WEBVTT 00:00.900 --> 00:02.469 align:left position:10%,start line:5% size:80% >>Hospice is about living. 00:02.469 --> 00:04.170 align:left position:10%,start line:5% size:80% How can we make this moment 00:04.170 --> 00:07.707 align:left position:10%,start line:5% size:80% as good as possible before anything else changes? 00:07.707 --> 00:12.512 align:left position:10%,start line:5% size:80% We just are here for today to make life worth living now. 00:12.512 --> 00:15.448 align:left position:10%,start line:5% size:80% >>I don't know what people did without hospice. 00:15.448 --> 00:17.317 align:left position:20%,start line:5% size:70% And I have great respect for Werner. 00:17.317 --> 00:21.154 align:left position:10%,start line:5% size:80% He actually died, his hospital was right there on this ward. 00:21.154 --> 00:23.857 align:left position:10%,start line:83% size:80% I have great respect for he insisted that he wanted 00:23.857 --> 00:28.862 align:left position:10%,start line:83% size:80% to die the way he thought he should die at home. 00:30.030 --> 00:33.466 align:left position:20%,start line:83% size:70% And not taking drugs and just be taken care of 00:33.466 --> 00:36.236 align:left position:20%,start line:89% size:70% until he expired. 00:37.670 --> 00:40.306 align:left position:10%,start line:5% size:80% >>There is a misconception that the focus of hospice care 00:40.306 --> 00:44.511 align:left position:10%,start line:5% size:80% is on dying but really it is about quality of life. 00:44.511 --> 00:47.547 align:left position:10%,start line:83% size:80% Join us today as we visit Hospice of the Piedmont 00:47.547 --> 00:50.316 align:left position:10%,start line:83% size:80% to find out what this important organization is doing 00:50.316 --> 00:52.685 align:left position:20%,start line:83% size:70% to help people with terminal illness 00:52.685 --> 00:56.723 align:left position:10%,start line:83% size:80% live out their lives in comfort with respect and dignity. 00:56.723 --> 00:57.524 align:left position:40%,start line:89% size:50% Come on. 00:59.559 --> 01:02.896 align:left position:10%,start line:83% size:80% Tell us, what is the mission of Hospice of the Piedmont? 01:02.896 --> 01:05.799 align:left position:10%,start line:89% size:80% >>For 35 years now our vision 01:05.799 --> 01:07.634 align:left position:20%,start line:83% size:70% or our mission has remained the same. 01:07.634 --> 01:10.970 align:left position:20%,start line:5% size:70% That no one would have to die alone or in pain. 01:10.970 --> 01:12.472 align:left position:20%,start line:5% size:70% And that's no one. 01:12.472 --> 01:16.042 align:left position:10%,start line:5% size:80% Regardless of age, race, what country you're from, 01:16.042 --> 01:17.944 align:left position:10%,start line:83% size:80% what your citizenship is. >>Right. 01:17.944 --> 01:19.379 align:left position:20%,start line:89% size:70% >>So that's our passion. 01:19.379 --> 01:20.313 align:left position:20%,start line:89% size:70% >>It absolutely is. 01:20.313 --> 01:21.881 align:left position:10%,start line:89% size:80% It's definitely not about death. 01:21.881 --> 01:24.551 align:left position:20%,start line:83% size:70% It's about a person who's been diagnosed 01:24.551 --> 01:27.887 align:left position:20%,start line:5% size:70% with a terminal illness who has the right 01:27.887 --> 01:30.590 align:left position:20%,start line:5% size:70% to make decisions as to how to live out 01:30.590 --> 01:32.425 align:left position:20%,start line:89% size:70% the rest of that time. 01:32.425 --> 01:34.928 align:left position:20%,start line:83% size:70% Usually prognosis of six months or less 01:34.928 --> 01:35.995 align:left position:20%,start line:89% size:70% is what they're facing. 01:35.995 --> 01:37.230 align:left position:40%,start line:89% size:50% >>Right. 01:37.230 --> 01:38.465 align:left position:20%,start line:83% size:70% >>One lady told me, you know she said, 01:38.465 --> 01:41.801 align:left position:20%,start line:83% size:70% "I haven't talked to my daughter in 17 years." 