WEBVTT 00:00.900 --> 00:03.400 align:left position:10% line:5% size:80% (calm music) 00:13.133 --> 00:15.800 align:left position:10% line:5% size:80% - Heaven is all goodbyes, but I hope it's soft. 00:17.366 --> 00:20.066 align:left position:10% line:5% size:80% Softness of skin, softness of thought. 00:20.066 --> 00:22.533 align:left position:10% line:5% size:80% Call me soft and I'll send you a heart. 00:22.533 --> 00:25.300 align:left position:10% line:5% size:80% Won't do fisticuffs, just brisket cuts. 00:25.300 --> 00:28.500 align:left position:10% line:5% size:80% When people called me soft, I found I'd be ashamed. 00:28.500 --> 00:31.733 align:left position:10% line:5% size:80% Now I call myself soft, to rebuke that disdain. 00:31.733 --> 00:34.666 align:left position:10% line:5% size:80% Autistic, sensitive to everything. 00:34.666 --> 00:37.400 align:left position:10% line:5% size:80% Autistic, we don't speak the same. 00:37.400 --> 00:40.400 align:left position:10% line:5% size:80% Autistic, in every poem I sing. 00:40.400 --> 00:42.833 align:left position:10% line:5% size:80% Autistic, in every song I cry. 00:42.833 --> 00:46.233 align:left position:10% line:5% size:80% Using tears to wipe ink smudge from my pants cuffs. 00:46.233 --> 00:48.200 align:left position:10% line:5% size:80% Drowning in words, living for life. 00:48.200 --> 00:51.366 align:left position:10% line:5% size:80% Heard it once told that life is wasted on the living. 00:51.366 --> 00:53.800 align:left position:10% line:5% size:80% And death isn't something we should dwell on. 00:53.800 --> 00:55.200 align:left position:10% line:5% size:80% All I know for certain is 00:55.200 --> 00:58.400 align:left position:10% line:5% size:80% life exists on the fence between hope and hopelessness. 00:58.400 --> 01:00.966 align:left position:10% line:5% size:80% It's like a seesaw, being Autistic, 01:00.966 --> 01:03.933 align:left position:10% line:5% size:80% swinging from joy to a meltdown. 01:03.933 --> 01:07.600 align:left position:10% line:5% size:80% Sensory overwhelm, need something soft to calm me down. 01:07.600 --> 01:09.533 align:left position:10% line:5% size:80% The good Lord blessed me with soft skin. 01:09.533 --> 01:11.400 align:left position:10% line:5% size:80% So, I caress myself for comforting. 01:11.400 --> 01:14.733 align:left position:10% line:5% size:80% My masseuse, 20 years in the game, once said, 01:14.733 --> 01:16.233 align:left position:10% line:5% size:80% I had the softest skin. 01:16.233 --> 01:18.133 align:left position:10% line:5% size:80% The softest skin she'd ever felt. 01:18.133 --> 01:20.733 align:left position:10% line:5% size:80% Like velvet, like felt. 01:21.933 --> 01:23.400 align:left position:10% line:5% size:80% I took the compliment. 01:23.400 --> 01:26.566 align:left position:10% line:5% size:80% But deep down, I knew Autism was to thank. 01:26.566 --> 01:28.433 align:left position:10% line:5% size:80% Autism and Allah. 01:28.433 --> 01:31.900 align:left position:10% line:5% size:80% One of the primary features of EDS, Ehlers-Danlos Syndrome, 01:31.900 --> 01:33.400 align:left position:10% line:5% size:80% is velvet soft skin. 01:33.400 --> 01:36.633 align:left position:10% line:5% size:80% EDS is associated with ASD. 01:36.633 --> 01:40.033 align:left position:10% line:5% size:80% I hate how white people attach syndrome or disorder 01:40.033 --> 01:41.566 align:left position:10% line:5% size:80% to everything they don't understand, 01:41.566 --> 01:43.700 align:left position:10% line:5% size:80% and I hate how negative connotations 01:43.700 --> 01:45.700 align:left position:10% line:5% size:80% are attached to those attachments. 01:45.700 --> 01:48.566 align:left position:10% line:5% size:80% Which perhaps explains the negative connotations 01:48.566 --> 01:53.066 align:left position:10% line:5% size:80% I attach to my-same- self-said-Said-Saciid-name. 01:53.066 --> 01:55.266 align:left position:10% line:5% size:80% What's a shorter word for connotation? 01:55.266 --> 01:58.266 align:left position:10% line:5% size:80% How about, bro pass me the cream cheese and a light. 01:58.266 --> 02:00.400 align:left position:10% line:5% size:80% Pass me the hookah and a sprite. 