WEBVTT 00:01.400 --> 00:02.800 align:left position:10% line:5% size:80% - [Speaker] Why is it important to talk about disability 00:02.800 --> 00:04.200 align:left position:10% line:5% size:80% and medicine? 00:04.200 --> 00:06.433 align:left position:10% line:5% size:80% - Medicine's a part of our everyday life 00:06.433 --> 00:09.966 align:left position:10% line:5% size:80% and disabilities are also a part of everyday life. 00:09.966 --> 00:13.266 align:left position:10% line:5% size:80% - Many of us are sick, ill, or disabled. 00:13.266 --> 00:15.233 align:left position:10% line:5% size:80% - I think there's some conflation 00:15.233 --> 00:17.533 align:left position:10% line:5% size:80% between disability and disease 00:17.533 --> 00:20.266 align:left position:10% line:5% size:80% that physicians are experts in disease 00:20.266 --> 00:22.366 align:left position:10% line:5% size:80% and so therefore they should be knowledgeable 00:22.366 --> 00:23.900 align:left position:10% line:5% size:80% about disabilities. 00:23.900 --> 00:26.833 align:left position:10% line:5% size:80% - It's important for these two groups to get together 00:26.833 --> 00:29.766 align:left position:10% line:5% size:80% so that they can bridge a connection. 00:29.766 --> 00:31.533 align:left position:10% line:5% size:80% - You know, I always say bring a mother to the table 00:31.533 --> 00:32.833 align:left position:10% line:5% size:80% and have these conversations. 00:32.833 --> 00:34.633 align:left position:10% line:5% size:80% Bring a child to the table, 00:34.633 --> 00:36.166 align:left position:10% line:5% size:80% you'll have these conversations. 00:36.166 --> 00:37.733 align:left position:10% line:5% size:80% - When it comes to disability, 00:37.733 --> 00:41.466 align:left position:10% line:5% size:80% I think there's many misconceptions. 00:41.466 --> 00:44.133 align:left position:10% line:5% size:80% - "Oh, you don't look like somebody who's Blind 00:44.133 --> 00:46.966 align:left position:10% line:5% size:80% or you don't look like somebody with disabilities." 00:46.966 --> 00:49.366 align:left position:10% line:5% size:80% And I was like, "What is that?" 00:49.366 --> 00:51.166 align:left position:10% line:5% size:80% - A lot of people have disabilities 00:51.166 --> 00:54.766 align:left position:10% line:5% size:80% and it's a good thing to talk about that and normalize it 00:54.766 --> 00:56.900 align:left position:10% line:5% size:80% because, you know, we're just like everybody else. 00:56.900 --> 00:59.300 align:left position:10% line:5% size:80% (calm music) 01:03.400 --> 01:04.866 align:left position:10% line:5% size:80% - [Announcer] This program 01:04.866 --> 01:07.366 align:left position:10% line:5% size:80% was funded by the Minnesota Arts and Cultural Heritage Fund 01:07.366 --> 01:09.266 align:left position:10% line:5% size:80% and the citizens of Minnesota. 01:11.033 --> 01:13.700 align:left position:10% line:5% size:80% (calm music) 01:13.700 --> 01:16.433 align:left position:10% line:5% size:80% - We often use art as a language 01:16.433 --> 01:18.933 align:left position:10% line:5% size:80% or a conduit to our deeper selves, 01:18.933 --> 01:21.633 align:left position:10% line:5% size:80% but art also provides a landscape 01:21.633 --> 01:24.233 align:left position:10% line:5% size:80% where we can investigate and challenge personal 01:24.233 --> 01:26.100 align:left position:10% line:5% size:80% and societal beliefs. 01:26.100 --> 01:28.166 align:left position:10% line:5% size:80% Hi, I'm Kevin Kling. 01:28.166 --> 01:31.066 align:left position:10% line:5% size:80% I'm a storyteller and an artist. 01:31.066 --> 01:32.433 align:left position:10% line:5% size:80% - I'm Jessica Horvath Williams 01:32.433 --> 01:34.033 align:left position:10% line:5% size:80% and I'm a disabled professor 01:34.033 --> 01:36.933 align:left position:10% line:5% size:80% in English and Disability Studies. 01:36.933 --> 01:38.400 align:left position:10% line:5% size:80% - My name is Tseganesh Selameab 01:38.400 --> 01:41.133 align:left position:10% line:5% size:80% and I'm an internal medicine doctor. 01:41.133 --> 01:42.433 align:left position:10% line:5% size:80% As medical providers, 01:42.433 --> 01:44.833 align:left position:10% line:5% size:80% we are trained to strive towards restoring 01:44.833 --> 01:48.633 align:left position:10% line:5% size:80% what we perceive as a normal body and mind. 01:48.633 --> 01:51.033 align:left position:10% line:5% size:80% In reality, every person's experience 01:51.033 --> 01:53.400 align:left position:10% line:5% size:80% of their body and mind is different 01:53.400 --> 01:56.133 align:left position:10% line:5% size:80% and that reality is ever changing. 01:56.133 --> 01:59.233 align:left position:10% line:5% size:80% - We know that in striving for normal, 01:59.233 --> 02:02.566 align:left position:10% line:5% size:80% we by default lead to differences in power, 02:02.566 --> 02:04.666 align:left position:10% line:5% size:80% inclusion and exclusion 02:04.666 --> 02:08.133 align:left position:10% line:5% size:80% because it is not just defining what is normal, 02:08.133 --> 02:10.200 align:left position:10% line:5% size:80% but who is normal. 