01:41.801 --> 01:44.037 align:left position:10%,start line:89% size:80% So we made the phone calls. 01:44.037 --> 01:46.439 align:left position:20%,start line:83% size:70% In other words it's really about living. 01:46.439 --> 01:48.007 align:left position:20%,start line:89% size:70% It's not about dying. 01:48.007 --> 01:51.077 align:left position:20%,start line:83% size:70% It's about living your final days and weeks 01:51.077 --> 01:53.012 align:left position:10%,start line:89% size:80% and months to the fullest. 01:53.012 --> 01:56.349 align:left position:10%,start line:83% size:80% And when you do that you tend to celebrate life in general. 01:56.349 --> 01:57.650 align:left position:10%,start line:89% size:80% >>Who does hospice work with? 01:57.650 --> 01:59.252 align:left position:20%,start line:83% size:70% Does it matter where you come from? 01:59.252 --> 02:02.222 align:left position:20%,start line:83% size:70% Does it matter your financial situation? 02:02.222 --> 02:03.022 align:left position:20%,start line:5% size:70% How does that work? 02:03.022 --> 02:04.491 align:left position:20%,start line:5% size:70% >>None of that matters. 02:04.491 --> 02:08.328 align:left position:10%,start line:5% size:80% There's no discriminatory factor in hospice whatsoever. 02:08.328 --> 02:13.333 align:left position:20%,start line:83% size:70% We take ages 18 to infinity at this point. 02:14.734 --> 02:16.836 align:left position:10%,start line:83% size:80% And it's just people who are looking to have quality of life 02:16.836 --> 02:18.638 align:left position:20%,start line:83% size:70% who are not seeking treatment any longer 02:18.638 --> 02:20.406 align:left position:20%,start line:83% size:70% or that treatment's not available. 02:20.406 --> 02:22.775 align:left position:10%,start line:89% size:80% >>And who pays for hospice? 02:22.775 --> 02:25.678 align:left position:20%,start line:83% size:70% >>Hospice was established back in 1983 02:25.678 --> 02:28.047 align:left position:10%,start line:83% size:80% through a Medicare benefit but that doesn't mean 02:28.047 --> 02:31.050 align:left position:10%,start line:83% size:80% that you have to have Medicare to have hospice. 02:31.050 --> 02:34.687 align:left position:20%,start line:83% size:70% Commercial insurances will pay for hospice. 02:34.687 --> 02:39.559 align:left position:20%,start line:83% size:70% But again, financial status is not an issue. 02:41.261 --> 02:43.496 align:left position:10%,start line:83% size:80% If you don't have money, if you don't have insurance, 02:43.496 --> 02:45.331 align:left position:20%,start line:83% size:70% you're not turned away from Hospice. 02:45.331 --> 02:46.833 align:left position:30%,start line:83% size:60% >>Talk about the different places 02:46.833 --> 02:48.067 align:left position:10%,start line:89% size:80% that the patients are seen. 02:48.067 --> 02:50.270 align:left position:20%,start line:83% size:70% >>They are seen anywhere that they call home. 02:50.270 --> 02:53.039 align:left position:10%,start line:83% size:80% It could be in their private residence, their private home, 02:53.039 --> 02:55.608 align:left position:20%,start line:83% size:70% in assisted living, a nursing facility. 02:55.608 --> 02:58.611 align:left position:10%,start line:83% size:80% I've even cared for patients who lived in a hotel 02:58.611 --> 03:00.380 align:left position:10%,start line:89% size:80% and in a correctional facility. 03:00.380 --> 03:02.482 align:left position:20%,start line:83% size:70% >>And today we're here at the Hospice House 03:02.482 --> 03:04.517 align:left position:10%,start line:89% size:80% so talk about the Hospice House. 03:04.517 --> 03:06.920 align:left position:10%,start line:83% size:80% >>Well, the Hospice House has been here for 11 years. 03:06.920 --> 03:08.922 align:left position:10%,start line:89% size:80% It's a very, very special place. 