19.266 --> 20:22.066 align:start position:10% line:84.66% size:77.5% seen improvements in adolescent 20:22.066 --> 20:23.700 align:start position:10% line:84.66% size:70% social engagement as well as 20:23.700 --> 20:26.300 align:start position:10% line:84.66% size:57.5% improvement in parental 20:26.300 --> 20:28.100 align:start position:10% line:84.66% size:75% attitudes, the family climate, 20:28.100 --> 20:29.633 align:start position:10% line:84.66% size:57.5% and the family sense of 20:29.633 --> 20:30.966 align:start position:10% line:84.66% size:30% empowerment. 20:30.966 --> 20:32.566 align:start position:10% line:84.66% size:72.5% So they have a sense of being 20:32.566 --> 20:34.033 align:start position:10% line:84.66% size:65% able to advocate for their 20:34.033 --> 20:35.266 align:start position:10% line:84.66% size:42.5% children's needs. 20:35.266 --> 20:37.800 align:start position:10% line:84.66% size:70% And we find these data to be 20:37.800 --> 20:39.566 align:start position:10% line:84.66% size:70% very promising and exciting. 20:39.566 --> 20:41.200 align:start position:10% line:84.66% size:67.5% And, again, it's ongoing so 20:41.200 --> 20:42.833 align:start position:10% line:84.66% size:77.5% we're still recruiting for this 20:42.833 --> 20:44.166 align:start position:10% line:84.66% size:15% study. 20:44.166 --> 20:45.666 align:start position:10% line:84.66% size:75% If anyone has teenagers on the 20:45.666 --> 20:47.266 align:start position:10% line:84.66% size:77.5% spectrum, you can send them our 20:47.266 --> 20:48.666 align:start position:10% line:84.66% size:10% way. 20:48.666 --> 20:50.233 align:start position:10% line:84.66% size:77.5% And I just wanted to share some 20:50.233 --> 20:51.533 align:start position:10% line:84.66% size:17.5% quotes. 20:51.533 --> 20:52.833 align:start position:10% line:84.66% size:77.5% I know I started earlier giving 20:52.833 --> 20:54.233 align:start position:10% line:84.66% size:72.5% some quotes when we did focus 20:54.233 --> 20:55.833 align:start position:10% line:84.66% size:75% groups about sort of the sense 20:55.833 --> 20:57.633 align:start position:10% line:84.66% size:67.5% of isolation families felt. 20:57.633 --> 20:58.800 align:start position:10% line:84.66% size:70% And so these are quotes from 20:58.800 --> 21:00.000 align:start position:10% line:84.66% size:75% families who have been through 21:00.000 --> 21:01.366 align:start position:10% line:84.66% size:65% the Transitioning Together 21:01.366 --> 21:02.966 align:start position:10% line:84.66% size:67.5% program and their thoughts. 21:02.966 --> 21:04.700 align:start position:10% line:84.66% size:75% So these are quotes first from 21:04.700 --> 21:06.266 align:start position:10% line:84.66% size:20% parents. 21:06.266 --> 21:07.533 align:start position:10% line:84.66% size:80% "The first time in a really long 21:07.533 --> 21:09.800 align:start position:10% line:84.66% size:80% time that especially with my son 21:09.800 --> 21:11.533 align:start position:10% line:84.66% size:75% I felt like we've had supports 21:11.533 --> 21:13.433 align:start position:10% line:84.66% size:30% to turn to." 21:13.433 --> 21:15.333 align:start position:10% line:84.66% size:80% Another parent said, "It gave me 21:15.333 --> 21:17.066 align:start position:10% line:84.66% size:72.5% a wealth of information about 21:17.066 --> 21:18.800 align:start position:10% line:84.66% size:65% what should be going on at 21:18.800 --> 21:21.600 align:start position:10% line:84.66% size:80% school as far as transitioning." 