02:11.066 --> 02:12.333 align:left position:10% line:5% size:80% - People with disabilities 02:12.333 --> 02:15.066 align:left position:10% line:5% size:80% may have challenges that change how they move 02:15.066 --> 02:17.233 align:left position:10% line:5% size:80% or interact with the world, 02:17.233 --> 02:20.466 align:left position:10% line:5% size:80% but that is no different than any other individual. 02:20.466 --> 02:24.400 align:left position:10% line:5% size:80% - Disabled people form the largest minority population 02:24.400 --> 02:25.966 align:left position:10% line:5% size:80% in the US. 02:25.966 --> 02:28.866 align:left position:10% line:5% size:80% While many people are born with disabilities, 02:28.866 --> 02:32.500 align:left position:10% line:5% size:80% anyone through disease, accident or injury 02:32.500 --> 02:35.033 align:left position:10% line:5% size:80% can become disabled at any time. 02:35.033 --> 02:38.166 align:left position:10% line:5% size:80% - And if we're fortunate to live long enough, 02:38.166 --> 02:41.866 align:left position:10% line:5% size:80% we will all have changes to our hearing, vision, 02:41.866 --> 02:46.933 align:left position:10% line:5% size:80% mobility or minds that can be understood as disabilities. 02:47.700 --> 02:49.200 align:left position:10% line:5% size:80% Yet as a society, 02:49.200 --> 02:52.566 align:left position:10% line:5% size:80% we persist in understanding disability as a problem 02:52.566 --> 02:56.266 align:left position:10% line:5% size:80% rather than as a typical part of the human experience. 02:56.266 --> 02:58.400 align:left position:10% line:5% size:80% - When we define a disability 02:58.400 --> 03:01.800 align:left position:10% line:5% size:80% as the problem located in the individual 03:01.800 --> 03:05.766 align:left position:10% line:5% size:80% that needs to be fixed by the individual and by medicine, 03:05.766 --> 03:10.100 align:left position:10% line:5% size:80% we fail to examine how the way we understand disability 03:10.100 --> 03:14.266 align:left position:10% line:5% size:80% is a social problem and how we have constructed a world 03:14.266 --> 03:16.766 align:left position:10% line:5% size:80% that uses differences in ability 03:16.766 --> 03:19.633 align:left position:10% line:5% size:80% to keep a whole community separate. 03:19.633 --> 03:22.500 align:left position:10% line:5% size:80% - So how do we address this chasm? 03:22.500 --> 03:25.000 align:left position:10% line:5% size:80% In this show, we'll explore how artists 03:25.000 --> 03:28.266 align:left position:10% line:5% size:80% help to create alternative perspectives on disability 03:28.266 --> 03:33.100 align:left position:10% line:5% size:80% through disability and redefine what we perceive as normal. 03:34.866 --> 03:37.800 align:left position:10% line:5% size:80% - The way I think that art can connect with communities 03:37.800 --> 03:39.500 align:left position:10% line:5% size:80% in particular medical communities 03:40.633 --> 03:44.766 align:left position:10% line:5% size:80% is to see our stories told by us in our way. 03:44.766 --> 03:49.633 align:left position:10% line:5% size:80% - Art connects communities through representation. 03:49.633 --> 03:51.166 align:left position:10% line:5% size:80% - Through communication. 03:51.166 --> 03:53.200 align:left position:10% line:5% size:80% - Art can help communicate with people 03:53.200 --> 03:56.933 align:left position:10% line:5% size:80% and also other communities to help people understand. 03:56.933 --> 04:00.166 align:left position:10% line:5% size:80% - It allows for the sharing of different cultures 04:00.166 --> 04:01.700 align:left position:10% line:5% size:80% and perspectives 04:01.700 --> 04:04.566 align:left position:10% line:5% size:80% and allows people to just kind of open up about their lives. 04:04.566 --> 04:07.266 align:left position:10% line:5% size:80% - You get glimpses to other people's humanity. 04:09.333 --> 04:11.533 align:left position:10% line:5% size:80% - Art exposes, 04:14.466 --> 04:18.266 align:left position:10% line:5% size:80% art reveals what's happening 04:19.200 --> 04:21.966 align:left position:10% line:5% size:80% behind the curtain. 04:21.966 --> 04:27.033 align:left position:10% line:5% size:80% ♪ There's a fire in the freezer ♪ 04:28.100 --> 04:32.466 align:left position:10% line:5% size:80% ♪ There's some blood in the rose ♪ 04:33.633 --> 04:38.700 align:left position:10% line:5% size:80% ♪ There's a broken puppet on the wall ♪ 04:39.533 --> 04:44.200 align:left position:10% line:5% size:80% ♪ I just saw it's eyes glow 04:45.300 --> 04:50.266 align:left position:10% line:5% size:80% ♪ I thought it was just a limp machine ♪ 04:50.266 --> 04:55.333 align:left position:10% line:5% size:80% ♪ That was damaged by the road 04:56.433 --> 05:01.200 align:left position:10% line:5% size:80% ♪ But he's awake now and I believe ♪ 05:01.900 --> 05:06.266 align:left position:10% line:5% size:80% ♪ He's a toy no more 05:18.233 --> 05:22.266 align:left position:10% line:5% size:80% ♪ Broken puppet with your strings that fall ♪ 05:22.266 --> 05:27.333 align:left position:10% line:5% size:80% ♪ Will you show me how you move on your own ♪ 05:28.300 --> 05:32.466 align:left position:10% line:5% size:80% ♪ Cut loose like a ladybug 05:32.466 --> 05:37.533 align:left position:10% line:5% size:80% ♪ That's climbing out of its rabbit hole ♪ 05:38.666 --> 05:42.666 align:left position:10% line:5% size:80% ♪ Free fallin' like a corporate rogue ♪ 05:42.666 --> 05:47.733 align:left position:10% line:5% size:80% ♪ Will you tell me how you bleed on your own ♪ 05:50.033 --> 05:54.066 align:left position:10% line:5% size:80% When I was about three years old. I started playing piano. 