1 00:00:00,900 --> 00:00:03,400 (calm music) 2 00:00:13,133 --> 00:00:15,800 - Heaven is all goodbyes, but I hope it's soft. 3 00:00:17,366 --> 00:00:20,066 Softness of skin, softness of thought. 4 00:00:20,066 --> 00:00:22,533 Call me soft and I'll send you a heart. 5 00:00:22,533 --> 00:00:25,300 Won't do fisticuffs, just brisket cuts. 6 00:00:25,300 --> 00:00:28,500 When people called me soft, I found I'd be ashamed. 7 00:00:28,500 --> 00:00:31,733 Now I call myself soft, to rebuke that disdain. 8 00:00:31,733 --> 00:00:34,666 Autistic, sensitive to everything. 9 00:00:34,666 --> 00:00:37,400 Autistic, we don't speak the same. 10 00:00:37,400 --> 00:00:40,400 Autistic, in every poem I sing. 11 00:00:40,400 --> 00:00:42,833 Autistic, in every song I cry. 12 00:00:42,833 --> 00:00:46,233 Using tears to wipe ink smudge from my pants cuffs. 13 00:00:46,233 --> 00:00:48,200 Drowning in words, living for life. 14 00:00:48,200 --> 00:00:51,366 Heard it once told that life is wasted on the living. 15 00:00:51,366 --> 00:00:53,800 And death isn't something we should dwell on. 16 00:00:53,800 --> 00:00:55,200 All I know for certain is 17 00:00:55,200 --> 00:00:58,400 life exists on the fence between hope and hopelessness. 18 00:00:58,400 --> 00:01:00,966 It's like a seesaw, being Autistic, 19 00:01:00,966 --> 00:01:03,933 swinging from joy to a meltdown. 20 00:01:03,933 --> 00:01:07,600 Sensory overwhelm, need something soft to calm me down. 21 00:01:07,600 --> 00:01:09,533 The good Lord blessed me with soft skin. 22 00:01:09,533 --> 00:01:11,400 So, I caress myself for comforting. 23 00:01:11,400 --> 00:01:14,733 My masseuse, 20 years in the game, once said, 24 00:01:14,733 --> 00:01:16,233 I had the softest skin. 25 00:01:16,233 --> 00:01:18,133 The softest skin she'd ever felt. 26 00:01:18,133 --> 00:01:20,733 Like velvet, like felt. 27 00:01:21,933 --> 00:01:23,400 I took the compliment. 28 00:01:23,400 --> 00:01:26,566 But deep down, I knew Autism was to thank. 29 00:01:26,566 --> 00:01:28,433 Autism and Allah. 30 00:01:28,433 --> 00:01:31,900 One of the primary features of EDS, Ehlers-Danlos Syndrome, 31 00:01:31,900 --> 00:01:33,400 is velvet soft skin. 32 00:01:33,400 --> 00:01:36,633 EDS is associated with ASD. 33 00:01:36,633 --> 00:01:40,033 I hate how white people attach syndrome or disorder 34 00:01:40,033 --> 00:01:41,566 to everything they don't understand, 35 00:01:41,566 --> 00:01:43,700 and I hate how negative connotations 36 00:01:43,700 --> 00:01:45,700 are attached to those attachments. 37 00:01:45,700 --> 00:01:48,566 Which perhaps explains the negative connotations 38 00:01:48,566 --> 00:01:53,066 I attach to my-same- self-said-Said-Saciid-name. 39 00:01:53,066 --> 00:01:55,266 What's a shorter word for connotation? 40 00:01:55,266 --> 00:01:58,266 How about, bro pass me the cream cheese and a light. 41 00:01:58,266 --> 00:02:00,400 Pass me the hookah and a sprite. 42 00:02:00,400 --> 00:02:03,700 Pass me fatty food and bring to stummy great delight. 43 00:02:03,700 --> 00:02:06,766 Better yet, pass me a prescription for my ADHD. 44 00:02:06,766 --> 00:02:10,133 So I don't have to self-medicate just to get through life. 45 00:02:10,133 --> 00:02:13,100 And if you can spare it, pass me that peace of mind. 46 00:02:17,266 --> 00:02:20,600 Right behind two lost lovers stuck between time. 47 00:02:20,600 --> 00:02:23,166 And the metronome which hangs over us all. 48 00:02:23,166 --> 00:02:26,466 Ticking, tocking, clicking, clocking. 49 00:02:26,466 --> 00:02:29,500 Bombs over Baghdad, bombs over Baidabo. 50 00:02:29,500 --> 00:02:32,833 Bombs over Kyiv, bombs over Kurdish Peshmerga. 51 00:02:32,833 --> 00:02:34,833 Young (beep), ever a learner. 52 00:02:34,833 --> 00:02:36,300 Never have I clutched a burner. 53 00:02:36,300 --> 00:02:38,766 That's a lie, but I was born in the land 54 00:02:38,766 --> 00:02:40,800 where AKs are cheaper than grains of sand. 55 00:02:40,800 --> 00:02:42,700 And sand is all we understand. 56 00:02:42,700 --> 00:02:44,600 The sun is all we have. 57 00:02:44,600 --> 00:02:47,466 The Blackness of our skin, protecting us from it. 58 00:02:47,466 --> 00:02:50,166 White people colonized Africa but 400 years 59 00:02:50,166 --> 00:02:52,500 after the Dutch erected limp castles on our land, 60 00:02:52,500 --> 00:02:55,866 their descendants' skin still peels off in the sun. 61 00:02:55,866 --> 00:02:57,966 They can't even protect skin from sun, 62 00:02:57,966 --> 00:02:59,700 yet we're the inferior ones? 63 00:03:01,533 --> 00:03:02,366 Anyway. 