03:08.922 --> 03:12.125 align:left position:20%,start line:83% size:70% It's as close as you can get to home 03:12.125 --> 03:14.227 align:left position:20%,start line:5% size:70% and yet not be in your own house. 03:14.227 --> 03:15.428 align:left position:20%,start line:5% size:70% It is very personal. 03:15.428 --> 03:17.330 align:left position:10%,start line:5% size:80% We have home cooked meals. 03:17.330 --> 03:19.832 align:left position:20%,start line:83% size:70% But it's a place where you can have this, 03:19.832 --> 03:22.535 align:left position:10%,start line:83% size:80% where your memories and your family can be family 03:22.535 --> 03:24.103 align:left position:20%,start line:89% size:70% instead of a caregiver. 03:24.103 --> 03:26.739 align:left position:20%,start line:83% size:70% It's just a very, very special place. 03:26.739 --> 03:29.075 align:left position:20%,start line:83% size:70% >>I just thought of the story that you told me 03:29.075 --> 03:32.245 align:left position:10%,start line:83% size:80% about the Hospice House, and you were talking about 03:32.245 --> 03:34.747 align:left position:20%,start line:83% size:70% the great beds that are in the rooms now 03:34.747 --> 03:35.949 align:left position:10%,start line:89% size:80% and where they came from. 03:35.949 --> 03:37.383 align:left position:20%,start line:83% size:70% Will you tell me that story real quick? 03:37.383 --> 03:38.218 align:left position:20%,start line:89% size:70% About the gentleman? 03:38.218 --> 03:39.452 align:left position:40%,start line:89% size:50% >>Sure. 03:39.452 --> 03:40.386 align:left position:20%,start line:83% size:70% Well, we have the best beds around 03:40.386 --> 03:42.622 align:left position:10%,start line:89% size:80% because of a generous person. 03:42.622 --> 03:45.491 align:left position:20%,start line:83% size:70% So this patient was at our Hospice House 03:45.491 --> 03:48.161 align:left position:20%,start line:83% size:70% and he was a professional organist. 03:48.161 --> 03:50.730 align:left position:10%,start line:83% size:80% And when our volunteer was meeting with him he said, 03:50.730 --> 03:55.168 align:left position:10%,start line:83% size:80% "If only I could play the organ one more time." 03:55.168 --> 03:57.503 align:left position:10%,start line:83% size:80% So we made arrangements with the church across the street, 03:57.503 --> 04:00.206 align:left position:20%,start line:83% size:70% First Presbyterian gets a shout out, 04:00.206 --> 04:02.575 align:left position:20%,start line:83% size:70% and he played for about 45 minutes. 04:02.575 --> 04:04.110 align:left position:30%,start line:83% size:60% His two kids and wife were there. 04:04.110 --> 04:05.411 align:left position:20%,start line:89% size:70% They were weeping. 04:05.411 --> 04:06.412 align:left position:30%,start line:89% size:60% I was weeping. 04:06.412 --> 04:07.747 align:left position:20%,start line:83% size:70% Everybody was weeping. >>Oh. 04:07.747 --> 04:09.582 align:left position:20%,start line:83% size:70% >>And then he said. "It's finished." 04:09.582 --> 04:10.750 align:left position:30%,start line:89% size:60% He's done. 04:10.750 --> 04:12.585 align:left position:20%,start line:83% size:70% He passed away about a week later. 04:12.585 --> 04:15.021 align:left position:20%,start line:83% size:70% And he told his wife before he passed away, 04:15.021 --> 04:16.322 align:left position:10%,start line:89% size:80% you know, this house was perfect 04:16.322 --> 04:18.625 align:left position:20%,start line:83% size:70% except the beds were getting older. 04:18.625 --> 04:21.127 align:left position:10%,start line:83% size:80% And she said, "I wanna buy you guys all new beds 04:21.127 --> 04:22.395 align:left position:10%,start line:89% size:80% "and you pick the ones you want. 04:22.395 --> 04:24.230 align:left position:20%,start line:83% size:70% "Get the best ones you can find." 04:24.230 --> 04:26.933 align:left position:10%,start line:83% size:80% And that's how we got the best beds in Charlottesville. 