05:54.066 --> 05:56.566 align:left position:10% line:5% size:80% I actually recorded some music when I was 14 05:56.566 --> 05:59.466 align:left position:10% line:5% size:80% and I was selling it to raise money 05:59.466 --> 06:02.000 align:left position:10% line:5% size:80% for my trip to Costa Rica where I had my injury. 06:03.800 --> 06:05.400 align:left position:10% line:5% size:80% I have a C5 spinal cord injury, 06:05.400 --> 06:08.133 align:left position:10% line:5% size:80% so I don't have a lot of hand function. 06:08.133 --> 06:10.166 align:left position:10% line:5% size:80% Three years into my injury, 06:10.166 --> 06:12.366 align:left position:10% line:5% size:80% found out I could still make music. 06:12.366 --> 06:15.366 align:left position:10% line:5% size:80% Started a band called Treading North. 06:15.366 --> 06:18.900 align:left position:10% line:5% size:80% That band broke up and I started Freaque. 06:18.900 --> 06:23.566 align:left position:10% line:5% size:80% ♪ Pinocchio had it wrong 06:23.566 --> 06:28.633 align:left position:10% line:5% size:80% ♪ There's no such thing as real boys ♪ 06:30.000 --> 06:34.866 align:left position:10% line:5% size:80% ♪ Try and try and try again 06:34.866 --> 06:39.933 align:left position:10% line:5% size:80% ♪ But we'll never fit the mold 06:41.033 --> 06:45.766 align:left position:10% line:5% size:80% ♪ The illusion of our freedom rings ♪ 06:46.600 --> 06:50.866 align:left position:10% line:5% size:80% ♪ Over bodies that have coiled 06:52.033 --> 06:56.666 align:left position:10% line:5% size:80% ♪ They're drained of all their agency ♪ 06:57.500 --> 07:01.833 align:left position:10% line:5% size:80% ♪ And deflated leaking joy 07:07.400 --> 07:10.700 align:left position:10% line:5% size:80% I remember one night I was working on music on my computer, 07:10.700 --> 07:13.300 align:left position:10% line:5% size:80% which is usually the way I write, and I was like, 07:13.300 --> 07:15.833 align:left position:10% line:5% size:80% maybe I'll go downstairs and play the piano. 07:15.833 --> 07:18.966 align:left position:10% line:5% size:80% It was this sort of cathartic, 07:18.966 --> 07:22.966 align:left position:10% line:5% size:80% deep connection that I'd been missing for a long time 07:22.966 --> 07:24.466 align:left position:10% line:5% size:80% with the piano. 07:24.466 --> 07:26.666 align:left position:10% line:5% size:80% And so I was able to kind of reignite that relationship 07:26.666 --> 07:29.133 align:left position:10% line:5% size:80% through writing, you know, 07:29.133 --> 07:34.200 align:left position:10% line:5% size:80% one note at a time and it kind of gave me this new avenue, 07:34.866 --> 07:36.300 align:left position:10% line:5% size:80% this new path to create. 07:36.300 --> 07:41.133 align:left position:10% line:5% size:80% And I think since those songs are so sparse musically, 07:42.466 --> 07:44.600 align:left position:10% line:5% size:80% I was really able to start experimenting with more poetry 07:44.600 --> 07:46.366 align:left position:10% line:5% size:80% and more lyrics. 07:46.366 --> 07:50.466 align:left position:10% line:5% size:80% ♪ Broken puppet with your strings that fall ♪ 07:50.466 --> 07:55.533 align:left position:10% line:5% size:80% ♪ Will you show me how you move on your own ♪ 07:56.366 --> 08:00.433 align:left position:10% line:5% size:80% ♪ Cut loose like a ladybug 08:00.433 --> 08:05.533 align:left position:10% line:5% size:80% ♪ That's climbing out of its rabbit hole ♪ 08:06.666 --> 08:10.400 align:left position:10% line:5% size:80% ♪ Free fallin' like a corporate rogue ♪ 08:10.400 --> 08:15.466 align:left position:10% line:5% size:80% ♪ Will you tell me how you bleed on your own ♪ 08:19.366 --> 08:24.433 align:left position:10% line:5% size:80% ♪ Feel on your own 08:25.633 --> 08:28.933 align:left position:10% line:5% size:80% ♪ Be on your own 08:28.933 --> 08:32.766 align:left position:10% line:5% size:80% We took that idea of one note at a time to the extreme 08:32.766 --> 08:34.066 align:left position:10% line:5% size:80% and realizing like, well, 08:34.066 --> 08:36.166 align:left position:10% line:5% size:80% what if I do that with my old body? 08:36.166 --> 08:38.466 align:left position:10% line:5% size:80% (suspenseful music) 08:38.466 --> 08:40.433 align:left position:10% line:5% size:80% A Cripple's Dance is a live music, 08:40.433 --> 08:42.933 align:left position:10% line:5% size:80% live dance production performed and created 08:42.933 --> 08:45.133 align:left position:10% line:5% size:80% by people with spinal cord injuries. 