21:21.600 --> 21:24.200 align:start position:10% line:84.66% size:77.5% And as a caveat, a lot of times 21:24.200 --> 21:25.966 align:start position:10% line:84.66% size:75% when parents have stress, that 21:25.966 --> 21:27.733 align:start position:10% line:84.66% size:75% connection with the school and 21:27.733 --> 21:29.300 align:start position:10% line:84.66% size:80% feeling supported by schools can 21:29.300 --> 21:30.966 align:start position:10% line:84.66% size:32.5% be difficult. 21:30.966 --> 21:32.400 align:start position:10% line:84.66% size:70% And, finally, from a parent, 21:32.400 --> 21:33.533 align:start position:10% line:84.66% size:57.5% "I wish it was required 21:33.533 --> 21:35.200 align:start position:10% line:84.66% size:47.5% for every student." 21:35.200 --> 21:36.800 align:start position:10% line:84.66% size:77.5% And from the teens, and I think 21:36.800 --> 21:38.366 align:start position:10% line:84.66% size:70% listening to teens is really 21:38.366 --> 21:39.800 align:start position:10% line:84.66% size:77.5% fun, "Pretty much all of us had 21:39.800 --> 21:41.233 align:start position:10% line:84.66% size:65% some sort of interest that 21:41.233 --> 21:42.633 align:start position:10% line:84.66% size:52.5% people usually don't. 21:42.633 --> 21:43.933 align:start position:10% line:84.66% size:55% So it was interesting. 21:43.933 --> 21:45.833 align:start position:10% line:84.66% size:47.5% It was really cool. 21:45.833 --> 21:47.300 align:start position:10% line:84.66% size:70% We could share our ideas on, 21:47.300 --> 21:49.000 align:start position:10% line:84.66% size:65% like, these weird topics." 21:49.000 --> 21:50.166 align:start position:10% line:84.66% size:25% [LAUGHTER] 21:50.166 --> 21:51.233 align:start position:10% line:84.66% size:62.5% And we do find that a lot 21:51.233 --> 21:52.600 align:start position:10% line:84.66% size:57.5% when we interview kids. 21:52.600 --> 21:54.066 align:start position:10% line:84.66% size:77.5% They talk about how nice it was 21:54.066 --> 21:55.933 align:start position:10% line:84.66% size:62.5% to be able to share their 21:55.933 --> 21:57.466 align:start position:10% line:84.66% size:47.5% specific interests. 21:57.466 --> 21:59.033 align:start position:10% line:84.66% size:72.5% And if anyone has kids on the 21:59.033 --> 22:00.400 align:start position:10% line:84.66% size:77.5% spectrum, or grandkids, I think 22:00.400 --> 22:01.833 align:start position:10% line:84.66% size:77.5% you know what I'm talking about 22:01.833 --> 22:03.200 align:start position:10% line:84.66% size:12.5% here. 22:03.200 --> 22:04.633 align:start position:10% line:84.66% size:80% And another teen said, "When I'm 22:04.633 --> 22:06.466 align:start position:10% line:84.66% size:80% riding home after group it feels 22:06.466 --> 22:08.766 align:start position:10% line:84.66% size:72.5% like I'm tired but I'm happy. 22:08.766 --> 22:10.500 align:start position:10% line:84.66% size:72.5% It's almost like you get this 22:10.500 --> 22:12.566 align:start position:10% line:84.66% size:52.5% warm, fuzzy feeling." 22:12.566 --> 22:14.200 align:start position:10% line:84.66% size:80% So I think that really shows the 22:14.200 --> 22:15.733 align:start position:10% line:84.66% size:67.5% sense of social connection, 22:15.733 --> 22:17.233 align:start position:10% line:84.66% size:75% especially for the teens to be 22:17.233 --> 22:18.666 align:start position:10% line:84.66% size:57.5% able to have a positive 22:18.666 --> 22:21.700 align:start position:10% line:84.66% size:55% experience with peers. 