04:26.933 --> 04:28.301 align:left position:30%,start line:89% size:60% (all laughing) 04:28.301 --> 04:30.870 align:left position:20%,start line:83% size:70% >>I love that story, I love that story. 04:30.870 --> 04:32.839 align:left position:20%,start line:83% size:70% Okay, you also have an Education Center. 04:32.839 --> 04:34.073 align:left position:20%,start line:89% size:70% Let's hear about that. 04:34.073 --> 04:36.442 align:left position:20%,start line:83% size:70% >>A couple cool things about that program. 04:36.442 --> 04:39.045 align:left position:20%,start line:83% size:70% We have, we do get people donating money 04:39.045 --> 04:42.949 align:left position:10%,start line:83% size:80% to the education institute, but the coolest thing I think 04:42.949 --> 04:45.852 align:left position:20%,start line:83% size:70% is we're getting young doctors and nurses 04:45.852 --> 04:48.821 align:left position:10%,start line:83% size:80% who rotate through, chaplains too, social workers even, 04:48.821 --> 04:50.757 align:left position:10%,start line:89% size:80% they rotate through our hospice 04:50.757 --> 04:55.094 align:left position:10%,start line:83% size:80% and they learn how do you take care of the dying. 04:55.094 --> 04:58.331 align:left position:20%,start line:83% size:70% A critical skill in medicine and nursing. 04:58.331 --> 05:01.100 align:left position:10%,start line:83% size:80% >>The work that I do with hospice was a calling. 05:01.100 --> 05:04.804 align:left position:20%,start line:5% size:70% I was drawn to hospice as another way. 05:04.804 --> 05:07.073 align:left position:10%,start line:5% size:80% When you're in the hospital working as a nurse, 05:07.073 --> 05:09.909 align:left position:20%,start line:83% size:70% you see so much pain and suffering 05:09.909 --> 05:12.512 align:left position:20%,start line:83% size:70% and this is a wonderful alternative 05:12.512 --> 05:14.781 align:left position:10%,start line:89% size:80% because you can be in your home, 05:14.781 --> 05:16.316 align:left position:20%,start line:83% size:70% have your family members around you 05:16.316 --> 05:18.718 align:left position:10%,start line:83% size:80% and not be surrounded by all the bells and whistles 05:18.718 --> 05:21.321 align:left position:20%,start line:83% size:70% and everything in a hospital setting. 05:21.321 --> 05:23.423 align:left position:20%,start line:5% size:70% >>A lot of the work that I do as a social worker 05:23.423 --> 05:24.891 align:left position:20%,start line:5% size:70% is grief counseling. 05:24.891 --> 05:27.894 align:left position:10%,start line:5% size:80% So we're actually grieving from the beginning, 05:27.894 --> 05:30.663 align:left position:10%,start line:83% size:80% straight through until something happens and afterwards. 05:30.663 --> 05:32.665 align:left position:20%,start line:83% size:70% And a big thing that's rewarding to me 05:32.665 --> 05:34.233 align:left position:10%,start line:89% size:80% is getting to work with families 05:34.233 --> 05:36.602 align:left position:20%,start line:83% size:70% and walking that journey with them. 05:36.602 --> 05:38.838 align:left position:10%,start line:89% size:80% Grief is a very private emotion 05:38.838 --> 05:41.507 align:left position:20%,start line:83% size:70% but there's also this process of mourning 05:41.507 --> 05:42.742 align:left position:20%,start line:89% size:70% and making that public. 05:42.742 --> 05:44.777 align:left position:20%,start line:83% size:70% And that's what our hospice does. 05:44.777 --> 05:47.647 align:left position:20%,start line:83% size:70% We have support groups, we have memorials, 05:47.647 --> 05:50.049 align:left position:10%,start line:89% size:80% camps for children and families. 