02:00.400 --> 02:03.700 align:left position:10% line:5% size:80% Pass me fatty food and bring to stummy great delight. 02:03.700 --> 02:06.766 align:left position:10% line:5% size:80% Better yet, pass me a prescription for my ADHD. 02:06.766 --> 02:10.133 align:left position:10% line:5% size:80% So I don't have to self-medicate just to get through life. 02:10.133 --> 02:13.100 align:left position:10% line:5% size:80% And if you can spare it, pass me that peace of mind. 02:17.266 --> 02:20.600 align:left position:10% line:5% size:80% Right behind two lost lovers stuck between time. 02:20.600 --> 02:23.166 align:left position:10% line:5% size:80% And the metronome which hangs over us all. 02:23.166 --> 02:26.466 align:left position:10% line:5% size:80% Ticking, tocking, clicking, clocking. 02:26.466 --> 02:29.500 align:left position:10% line:5% size:80% Bombs over Baghdad, bombs over Baidabo. 02:29.500 --> 02:32.833 align:left position:10% line:5% size:80% Bombs over Kyiv, bombs over Kurdish Peshmerga. 02:32.833 --> 02:34.833 align:left position:10% line:5% size:80% Young (beep), ever a learner. 02:34.833 --> 02:36.300 align:left position:10% line:5% size:80% Never have I clutched a burner. 02:36.300 --> 02:38.766 align:left position:10% line:5% size:80% That's a lie, but I was born in the land 02:38.766 --> 02:40.800 align:left position:10% line:5% size:80% where AKs are cheaper than grains of sand. 02:40.800 --> 02:42.700 align:left position:10% line:5% size:80% And sand is all we understand. 02:42.700 --> 02:44.600 align:left position:10% line:5% size:80% The sun is all we have. 02:44.600 --> 02:47.466 align:left position:10% line:5% size:80% The Blackness of our skin, protecting us from it. 02:47.466 --> 02:50.166 align:left position:10% line:5% size:80% White people colonized Africa but 400 years 02:50.166 --> 02:52.500 align:left position:10% line:5% size:80% after the Dutch erected limp castles on our land, 02:52.500 --> 02:55.866 align:left position:10% line:5% size:80% their descendants' skin still peels off in the sun. 02:55.866 --> 02:57.966 align:left position:10% line:5% size:80% They can't even protect skin from sun, 02:57.966 --> 02:59.700 align:left position:10% line:5% size:80% yet we're the inferior ones? 03:01.533 --> 03:02.366 align:left position:10% line:5% size:80% Anyway. 03:03.266 --> 03:05.366 align:left position:10% line:5% size:80% None of that matters anyway. 03:05.366 --> 03:07.866 align:left position:10% line:5% size:80% I just pray I get to see heaven one day. 03:07.866 --> 03:10.400 align:left position:10% line:5% size:80% Wish heaven on earth for all my people. 03:10.400 --> 03:12.566 align:left position:10% line:5% size:80% Wish heaven was easier to get into. 03:12.566 --> 03:15.266 align:left position:10% line:5% size:80% But as the Prophet Peace Be Upon Him once said, 03:15.266 --> 03:17.166 align:left position:10% line:5% size:80% the road to heaven is paved with hardship, 03:17.166 --> 03:19.200 align:left position:10% line:5% size:80% the road to hell paved with ease. 03:19.200 --> 03:20.900 align:left position:10% line:5% size:80% So if this life is any testament, 03:20.900 --> 03:23.033 align:left position:10% line:5% size:80% heaven just may be in our future. 03:23.033 --> 03:24.000 align:left position:10% line:5% size:80% At least we hope. 03:25.066 --> 03:26.333 align:left position:10% line:5% size:80% And hope is all I have these days, 03:26.333 --> 03:29.433 align:left position:10% line:5% size:80% when nights turn to day, turn to nights again. 03:29.433 --> 03:32.533 align:left position:10% line:5% size:80% When the blood moon serenades my waking dreams. 03:32.533 --> 03:35.700 align:left position:10% line:5% size:80% When Larry Levis' ghost writes living poems in Fresno, 03:35.700 --> 03:37.733 align:left position:10% line:5% size:80% Modesto, San Diego. 03:37.733 --> 03:40.333 align:left position:10% line:5% size:80% Takes the form of dirt devils, sand tornados, 03:40.333 --> 03:42.500 align:left position:10% line:5% size:80% uses wind to carve poems about nothing 03:42.500 --> 03:44.700 align:left position:10% line:5% size:80% into still more nothing. 