22:21.700 --> 22:23.566 align:start position:10% line:84.66% size:70% We also, based on what we're 22:23.566 --> 22:26.533 align:start position:10% line:84.66% size:77.5% finding in terms of the benefit 22:26.533 --> 22:29.166 align:start position:10% line:84.66% size:70% of being in an education and 22:29.166 --> 22:30.633 align:start position:10% line:84.66% size:60% support group with other 22:30.633 --> 22:32.866 align:start position:10% line:84.66% size:70% families, we are part of the 22:32.866 --> 22:34.600 align:start position:10% line:84.66% size:75% Center for Secondary Education 22:34.600 --> 22:36.333 align:start position:10% line:84.66% size:55% for Students with ASD. 22:36.333 --> 22:39.433 align:start position:10% line:84.66% size:62.5% And we're excited because 22:39.433 --> 22:41.100 align:start position:10% line:84.66% size:77.5% Transitioning Together is going 22:41.100 --> 22:43.066 align:start position:10% line:84.66% size:72.5% to be part of a comprehensive 22:43.066 --> 22:45.166 align:start position:10% line:84.66% size:55% model in high schools. 22:45.166 --> 22:47.600 align:start position:10% line:84.66% size:80% So it's a comprehensive model to 22:47.600 --> 22:50.366 align:start position:10% line:84.66% size:80% improve outcomes for high school 22:50.366 --> 22:52.400 align:start position:10% line:84.66% size:80% students on the autism spectrum. 22:52.400 --> 22:54.166 align:start position:10% line:84.66% size:75% And we're partnering with five 22:54.166 --> 22:55.800 align:start position:10% line:84.66% size:47.5% other universities. 22:55.800 --> 22:57.533 align:start position:10% line:84.66% size:77.5% And, actually, it's going to be 22:57.533 --> 22:59.300 align:start position:10% line:84.66% size:80% a randomized control trial in 60 22:59.300 --> 23:01.500 align:start position:10% line:84.66% size:80% high schools across the country. 23:01.500 --> 23:03.200 align:start position:10% line:84.66% size:72.5% And Transitioning Together is 23:03.200 --> 23:05.100 align:start position:10% line:84.66% size:77.5% going to be one of the supports 23:05.100 --> 23:06.833 align:start position:10% line:84.66% size:60% that's provided in these 23:06.833 --> 23:08.400 align:start position:10% line:84.66% size:57.5% different high schools. 23:08.400 --> 23:10.000 align:start position:10% line:84.66% size:72.5% So we're really excited to be 23:10.000 --> 23:11.366 align:start position:10% line:84.66% size:75% part of this national project. 23:11.366 --> 23:12.866 align:start position:10% line:84.66% size:72.5% And I want to give you just a 23:12.866 --> 23:15.066 align:start position:10% line:84.66% size:72.5% little information about what 23:15.066 --> 23:17.066 align:start position:10% line:84.66% size:77.5% this overall project is and how 23:17.066 --> 23:19.166 align:start position:10% line:84.66% size:70% family support fits into it. 23:19.166 --> 23:21.366 align:start position:10% line:84.66% size:77.5% So, CSESA, which is, again, the 23:21.366 --> 23:23.033 align:start position:10% line:84.66% size:75% Center for Secondary Education 23:23.033 --> 23:25.033 align:start position:10% line:84.66% size:65% for Students with ASD, has 23:25.033 --> 23:26.833 align:start position:10% line:84.66% size:70% several components to try to 23:26.833 --> 23:28.500 align:start position:10% line:84.66% size:67.5% improve outcomes after high 23:28.500 --> 23:31.566 align:start position:10% line:84.66% size:17.5% school. 23:31.566 --> 23:33.300 align:start position:10% line:84.66% size:72.5% And the first is foundations. 