05:50.049 --> 05:51.718 align:left position:20%,start line:83% size:70% And it's a way to let it be known, 05:51.718 --> 05:53.753 align:left position:10%,start line:89% size:80% this was an important life. 05:53.753 --> 05:55.455 align:left position:20%,start line:89% size:70% We're gonna remember it. 05:55.455 --> 05:59.759 align:left position:20%,start line:83% size:70% And with the caregiver we're looking at burnout 05:59.759 --> 06:03.896 align:left position:10%,start line:83% size:80% and preventing that tiredness and that overwhelmed feeling 06:03.896 --> 06:07.533 align:left position:10%,start line:83% size:80% because they're going on all cylinders 24 hours a day. 06:07.533 --> 06:11.704 align:left position:20%,start line:5% size:70% >>My role as chaplain is to help them identify 06:11.704 --> 06:14.273 align:left position:10%,start line:5% size:80% what their spirituality is 06:14.273 --> 06:16.275 align:left position:20%,start line:83% size:70% and how does their spirituality help them 06:16.275 --> 06:20.546 align:left position:10%,start line:83% size:80% through the challenges of dealing with a terminal illness. 06:20.546 --> 06:23.516 align:left position:20%,start line:83% size:70% >>You have a lot of great programs. 06:23.516 --> 06:26.152 align:left position:20%,start line:83% size:70% Let's talk about the Children's Center. 06:26.152 --> 06:28.254 align:left position:20%,start line:83% size:70% That's new in the last couple years. 06:28.254 --> 06:29.555 align:left position:20%,start line:83% size:70% >>So it's the center for children. 06:29.555 --> 06:31.391 align:left position:20%,start line:89% size:70% It has two parts to it. 06:31.391 --> 06:33.326 align:left position:20%,start line:89% size:70% One is called Journeys. 06:33.326 --> 06:36.596 align:left position:10%,start line:5% size:80% The Journeys is the Children's Bereavement Program. 06:36.596 --> 06:38.064 align:left position:20%,start line:5% size:70% And it is so cool. 06:38.064 --> 06:41.100 align:left position:10%,start line:5% size:80% I mean we have camps that go on during the year 06:41.100 --> 06:43.302 align:left position:20%,start line:83% size:70% where children come who have lost a brother 06:43.302 --> 06:45.471 align:left position:10%,start line:89% size:80% or a sister or a mom and dad. 06:45.471 --> 06:46.706 align:left position:40%,start line:89% size:50% >>Right. 06:46.706 --> 06:48.574 align:left position:20%,start line:83% size:70% >>By the end of the day, playing games, hiking, 06:48.574 --> 06:52.145 align:left position:20%,start line:83% size:70% climbing on ropes you know they've realized, 06:52.145 --> 06:55.448 align:left position:10%,start line:83% size:80% okay, you know this is sad but I'm not the only one. 06:55.448 --> 06:56.883 align:left position:20%,start line:89% size:70% >>Yeah, that's huge. 06:56.883 --> 06:58.117 align:left position:20%,start line:83% size:70% >>You never wanna to be the only one. 06:58.117 --> 06:59.352 align:left position:20%,start line:89% size:70% >>Oh, that's huge. 06:59.352 --> 07:02.922 align:left position:20%,start line:83% size:70% >>It allows a child to express themselves 07:02.922 --> 07:05.024 align:left position:20%,start line:5% size:70% the way they need to express themselves 07:05.024 --> 07:06.325 align:left position:20%,start line:5% size:70% with dealing with grief. 07:06.325 --> 07:08.027 align:left position:20%,start line:5% size:70% And that's what makes it so wonderful. 07:08.027 --> 07:09.862 align:left position:20%,start line:83% size:70% >>And then the other part of the children's-- 07:09.862 --> 07:10.997 align:left position:20%,start line:89% size:70% >>Is Piedmont Kids. 07:10.997 --> 07:11.931 align:left position:40%,start line:89% size:50% >>Right. 07:11.931 --> 07:13.399 align:left position:10%,start line:89% size:80% >>And we have art therapists. 07:13.399 --> 07:15.835 align:left position:10%,start line:83% size:80% But mainly Piedmont Kids is about a supportive care program 07:15.835 --> 07:18.471 align:left position:10%,start line:89% size:80% for children now who are dying. 07:18.471 --> 07:20.606 align:left position:20%,start line:83% size:70% For children who have less than six months. 