08:45.133 --> 08:47.766 align:left position:10% line:5% size:80% I would literally get on the floor on a mat 08:47.766 --> 08:49.333 align:left position:10% line:5% size:80% and I would be moving down there 08:49.333 --> 08:53.033 align:left position:10% line:5% size:80% and I have no movement below my armpits, 08:53.033 --> 08:54.233 align:left position:10% line:5% size:80% so all I was doing 08:54.233 --> 08:57.600 align:left position:10% line:5% size:80% was sort of gestural movements on the ground. 09:00.500 --> 09:02.666 align:left position:10% line:5% size:80% And there's something really like 09:02.666 --> 09:04.800 align:left position:10% line:5% size:80% really empowering about that. 09:07.100 --> 09:11.200 align:left position:10% line:5% size:80% What they were gonna see was so deeply vulnerable. 09:11.200 --> 09:13.733 align:left position:10% line:5% size:80% I wanted to bring them into that 09:13.733 --> 09:16.933 align:left position:10% line:5% size:80% and invite them to be vulnerable themselves. 09:21.333 --> 09:25.033 align:left position:10% line:5% size:80% It's not about letting your limitation 09:26.233 --> 09:27.633 align:left position:10% line:5% size:80% limit you sort of, 09:27.633 --> 09:31.066 align:left position:10% line:5% size:80% it's more about using the limitation 09:31.066 --> 09:34.533 align:left position:10% line:5% size:80% to burst everything wide open 09:34.533 --> 09:38.400 align:left position:10% line:5% size:80% and make magic through your limitations. 09:38.400 --> 09:41.100 align:left position:10% line:5% size:80% All right, let's spread across the room 09:41.100 --> 09:45.166 align:left position:10% line:5% size:80% and we're gonna do some solo anchoring exploration. 09:45.166 --> 09:46.400 align:left position:10% line:5% size:80% - Cool. 09:46.400 --> 09:51.000 align:left position:10% line:5% size:80% - I started at Young Dance in fall of 2021. 09:51.000 --> 09:54.500 align:left position:10% line:5% size:80% As I started thinking about what we're doing in class 09:54.500 --> 09:57.900 align:left position:10% line:5% size:80% and sort of taking a little bit more of a creative role, 09:57.900 --> 10:02.966 align:left position:10% line:5% size:80% things have like really started to shift for me creatively. 10:04.033 --> 10:06.366 align:left position:10% line:5% size:80% I think it comes in line with my excitement 10:06.366 --> 10:09.866 align:left position:10% line:5% size:80% for more improv-based performance. 10:09.866 --> 10:11.333 align:left position:10% line:5% size:80% - That was awesome. 10:11.333 --> 10:12.833 align:left position:10% line:5% size:80% - That was awesome. 10:12.833 --> 10:15.333 align:left position:10% line:5% size:80% (calm music) 10:17.000 --> 10:20.233 align:left position:10% line:5% size:80% - A thing I'm starting to discover about dance 10:20.233 --> 10:22.100 align:left position:10% line:5% size:80% and I think it's been a process of discovery 10:22.100 --> 10:23.166 align:left position:10% line:5% size:80% over the last few years. 10:23.166 --> 10:24.700 align:left position:10% line:5% size:80% The way that I dance, 10:24.700 --> 10:27.233 align:left position:10% line:5% size:80% the way that I move doesn't need to look a certain way, 10:27.233 --> 10:30.366 align:left position:10% line:5% size:80% that's not just enough but exciting. 10:32.133 --> 10:35.800 align:left position:10% line:5% size:80% I think similarly that I can make music 10:35.800 --> 10:38.133 align:left position:10% line:5% size:80% that sounds good 10:38.133 --> 10:40.366 align:left position:10% line:5% size:80% or interesting to my own ears. 10:40.366 --> 10:44.500 align:left position:10% line:5% size:80% You know, my body is so different from the standard 10:44.500 --> 10:47.900 align:left position:10% line:5% size:80% and I wanna explore that and tell that story 10:47.900 --> 10:49.966 align:left position:10% line:5% size:80% because I think there are so many people out there 10:49.966 --> 10:52.600 align:left position:10% line:5% size:80% who are struggling with similar things 10:52.600 --> 10:55.966 align:left position:10% line:5% size:80% and it is this sort of like the floodgates 10:55.966 --> 10:58.900 align:left position:10% line:5% size:80% are bursting wide open kind of feeling. 10:58.900 --> 11:03.866 align:left position:10% line:5% size:80% And I have no idea what is coming next, 11:04.666 --> 11:05.700 align:left position:10% line:5% size:80% but I know something's coming. 11:05.700 --> 11:08.166 align:left position:10% line:5% size:80% (calm music) 11:10.633 --> 11:11.533 align:left position:10% line:5% size:80% - We 11:12.566 --> 11:13.466 align:left position:10% line:5% size:80% We 11:15.433 --> 11:16.433 align:left position:10% line:5% size:80% We over... 11:16.433 --> 11:17.633 align:left position:10% line:5% size:80% We are... We're... 11:17.633 --> 11:19.966 align:left position:10% line:5% size:80% We overcome... We are... 11:19.966 --> 11:22.266 align:left position:10% line:5% size:80% We are in whole wide, whole wide. 11:22.266 --> 11:25.133 align:left position:10% line:5% size:80% We are deep in... We are deep, overcome 11:25.133 --> 11:27.933 align:left position:10% line:5% size:80% There was all this debate about page versus stage 11:27.933 --> 11:33.000 align:left position:10% line:5% size:80% and I was always thinking to myself, well, why can't... 11:34.133 --> 11:35.366 align:left position:10% line:5% size:80% Why does it have to be one or the other? 