23:33.300 --> 23:36.400 align:start position:10% line:84.66% size:72.5% And by that we mean providing 23:36.400 --> 23:38.000 align:start position:10% line:84.66% size:70% professional development and 23:38.000 --> 23:39.633 align:start position:10% line:84.66% size:57.5% coaching and support to 23:39.633 --> 23:41.233 align:start position:10% line:84.66% size:52.5% educators around ASD. 23:41.233 --> 23:43.433 align:start position:10% line:84.66% size:67.5% A lot of times even special 23:43.433 --> 23:44.900 align:start position:10% line:84.66% size:77.5% educators may not have a lot of 23:44.900 --> 23:46.233 align:start position:10% line:84.66% size:80% experience working with students 23:46.233 --> 23:47.766 align:start position:10% line:84.66% size:40% on the spectrum. 23:47.766 --> 23:49.266 align:start position:10% line:84.66% size:70% And so when we're working in 23:49.266 --> 23:50.666 align:start position:10% line:84.66% size:62.5% these high schools, we're 23:50.666 --> 23:52.233 align:start position:10% line:84.66% size:70% wanting to go in and provide 23:52.233 --> 23:53.733 align:start position:10% line:84.66% size:80% support to the educators so they 23:53.733 --> 23:55.166 align:start position:10% line:84.66% size:60% can in turn provide best 23:55.166 --> 23:57.166 align:start position:10% line:84.66% size:62.5% practice to the students. 23:57.166 --> 24:00.633 align:start position:10% line:84.66% size:80% There also are four main content 24:00.633 --> 24:02.366 align:start position:10% line:84.66% size:75% areas that we think are really 24:02.366 --> 24:04.000 align:start position:10% line:84.66% size:72.5% important to target with high 24:04.000 --> 24:05.366 align:start position:10% line:84.66% size:62.5% school students with ASD. 24:05.366 --> 24:07.000 align:start position:10% line:84.66% size:75% Academics is always important, 24:07.000 --> 24:08.533 align:start position:10% line:84.66% size:72.5% but especially thinking about 24:08.533 --> 24:09.866 align:start position:10% line:84.66% size:35% comprehension. 24:09.866 --> 24:11.533 align:start position:10% line:84.66% size:70% Reading comprehension can be 24:11.533 --> 24:13.833 align:start position:10% line:84.66% size:75% difficult for kids at any age, 24:13.833 --> 24:15.366 align:start position:10% line:84.66% size:75% but especially by the time you 24:15.366 --> 24:16.833 align:start position:10% line:84.66% size:80% get to high school there's a lot 24:16.833 --> 24:18.200 align:start position:10% line:84.66% size:72.5% of reading involved, and that 24:18.200 --> 24:19.600 align:start position:10% line:84.66% size:80% can be a hangup for some kids on 24:19.600 --> 24:20.866 align:start position:10% line:84.66% size:32.5% the spectrum. 24:20.866 --> 24:22.300 align:start position:10% line:84.66% size:70% Independence and behavior is 24:22.300 --> 24:23.533 align:start position:10% line:84.66% size:45% another component. 24:23.533 --> 24:24.866 align:start position:10% line:84.66% size:62.5% So thinking about helping 24:24.866 --> 24:27.066 align:start position:10% line:84.66% size:77.5% teenagers learn to manage their 24:27.066 --> 24:28.666 align:start position:10% line:84.66% size:72.5% own emotions and behavior and 24:28.666 --> 24:31.533 align:start position:10% line:84.66% size:80% taking responsibility and having 24:31.533 --> 24:34.433 align:start position:10% line:84.66% size:45% more independence. 24:34.433 --> 24:36.200 align:start position:10% line:84.66% size:77.5% So not always having the parent 24:36.200 --> 24:38.400 align:start position:10% line:84.66% size:55% make the bed for them. 24:38.400 --> 24:39.866 align:start position:10% line:84.66% size:72.5% They can start to learn to do 24:39.866 --> 24:41.233 align:start position:10% line:84.66% size:40% that themselves. 