07:20.606 --> 07:23.810 align:left position:10%,start line:83% size:80% We work with UVA and their Palliative Care Program on this. 07:23.810 --> 07:26.546 align:left position:20%,start line:83% size:70% And it's a new program just starting up. 07:26.546 --> 07:29.015 align:left position:20%,start line:83% size:70% And so that's great for our community 07:29.015 --> 07:31.451 align:left position:20%,start line:83% size:70% that we can have that full continuum. 07:31.451 --> 07:35.855 align:left position:10%,start line:5% size:80% >>You also have a Grief and Loss program at the Center 07:35.855 --> 07:38.558 align:left position:20%,start line:5% size:70% for people dealing with grief and loss. 07:38.558 --> 07:40.860 align:left position:20%,start line:5% size:70% >>This is a very special place also 07:42.028 --> 07:45.832 align:left position:20%,start line:5% size:70% because there, whether you're on hospice or not 07:45.832 --> 07:48.367 align:left position:10%,start line:5% size:80% if you've had loss of any type, 07:48.367 --> 07:49.802 align:left position:10%,start line:89% size:80% you know we're there to support. 07:49.802 --> 07:52.038 align:left position:20%,start line:83% size:70% If you're a young man we have breakfast. 07:52.038 --> 07:54.040 align:left position:10%,start line:89% size:80% We have meetings for widows. 07:54.040 --> 07:56.142 align:left position:20%,start line:83% size:70% We have meetings for older ladies. 07:56.142 --> 07:59.178 align:left position:10%,start line:83% size:80% In fact we even started one if you've lost your pet. 07:59.178 --> 08:00.413 align:left position:40%,start line:89% size:50% >>Oh. 08:00.413 --> 08:01.347 align:left position:20%,start line:83% size:70% >>Yeah, so that center can really, 08:01.347 --> 08:02.582 align:left position:10%,start line:89% size:80% because you know there's so, 08:02.582 --> 08:03.816 align:left position:10%,start line:89% size:80% in fact there was a study 08:03.816 --> 08:05.785 align:left position:20%,start line:5% size:70% in the Journal of the American Medical 08:05.785 --> 08:10.056 align:left position:20%,start line:5% size:70% which found that if a patient came on Hospice 08:10.056 --> 08:13.192 align:left position:10%,start line:83% size:80% the chance of their spouse dying in the next year 08:13.192 --> 08:16.629 align:left position:20%,start line:83% size:70% was remarkedly reduced because of the care 08:16.629 --> 08:19.165 align:left position:10%,start line:89% size:80% before the death and after. 08:19.165 --> 08:20.900 align:left position:10%,start line:89% size:80% It makes a big difference. 08:20.900 --> 08:23.369 align:left position:20%,start line:83% size:70% >>I came to the university in 1963 08:23.369 --> 08:26.339 align:left position:10%,start line:83% size:80% and Werner was the architect and I was the librarian 08:26.339 --> 08:28.007 align:left position:20%,start line:89% size:70% and we both were Germans 08:28.007 --> 08:31.010 align:left position:20%,start line:83% size:70% and we both enjoyed our German culture 08:31.010 --> 08:36.015 align:left position:10%,start line:83% size:80% and had the experiences of World War II behind us 08:37.183 --> 08:40.253 align:left position:20%,start line:5% size:70% and loved music and art and traveling 08:40.253 --> 08:44.790 align:left position:10%,start line:5% size:80% and so we really were a pretty ideal couple I would say. 08:45.992 --> 08:49.996 align:left position:20%,start line:83% size:70% Werner got diagnosed with prostate cancer 08:49.996 --> 08:51.697 align:left position:20%,start line:89% size:70% in April of 2014. 08:54.233 --> 08:57.670 align:left position:10%,start line:83% size:80% And the wonderful things is that these hospice nurses 08:57.670 --> 09:01.173 align:left position:20%,start line:83% size:70% and the staff became so fond of Werner 09:01.173 --> 09:05.344 align:left position:20%,start line:83% size:70% and this give-and-take was extremely important 09:05.344 --> 09:10.349 align:left position:20%,start line:83% size:70% for his recovery and for basically making the end 09:12.084 --> 09:15.588 align:left position:20%,start line:83% size:70% of life phase easier for him and for me. 09:16.789 --> 09:19.458 align:left position:20%,start line:83% size:70% And I'm eternally grateful for that. 09:19.458 --> 09:24.130 align:left position:10%,start line:5% size:80% >>With Mr. Sensbach, I really got to know him as a person. 