11:35.366 --> 11:38.466 align:left position:10% line:5% size:80% What happens if we turn the page into a stage? 11:38.466 --> 11:42.166 align:left position:10% line:5% size:80% Someday, someday, some day... 11:42.166 --> 11:45.166 align:left position:10% line:5% size:80% We, we are over... We are, we are... 11:45.166 --> 11:47.566 align:left position:10% line:5% size:80% Is this what the wanted unwanted don't want. 11:47.566 --> 11:48.866 align:left position:10% line:5% size:80% We are over... Some day... 11:48.866 --> 11:50.800 align:left position:10% line:5% size:80% Oh, deep we are overcome... 11:50.800 --> 11:52.033 align:left position:10% line:5% size:80% I! we are over... 11:52.033 --> 11:54.000 align:left position:10% line:5% size:80% Someday, someday... 11:54.000 --> 11:56.466 align:left position:10% line:5% size:80% Ain't, what? Someday, ain't... 11:56.466 --> 12:00.033 align:left position:10% line:5% size:80% Any designed piece of text that you read, 12:00.033 --> 12:01.900 align:left position:10% line:5% size:80% whether it looks conventional or not, 12:01.900 --> 12:05.566 align:left position:10% line:5% size:80% is self-consciously sort of scoring something. 12:05.566 --> 12:06.933 align:left position:10% line:5% size:80% It's telling you how to read it. 12:06.933 --> 12:09.500 align:left position:10% line:5% size:80% All over... Someday, someday, someday... 12:09.500 --> 12:11.166 align:left position:10% line:5% size:80% Walloped up into dream upended 12:11.166 --> 12:13.433 align:left position:10% line:5% size:80% and marched into houndstooth of knit elbows 12:13.433 --> 12:15.666 align:left position:10% line:5% size:80% or garden of a million clenched buds, 12:15.666 --> 12:17.833 align:left position:10% line:5% size:80% the doubled vox redouble into synced redoubt 12:17.833 --> 12:20.666 align:left position:10% line:5% size:80% and sinks into that old silencing rite. 12:20.666 --> 12:22.100 align:left position:10% line:5% size:80% Shh, some... We are... 12:22.100 --> 12:24.233 align:left position:10% line:5% size:80% Shh, what? Shh. 12:24.233 --> 12:25.566 align:left position:10% line:5% size:80% I am, shh... (indistinct) 12:25.566 --> 12:27.300 align:left position:10% line:5% size:80% I wanted to have the same sort of effect 12:27.300 --> 12:29.400 align:left position:10% line:5% size:80% that I feel when I'm listening to a rap song 12:29.400 --> 12:31.933 align:left position:10% line:5% size:80% that samples a vocal line underneath the rap 12:31.933 --> 12:33.433 align:left position:10% line:5% size:80% that's being said, 12:33.433 --> 12:35.733 align:left position:10% line:5% size:80% or like people talking me over each other at a barbershop. 12:35.733 --> 12:38.333 align:left position:10% line:5% size:80% Black lives matter. 12:40.200 --> 12:42.433 align:left position:10% line:5% size:80% So I wanted simultaneity. 12:42.433 --> 12:44.733 align:left position:10% line:5% size:80% And so that led me to doing this work 12:44.733 --> 12:46.600 align:left position:10% line:5% size:80% that I've been calling performative typography. 12:46.600 --> 12:48.333 align:left position:10% line:5% size:80% Bow wow, shh, shh. 12:48.333 --> 12:50.966 align:left position:10% line:5% size:80% I can't. Shh, shh. 12:52.566 --> 12:56.333 align:left position:10% line:5% size:80% Hashtag Black Lives Stutter. Shh, shh, shh. 12:56.333 --> 12:58.700 align:left position:10% line:5% size:80% What we want is to not be your what's unwanted, 12:58.700 --> 13:00.566 align:left position:10% line:5% size:80% your whats or your un... 13:00.566 --> 13:02.900 align:left position:10% line:5% size:80% We want what's what to be unyours. 13:02.900 --> 13:07.100 align:left position:10% line:5% size:80% We want you to won't what your want to want. Shh, shh, shh. 13:07.100 --> 13:09.933 align:left position:10% line:5% size:80% I can't. Shh, shh. 13:09.933 --> 13:12.266 align:left position:10% line:5% size:80% Bow wow says the dog. Shh, shh. 13:12.266 --> 13:15.700 align:left position:10% line:5% size:80% Day and night policeman work. Shh, shh. 13:15.700 --> 13:18.500 align:left position:10% line:5% size:80% Fireman points the water. Shh, shh. 13:18.500 --> 13:20.233 align:left position:10% line:5% size:80% Bow wow, says the... Bow wow, says the... 13:20.233 --> 13:25.300 align:left position:10% line:5% size:80% Bow wow... Why won't you shh? 13:30.166 --> 13:32.666 align:left position:10% line:5% size:80% (calm music) 13:33.800 --> 13:37.000 align:left position:10% line:5% size:80% It was the summer of 2021, I think, 13:37.000 --> 13:40.433 align:left position:10% line:5% size:80% that I received my diagnosis, you know, 13:40.433 --> 13:43.266 align:left position:10% line:5% size:80% I got my papers for ADHD. 13:43.266 --> 13:46.066 align:left position:10% line:5% size:80% At that point, I began to think about 13:46.066 --> 13:48.233 align:left position:10% line:5% size:80% how so often in my work 13:48.233 --> 13:51.266 align:left position:10% line:5% size:80% I was trying to break a sort of linearity. 