24:41.233 --> 24:42.666 align:start position:10% line:84.66% size:75% Social clearly is an important 24:42.666 --> 24:44.033 align:start position:10% line:84.66% size:12.5% area. 24:44.033 --> 24:46.066 align:start position:10% line:84.66% size:77.5% So creating peer networks, peer 24:46.066 --> 24:47.833 align:start position:10% line:84.66% size:77.5% mediated interventions directly 24:47.833 --> 24:49.233 align:start position:10% line:84.66% size:62.5% instructing around social 24:49.233 --> 24:50.700 align:start position:10% line:84.66% size:75% skills, and then transition in 24:50.700 --> 24:52.033 align:start position:10% line:84.66% size:22.5% families. 24:52.033 --> 24:53.500 align:start position:10% line:84.66% size:65% So that component is where 24:53.500 --> 24:55.000 align:start position:10% line:84.66% size:70% Transitioning Together comes 24:55.000 --> 24:56.366 align:start position:10% line:84.66% size:25% into play. 24:56.366 --> 24:57.733 align:start position:10% line:84.66% size:45% And we're excited. 24:57.733 --> 24:59.633 align:start position:10% line:84.66% size:77.5% The Department of Education has 24:59.633 --> 25:01.700 align:start position:10% line:84.66% size:72.5% decided to fund this work and 25:01.700 --> 25:03.733 align:start position:10% line:84.66% size:77.5% focus on improving outcomes for 25:03.733 --> 25:05.866 align:start position:10% line:84.66% size:45% students with ASD. 25:05.866 --> 25:08.233 align:start position:10% line:84.66% size:77.5% Part of the CSESA project is so 25:08.233 --> 25:09.766 align:start position:10% line:84.66% size:65% comprehensive so that it's 25:09.766 --> 25:11.300 align:start position:10% line:84.66% size:75% including families, and that's 25:11.300 --> 25:13.300 align:start position:10% line:84.66% size:77.5% something I'm very glad to see. 25:13.300 --> 25:15.300 align:start position:10% line:84.66% size:72.5% So just to wrap up, I want to 25:15.300 --> 25:17.600 align:start position:10% line:84.66% size:80% thank many collaborators, mainly 25:17.600 --> 25:19.300 align:start position:10% line:84.66% size:67.5% Marsha Mailick who's been a 25:19.300 --> 25:21.333 align:start position:10% line:84.66% size:77.5% wonderful mentor and support to 25:21.333 --> 25:23.733 align:start position:10% line:84.66% size:80% me, Jan Greenberg and Chris Coe, 25:23.733 --> 25:26.000 align:start position:10% line:84.66% size:77.5% who are our other investigators 25:26.000 --> 25:27.266 align:start position:10% line:84.66% size:67.5% here at the Waisman Center, 25:27.266 --> 25:29.266 align:start position:10% line:84.66% size:72.5% Renee Makuch and Kate Szidon, 25:29.266 --> 25:30.700 align:start position:10% line:84.66% size:60% our coordinators for the 25:30.700 --> 25:32.666 align:start position:10% line:84.66% size:80% different projects, and Sam Odom 25:32.666 --> 25:34.933 align:start position:10% line:84.66% size:77.5% and Kara Hume are the principal 25:34.933 --> 25:37.600 align:start position:10% line:84.66% size:72.5% investigators for the core of 25:37.600 --> 25:40.000 align:start position:10% line:84.66% size:75% the CSESA project, and they're 25:40.000 --> 25:41.266 align:start position:10% line:84.66% size:45% in North Carolina. 25:41.266 --> 25:42.600 align:start position:10% line:84.66% size:67.5% And there have been several 25:42.600 --> 25:44.800 align:start position:10% line:84.66% size:70% different funders for all of 25:44.800 --> 25:46.600 align:start position:10% line:84.66% size:50% this work over time. 25:46.600 --> 25:48.000 align:start position:10% line:84.66% size:80% So we're very grateful for them. 25:48.000 --> 25:49.133 align:start position:10% line:84.66% size:80% So, I will stop there and see if 25:49.133 --> 25:51.633 align:start position:10% line:84.66% size:60% there are any questions. 25:51.633 --> 25:53.666 align:start position:10% line:84.66% size:25% [APPLAUSE]