09:26.465 --> 09:29.101 align:left position:20%,start line:83% size:70% What he liked to do, what his interests were, 09:29.101 --> 09:31.237 align:left position:20%,start line:89% size:70% what his life was about. 09:31.237 --> 09:34.507 align:left position:20%,start line:83% size:70% Where he'd come from, his political beliefs, 09:34.507 --> 09:35.841 align:left position:20%,start line:89% size:70% his spiritual beliefs. 09:35.841 --> 09:38.744 align:left position:20%,start line:83% size:70% We really talked about so many things 09:38.744 --> 09:40.112 align:left position:10%,start line:89% size:80% in the course of my visits 09:41.514 --> 09:46.218 align:left position:20%,start line:83% size:70% that you make a personal connection with people. 09:47.620 --> 09:49.922 align:left position:20%,start line:89% size:70% You get really attached. 09:49.922 --> 09:52.124 align:left position:20%,start line:83% size:70% >>So we were seeing a patient who was 21 09:52.124 --> 09:53.459 align:left position:20%,start line:89% size:70% who had colon cancer. 09:54.527 --> 09:56.495 align:left position:10%,start line:89% size:80% And when I talked to the dad, 09:56.495 --> 09:58.965 align:left position:20%,start line:83% size:70% he was just weeping about this situation. 09:58.965 --> 10:00.967 align:left position:10%,start line:83% size:80% And he said to me, "Well there's one more thing Dr. Avery, 10:00.967 --> 10:03.836 align:left position:10%,start line:89% size:80% "my son won't talk to me." 10:03.836 --> 10:06.405 align:left position:10%,start line:5% size:80% Well I went in to see the patient, this young man 10:06.405 --> 10:09.442 align:left position:10%,start line:5% size:80% and his two brothers were in the room with him. 10:09.442 --> 10:11.811 align:left position:20%,start line:83% size:70% And I did my medical stuff, examined him, 10:11.811 --> 10:14.380 align:left position:20%,start line:83% size:70% and finally I said, "You know your dad says 10:14.380 --> 10:16.282 align:left position:10%,start line:89% size:80% "you're not talking to him." 10:16.282 --> 10:18.317 align:left position:10%,start line:83% size:80% And Terri, he looked me right in the eyes and he said, 10:18.317 --> 10:20.620 align:left position:20%,start line:89% size:70% "I hate that SOB." 10:21.988 --> 10:22.822 align:left position:40%,start line:89% size:50% >>Okay. 10:22.822 --> 10:24.056 align:left position:40%,start line:89% size:50% >>Ah! 10:24.056 --> 10:25.758 align:left position:20%,start line:83% size:70% He felt his dad had been abusive. 10:25.758 --> 10:28.027 align:left position:10%,start line:83% size:80% My staff wasn't convinced but the dad was sort 10:28.027 --> 10:31.297 align:left position:20%,start line:83% size:70% of a tough guy in charge, maybe fearful. 10:31.297 --> 10:33.165 align:left position:20%,start line:89% size:70% Clearly loved the son. 10:33.165 --> 10:35.301 align:left position:20%,start line:83% size:70% But who we worked on was the tough guy. 10:35.301 --> 10:38.104 align:left position:10%,start line:83% size:80% All of them, doctors, nurses, social workers, chaplains. 10:38.104 --> 10:40.139 align:left position:20%,start line:83% size:70% And there came a point when he came to his son 10:40.139 --> 10:43.376 align:left position:20%,start line:83% size:70% and said, "Son, please forgive me." 10:43.376 --> 10:46.612 align:left position:20%,start line:83% size:70% And the patient, the son ran across the room, 10:46.612 --> 10:49.982 align:left position:10%,start line:83% size:80% jumped on his dad's neck and said, "Dad, please forgive me." 10:51.384 --> 10:53.486 align:left position:10%,start line:89% size:80% That's what hospice is about. 