03:44.700 --> 03:47.366 align:left position:10% line:5% size:80% Migrant farmers step over stillborn poems 03:47.366 --> 03:49.666 align:left position:10% line:5% size:80% as they pluck fruit destined to be tossed 03:49.666 --> 03:51.200 align:left position:10% line:5% size:80% from suburban fridges. 03:51.200 --> 03:52.366 align:left position:10% line:5% size:80% I got cousins back home 03:52.366 --> 03:54.666 align:left position:10% line:5% size:80% who've never seen strawberries or fridges. 03:54.666 --> 03:56.200 align:left position:10% line:5% size:80% I don't know what that means, 03:56.200 --> 03:58.500 align:left position:10% line:5% size:80% but I should probably cherish something. 03:58.500 --> 04:00.366 align:left position:10% line:5% size:80% At least while I still can. 04:00.366 --> 04:02.400 align:left position:10% line:5% size:80% Lord knows they could be on their way. 04:02.400 --> 04:05.733 align:left position:10% line:5% size:80% Shoot, I think they knocking on my door right now. 04:05.733 --> 04:07.100 align:left position:10% line:5% size:80% No knock raid. 04:07.100 --> 04:08.833 align:left position:10% line:5% size:80% Ain't that how the last brother got tased? 04:08.833 --> 04:10.000 align:left position:10% line:5% size:80% I mean shot. 04:10.000 --> 04:13.466 align:left position:10% line:5% size:80% Shoot, I mistook their guns for tasers. 04:13.466 --> 04:14.666 align:left position:10% line:5% size:80% Ain't that what they said 04:14.666 --> 04:15.900 align:left position:10% line:5% size:80% about the brother they killed before him? 04:15.900 --> 04:19.266 align:left position:10% line:5% size:80% He was shot, a nine millimeter Glock taser? 04:19.266 --> 04:21.100 align:left position:10% line:5% size:80% This is Minnesota, bro. 04:21.100 --> 04:24.066 align:left position:10% line:5% size:80% All we export is frigid ice and police lies. 04:24.066 --> 04:25.233 align:left position:10% line:5% size:80% Murder too, tho. 04:25.233 --> 04:27.600 align:left position:10% line:5% size:80% We export a lot of murder here. 04:27.600 --> 04:31.833 align:left position:10% line:5% size:80% Shoot, am I next? 04:33.500 --> 04:35.766 align:left position:10% line:5% size:80% I wonder what lie they'll export about my murder, 04:35.766 --> 04:36.766 align:left position:10% line:5% size:80% about my death. 04:37.900 --> 04:39.666 align:left position:10% line:5% size:80% I pray I'm not next. 04:39.666 --> 04:42.600 align:left position:10% line:5% size:80% And every one of my brothers prays he's not next. 04:42.600 --> 04:45.433 align:left position:10% line:5% size:80% In a country that values our bodies only in death. 04:45.433 --> 04:48.766 align:left position:10% line:5% size:80% Where we know every traffic stop could be our death. 04:48.766 --> 04:50.766 align:left position:10% line:5% size:80% In the land of never quite making rent. 04:52.133 --> 04:54.766 align:left position:10% line:5% size:80% Hmm, this place is hell. 04:55.800 --> 04:57.500 align:left position:10% line:5% size:80% But is that such a bad thing? 04:58.766 --> 05:02.066 align:left position:10% line:5% size:80% Hell is hard and hardship leads to heaven. 05:02.066 --> 05:05.366 align:left position:10% line:5% size:80% And heaven is all we have to keep us going. 05:05.366 --> 05:08.500 align:left position:10% line:5% size:80% Heaven is all goodbyes, but I hope it's soft. 05:08.500 --> 05:10.566 align:left position:10% line:5% size:80% I hope heaven is softer than this life. 05:11.666 --> 05:13.700 align:left position:10% line:5% size:80% And I hope I see you on the other side. 05:13.700 --> 05:16.533 align:left position:10% line:5% size:80% (cheerful music) 05:24.700 --> 05:27.133 align:left position:10% line:5% size:80% - [Announcer] This program was produced in collaboration 05:27.133 --> 05:28.866 align:left position:10% line:5% size:80% with the Center for the Art of Medicine 05:28.866 --> 05:31.366 align:left position:10% line:5% size:80% at the University of Minnesota Medical School. 05:31.366 --> 05:34.700 align:left position:10% line:5% size:80% And funded by the Minnesota Arts and Cultural Heritage Fund 05:34.700 --> 05:36.533 align:left position:10% line:5% size:80% and the citizens of Minnesota. 05:37.466 --> 05:40.033 align:left position:10% line:5% size:80% (calm music)