64 00:03:03,266 --> 00:03:05,366 None of that matters anyway. 65 00:03:05,366 --> 00:03:07,866 I just pray I get to see heaven one day. 66 00:03:07,866 --> 00:03:10,400 Wish heaven on earth for all my people. 67 00:03:10,400 --> 00:03:12,566 Wish heaven was easier to get into. 68 00:03:12,566 --> 00:03:15,266 But as the Prophet Peace Be Upon Him once said, 69 00:03:15,266 --> 00:03:17,166 the road to heaven is paved with hardship, 70 00:03:17,166 --> 00:03:19,200 the road to hell paved with ease. 71 00:03:19,200 --> 00:03:20,900 So if this life is any testament, 72 00:03:20,900 --> 00:03:23,033 heaven just may be in our future. 73 00:03:23,033 --> 00:03:24,000 At least we hope. 74 00:03:25,066 --> 00:03:26,333 And hope is all I have these days, 75 00:03:26,333 --> 00:03:29,433 when nights turn to day, turn to nights again. 76 00:03:29,433 --> 00:03:32,533 When the blood moon serenades my waking dreams. 77 00:03:32,533 --> 00:03:35,700 When Larry Levis' ghost writes living poems in Fresno, 78 00:03:35,700 --> 00:03:37,733 Modesto, San Diego. 79 00:03:37,733 --> 00:03:40,333 Takes the form of dirt devils, sand tornados, 80 00:03:40,333 --> 00:03:42,500 uses wind to carve poems about nothing 81 00:03:42,500 --> 00:03:44,700 into still more nothing. 82 00:03:44,700 --> 00:03:47,366 Migrant farmers step over stillborn poems 83 00:03:47,366 --> 00:03:49,666 as they pluck fruit destined to be tossed 84 00:03:49,666 --> 00:03:51,200 from suburban fridges. 85 00:03:51,200 --> 00:03:52,366 I got cousins back home 86 00:03:52,366 --> 00:03:54,666 who've never seen strawberries or fridges. 87 00:03:54,666 --> 00:03:56,200 I don't know what that means, 88 00:03:56,200 --> 00:03:58,500 but I should probably cherish something. 89 00:03:58,500 --> 00:04:00,366 At least while I still can. 90 00:04:00,366 --> 00:04:02,400 Lord knows they could be on their way. 91 00:04:02,400 --> 00:04:05,733 Shoot, I think they knocking on my door right now. 92 00:04:05,733 --> 00:04:07,100 No knock raid. 93 00:04:07,100 --> 00:04:08,833 Ain't that how the last brother got tased? 94 00:04:08,833 --> 00:04:10,000 I mean shot. 95 00:04:10,000 --> 00:04:13,466 Shoot, I mistook their guns for tasers. 96 00:04:13,466 --> 00:04:14,666 Ain't that what they said 97 00:04:14,666 --> 00:04:15,900 about the brother they killed before him? 98 00:04:15,900 --> 00:04:19,266 He was shot, a nine millimeter Glock taser? 99 00:04:19,266 --> 00:04:21,100 This is Minnesota, bro. 100 00:04:21,100 --> 00:04:24,066 All we export is frigid ice and police lies. 101 00:04:24,066 --> 00:04:25,233 Murder too, tho. 102 00:04:25,233 --> 00:04:27,600 We export a lot of murder here. 103 00:04:27,600 --> 00:04:31,833 Shoot, am I next? 104 00:04:33,500 --> 00:04:35,766 I wonder what lie they'll export about my murder, 105 00:04:35,766 --> 00:04:36,766 about my death. 106 00:04:37,900 --> 00:04:39,666 I pray I'm not next. 107 00:04:39,666 --> 00:04:42,600 And every one of my brothers prays he's not next. 108 00:04:42,600 --> 00:04:45,433 In a country that values our bodies only in death. 109 00:04:45,433 --> 00:04:48,766 Where we know every traffic stop could be our death. 110 00:04:48,766 --> 00:04:50,766 In the land of never quite making rent. 111 00:04:52,133 --> 00:04:54,766 Hmm, this place is hell. 112 00:04:55,800 --> 00:04:57,500 But is that such a bad thing? 113 00:04:58,766 --> 00:05:02,066 Hell is hard and hardship leads to heaven. 114 00:05:02,066 --> 00:05:05,366 And heaven is all we have to keep us going. 115 00:05:05,366 --> 00:05:08,500 Heaven is all goodbyes, but I hope it's soft. 116 00:05:08,500 --> 00:05:10,566 I hope heaven is softer than this life. 117 00:05:11,666 --> 00:05:13,700 And I hope I see you on the other side. 118 00:05:13,700 --> 00:05:16,533 (cheerful music) 119 00:05:24,700 --> 00:05:27,133 - [Announcer] This program was produced in collaboration 120 00:05:27,133 --> 00:05:28,866 with the Center for the Art of Medicine 121 00:05:28,866 --> 00:05:31,366 at the University of Minnesota Medical School. 122 00:05:31,366 --> 00:05:34,700 And funded by the Minnesota Arts and Cultural Heritage Fund 123 00:05:34,700 --> 00:05:36,533 and the citizens of Minnesota. 124 00:05:37,466 --> 00:05:40,033 (calm music)