10:53.486 --> 10:55.087 align:left position:10%,start line:89% size:80% >>Well, and you also, a lot 10:55.087 --> 10:56.722 align:left position:20%,start line:83% size:70% of people get involved with hospice. 10:56.722 --> 11:00.226 align:left position:10%,start line:83% size:80% You have, you have a 5K race where people get involved 11:00.226 --> 11:02.828 align:left position:20%,start line:83% size:70% and that's a big fundraiser for hospice. 11:02.828 --> 11:04.864 align:left position:10%,start line:89% size:80% You have a butterfly release. 11:04.864 --> 11:07.767 align:left position:10%,start line:83% size:80% And volunteers, you rely quite a bit on volunteers. 11:07.767 --> 11:10.436 align:left position:20%,start line:83% size:70% So, how do people get involved if they want 11:10.436 --> 11:12.772 align:left position:20%,start line:89% size:70% to be a part of hospice? 11:12.772 --> 11:15.508 align:left position:10%,start line:83% size:80% >>They just need to pick up the phone and call us. 11:15.508 --> 11:19.445 align:left position:20%,start line:5% size:70% We have a huge thriving volunteer department. 11:19.445 --> 11:20.746 align:left position:20%,start line:5% size:70% We love our volunteers 11:20.746 --> 11:23.315 align:left position:20%,start line:5% size:70% and we do depend on our volunteers quite a bit. 11:23.315 --> 11:26.686 align:left position:10%,start line:83% size:80% >>Yeah, almost 20 percent of our care is done by volunteers. 11:26.686 --> 11:28.621 align:left position:20%,start line:5% size:70% And our community has been so generous. 11:28.621 --> 11:30.523 align:left position:10%,start line:5% size:80% If you took away our volunteers 11:30.523 --> 11:32.625 align:left position:10%,start line:5% size:80% and you took away our donors, 11:32.625 --> 11:34.593 align:left position:10%,start line:89% size:80% we would like be gone in a year. 11:34.593 --> 11:35.428 align:left position:40%,start line:89% size:50% >>Yeah. 11:35.428 --> 11:36.929 align:left position:20%,start line:89% size:70% >>So we are, we totally, 11:36.929 --> 11:39.665 align:left position:10%,start line:83% size:80% our community has been so gracious and generous to us. 11:39.665 --> 11:44.303 align:left position:10%,start line:83% size:80% So I have to pinch myself every day and say this is amazing. 11:44.303 --> 11:45.705 align:left position:20%,start line:83% size:70% >>I think the most rewarding thing 11:45.705 --> 11:47.907 align:left position:20%,start line:5% size:70% is letting people know that they have 11:49.375 --> 11:51.777 align:left position:10%,start line:5% size:80% realized whatever dream they had for end of life. 11:51.777 --> 11:54.313 align:left position:20%,start line:83% size:70% That they wanted to have an art exhibit 11:54.313 --> 11:57.883 align:left position:10%,start line:83% size:80% or wanted to publish a book or finish a painting 11:57.883 --> 12:00.953 align:left position:20%,start line:83% size:70% or take a trip to the beach or Las Vegas 12:00.953 --> 12:03.322 align:left position:10%,start line:83% size:80% that those things are possible even with Hospice 12:03.322 --> 12:05.391 align:left position:20%,start line:89% size:70% and we make that happen. 12:05.391 --> 12:10.196 align:left position:10%,start line:5% size:80% >>Gilda Radner talked about delicious ambiguity. 12:10.196 --> 12:12.098 align:left position:10%,start line:89% size:80% That all poems don't rhyme, 12:12.098 --> 12:16.102 align:left position:10%,start line:83% size:80% all stories don't have a beginning, a middle and an end. 12:16.102 --> 12:18.537 align:left position:10%,start line:89% size:80% That having a terminal diagnosis 12:18.537 --> 12:21.040 align:left position:20%,start line:83% size:70% doesn't make your life any less meaningful 12:21.040 --> 12:24.210 align:left position:10%,start line:83% size:80% than it was the day before you got that diagnosis. 12:24.210 --> 12:26.779 align:left position:30%,start line:89% size:60% (upbeat music)