13:51.266 --> 13:54.766 align:left position:10% line:5% size:80% I was trying to work in a way that I would describe 13:54.766 --> 13:58.066 align:left position:10% line:5% size:80% as almost kind of fractal, where if you tell somebody, 13:58.066 --> 14:00.200 align:left position:10% line:5% size:80% you can read this poem any way you want to, 14:00.200 --> 14:02.000 align:left position:10% line:5% size:80% but you're still basically saying, 14:02.000 --> 14:03.733 align:left position:10% line:5% size:80% start at the left top corner 14:03.733 --> 14:05.633 align:left position:10% line:5% size:80% and end of the bottom right corner, 14:05.633 --> 14:10.133 align:left position:10% line:5% size:80% you're actually still having a normative reading, right? 14:10.133 --> 14:11.233 align:left position:10% line:5% size:80% You've just sort of jazzed it up. 14:11.233 --> 14:12.833 align:left position:10% line:5% size:80% And I wanted to create something 14:12.833 --> 14:16.200 align:left position:10% line:5% size:80% that felt really like what I was believing 14:16.200 --> 14:19.866 align:left position:10% line:5% size:80% and wanting readers to be able to experience in my work. 14:19.866 --> 14:24.066 align:left position:10% line:5% size:80% That the stuff on the page looked and sounded closer 14:24.066 --> 14:26.800 align:left position:10% line:5% size:80% to like how I think about it. 14:26.800 --> 14:29.800 align:left position:10% line:5% size:80% Like layers, there's just layers. 14:29.800 --> 14:34.866 align:left position:10% line:5% size:80% I mean, I was very interested in the way that text looks, 14:35.666 --> 14:37.400 align:left position:10% line:5% size:80% the different sort of artifacts, 14:37.400 --> 14:39.066 align:left position:10% line:5% size:80% different sort of rough edges there. 14:39.066 --> 14:42.000 align:left position:10% line:5% size:80% And that's when I began using collage techniques. 14:42.000 --> 14:43.766 align:left position:10% line:5% size:80% So writing these collage poems 14:43.766 --> 14:48.833 align:left position:10% line:5% size:80% that allowed me to just literally take pieces of text, 14:49.966 --> 14:51.166 align:left position:10% line:5% size:80% of images, things that I remembered, 14:51.166 --> 14:53.333 align:left position:10% line:5% size:80% things from comic books, movie posters, 14:53.333 --> 14:54.766 align:left position:10% line:5% size:80% and then overlap them 14:54.766 --> 14:58.166 align:left position:10% line:5% size:80% in a way that reminds me of like a bathroom wall 14:58.166 --> 15:00.466 align:left position:10% line:5% size:80% with graffiti on it, or a graffitied train 15:00.466 --> 15:03.466 align:left position:10% line:5% size:80% or dense advertising spaces. 15:03.466 --> 15:05.133 align:left position:10% line:5% size:80% That kind of simultaneity 15:06.366 --> 15:09.133 align:left position:10% line:5% size:80% also feels more like how I take in the world. 15:09.966 --> 15:11.833 align:left position:10% line:5% size:80% So making these poems this way 15:11.833 --> 15:16.400 align:left position:10% line:5% size:80% is a way of saying this is still a poem. 15:17.366 --> 15:19.266 align:left position:10% line:5% size:80% It doesn't and may not look like 15:19.266 --> 15:23.200 align:left position:10% line:5% size:80% or be structured like someone else's poem, 15:24.600 --> 15:29.433 align:left position:10% line:5% size:80% but if certain kinds of poems are reflecting a mind at work, 15:30.900 --> 15:35.966 align:left position:10% line:5% size:80% that's my mind at work, these poems are my mind at work. 15:36.500 --> 15:38.600 align:left position:10% line:5% size:80% (calm music) 15:47.466 --> 15:49.500 align:left position:10% line:5% size:80% - I'm looking out of the second floor window 15:49.500 --> 15:52.100 align:left position:10% line:5% size:80% of the Minneapolis Institute of Art 15:52.100 --> 15:56.233 align:left position:10% line:5% size:80% and I can see my childhood church across the park. 15:56.233 --> 15:57.733 align:left position:10% line:5% size:80% Over the years, 15:57.733 --> 16:01.366 align:left position:10% line:5% size:80% both of these buildings have been a place of salvation. 16:01.366 --> 16:04.533 align:left position:10% line:5% size:80% When I was a kid, the church provided solace, 16:04.533 --> 16:07.566 align:left position:10% line:5% size:80% a light to follow and other times 16:07.566 --> 16:09.666 align:left position:10% line:5% size:80% by placing me within the mystery. 16:12.900 --> 16:15.900 align:left position:10% line:5% size:80% And there are days now when work or life get to be too much 16:15.900 --> 16:18.433 align:left position:10% line:5% size:80% and that's when I go to the museum 16:18.433 --> 16:20.866 align:left position:10% line:5% size:80% and it gives me a new perspective. 16:20.866 --> 16:23.000 align:left position:10% line:5% size:80% There always seems to be a piece of art 16:23.000 --> 16:24.700 align:left position:10% line:5% size:80% waiting there to help. 16:25.800 --> 16:28.833 align:left position:10% line:5% size:80% Today it starts with a white marble sculpture, 16:28.833 --> 16:32.200 align:left position:10% line:5% size:80% Kiss of Victory by Sir Alfred Gilbert. 16:32.200 --> 16:35.566 align:left position:10% line:5% size:80% It's a life-sized warrior caught in the heat of battle 16:35.566 --> 16:39.500 align:left position:10% line:5% size:80% and behind him a winged angel at once pursuing 16:39.500 --> 16:44.566 align:left position:10% line:5% size:80% and urging him onward, the ethereal wings of victory. 16:45.666 --> 16:47.133 align:left position:10% line:5% size:80% So I take my first lap around the work. 16:47.133 --> 16:50.300 align:left position:10% line:5% size:80% Now my college professor, Paul Grandlin told me, 16:50.300 --> 16:54.833 align:left position:10% line:5% size:80% "A good sculpture is something you wanna walk around." 16:54.833 --> 16:57.966 align:left position:10% line:5% size:80% Every perspective brings a new story, 16:57.966 --> 16:59.866 align:left position:10% line:5% size:80% and it's remarkable 16:59.866 --> 17:01.566 align:left position:10% line:5% size:80% how the marble seems to transfer the look and feel of skin 17:01.566 --> 17:03.266 align:left position:10% line:5% size:80% the look and feel of skin 17:03.266 --> 17:05.200 align:left position:10% line:5% size:80% but not real skin. 17:05.200 --> 17:07.733 align:left position:10% line:5% size:80% It's beyond real, ideal real. 17:07.733 --> 17:11.433 align:left position:10% line:5% size:80% And the angel is how victory is supposed to feel. 17:11.433 --> 17:15.566 align:left position:10% line:5% size:80% Pure trajectory and momentum, no sense of loss yet. 17:15.566 --> 17:18.033 align:left position:10% line:5% size:80% (calm music) 17:19.433 --> 17:23.066 align:left position:10% line:5% size:80% The adjacent room features a Diane Arbus photograph 17:23.066 --> 17:25.966 align:left position:10% line:5% size:80% of two nudists relaxing at home. 17:25.966 --> 17:29.333 align:left position:10% line:5% size:80% The couple in the photograph stare directly at us 17:29.333 --> 17:32.166 align:left position:10% line:5% size:80% and have, well, very different b 17:32.166 --> 17:33.900 align:left position:10% line:5% size:80% than the ones in Winged Victory. 17:34.966 --> 17:38.600 align:left position:10% line:5% size:80% They aren't perfect, and oh and they're wearing shoes. 17:38.600 --> 17:41.666 align:left position:10% line:5% size:80% Now, since this is a photograph and two-dimensional, 17:41.666 --> 17:44.700 align:left position:10% line:5% size:80% Arbus has chosen our perspective for us. 17:44.700 --> 17:48.400 align:left position:10% line:5% size:80% The starkness heightened by the black and white print. 17:48.400 --> 17:51.666 align:left position:10% line:5% size:80% Her work tends to confront and challenge, 17:51.666 --> 17:55.600 align:left position:10% line:5% size:80% but these folks in the photo, they're at home, 17:55.600 --> 17:59.100 align:left position:10% line:5% size:80% they're in the world, they look content and unashamed. 17:59.100 --> 18:01.866 align:left position:10% line:5% size:80% Their front door is open, like, come on in. 18:01.866 --> 18:04.900 align:left position:10% line:5% size:80% With Arbus' work, if there is discomfort, 18:04.900 --> 18:07.366 align:left position:10% line:5% size:80% it seems to come not from the subjects 18:07.366 --> 18:10.300 align:left position:10% line:5% size:80% but from what we bring to the work. 18:10.300 --> 18:12.633 align:left position:10% line:5% size:80% Now as I look at the photograph, 18:12.633 --> 18:14.533 align:left position:10% line:5% size:80% somebody steps in front of me. 18:14.533 --> 18:17.733 align:left position:10% line:5% size:80% This is my favorite part of being in a museum, 18:17.733 --> 18:19.100 align:left position:10% line:5% size:80% other people. 18:19.100 --> 18:20.800 align:left position:10% line:5% size:80% I mean, real flesh and blood. 18:20.800 --> 18:23.800 align:left position:10% line:5% size:80% They unknowingly become exhibits 18:23.800 --> 18:26.733 align:left position:10% line:5% size:80% The woman stands between me and the photograph, 18:26.733 --> 18:30.033 align:left position:10% line:5% size:80% and although she's in more ways closer in appearance 18:30.033 --> 18:33.066 align:left position:10% line:5% size:80% to the Arbus than the Winged Victory, 18:33.066 --> 18:37.133 align:left position:10% line:5% size:80% I'm reminded of how beautiful humans actually are. 18:37.133 --> 18:41.466 align:left position:10% line:5% size:80% There's something that we really can't capture. 18:41.466 --> 18:44.600 align:left position:10% line:5% size:80% So behind me is the perfection of Winged Victory, 18:44.600 --> 18:47.566 align:left position:10% line:5% size:80% before me stands the woman, and beyond her, 18:47.566 --> 18:51.266 align:left position:10% line:5% size:80% the Arbus nudes stare out of their normal day at home. 18:51.266 --> 18:54.233 align:left position:10% line:5% size:80% Oh, and through the window across the street, 18:55.600 --> 18:56.800 align:left position:10% line:5% size:80% that's God's house. 18:56.800 --> 18:59.266 align:left position:10% line:5% size:80% (calm music) 19:04.800 --> 19:06.133 align:left position:10% line:5% size:80% - Changing perspectives 19:06.133 --> 19:09.300 align:left position:10% line:5% size:80% allows us to briefly inhabit new spaces. 19:09.300 --> 19:11.833 align:left position:10% line:5% size:80% - Changing perspectives is an invitation 19:11.833 --> 19:13.700 align:left position:10% line:5% size:80% to find our commonalities 19:13.700 --> 19:17.766 align:left position:10% line:5% size:80% and to shift some of the conscious and unconscious beliefs. 19:17.766 --> 19:21.066 align:left position:10% line:5% size:80% - In medical spaces, changing perspectives 19:21.066 --> 19:22.566 align:left position:10% line:5% size:80% has led to a movement 19:22.566 --> 19:26.266 align:left position:10% line:5% size:80% away from fixing the people we care for, and instead, 19:26.266 --> 19:29.800 align:left position:10% line:5% size:80% focusing on hearing what patients tell us they need. 19:29.800 --> 19:33.166 align:left position:10% line:5% size:80% By involving patients as co-experts in their care 19:33.166 --> 19:36.000 align:left position:10% line:5% size:80% and considering how we use our medical expertise 19:36.000 --> 19:39.500 align:left position:10% line:5% size:80% to aid them in achieving their desired goals. 19:39.500 --> 19:42.966 align:left position:10% line:5% size:80% This shift has also led to a closer examination 19:42.966 --> 19:45.466 align:left position:10% line:5% size:80% of how we view ourselves as a profession. 19:45.466 --> 19:47.966 align:left position:10% line:5% size:80% (calm music) 19:49.800 --> 19:53.566 align:left position:10% line:5% size:80% - I think there are a number of misconceptions in medicine 19:53.566 --> 19:55.233 align:left position:10% line:5% size:80% about people with disabilities. 19:55.233 --> 19:56.833 align:left position:10% line:5% size:80% One way we can combat that 19:56.833 --> 19:59.133 align:left position:10% line:5% size:80% is through increasing representation of disabled trainees. 19:59.133 --> 20:01.033 align:left position:10% line:5% size:80% of disabled trainees. 20:01.033 --> 20:03.166 align:left position:10% line:5% size:80% - I wish the medical community 20:03.166 --> 20:07.400 align:left position:10% line:5% size:80% understood that there's far more of their colleagues 20:07.400 --> 20:08.933 align:left position:10% line:5% size:80% that have disabilities. 20:08.933 --> 20:12.266 align:left position:10% line:5% size:80% - And also to compliment that with education 20:12.266 --> 20:15.466 align:left position:10% line:5% size:80% specifically about disability and disability culture 20:15.466 --> 20:17.100 align:left position:10% line:5% size:80% and disability identity. 20:17.100 --> 20:19.366 align:left position:10% line:5% size:80% - With my work as a pediatrician, having a disability, 20:19.366 --> 20:23.000 align:left position:10% line:5% size:80% it brings the perspective of understanding. 20:23.000 --> 20:27.300 align:left position:10% line:5% size:80% And working with children with disabilities like ADHD, 20:27.300 --> 20:30.300 align:left position:10% line:5% size:80% allowing those children to see their doctor, 20:30.300 --> 20:34.333 align:left position:10% line:5% size:80% who also has ADHD, is able to still become a doctor. 20:34.333 --> 20:37.933 align:left position:10% line:5% size:80% And to those parents to see with their own eyes 20:37.933 --> 20:39.233 align:left position:10% line:5% size:80% that, you know, my child 20:39.233 --> 20:41.266 align:left position:10% line:5% size:80% can still achieve all of their goals 20:41.266 --> 20:44.766 align:left position:10% line:5% size:80% and they're not limited by their disability. 20:44.766 --> 20:47.233 align:left position:10% line:5% size:80% (calm music) 20:49.833 --> 20:52.866 align:left position:10% line:5% size:80% - I had pretty much spent a lot of time studying 20:52.866 --> 20:55.766 align:left position:10% line:5% size:80% and hadn't really spent a lot of time 20:55.766 --> 20:59.266 align:left position:10% line:5% size:80% exploring other interests of mine. 20:59.266 --> 21:00.833 align:left position:10% line:5% size:80% Prior to starting med school, 21:00.833 --> 21:02.366 align:left position:10% line:5% size:80% one of my mentors told me 21:02.366 --> 21:04.733 align:left position:10% line:5% size:80% they thought I needed a different outlet 21:04.733 --> 21:06.233 align:left position:10% line:5% size:80% besides just medicine. 21:06.233 --> 21:09.800 align:left position:10% line:5% size:80% (upbeat electronic music) 21:13.133 --> 21:18.200 align:left position:10% line:5% size:80% My name's Carmen Aguirre. I go by VJ Neurite. 21:19.000 --> 21:21.066 align:left position:10% line:5% size:80% I'm creating a show file. 21:22.166 --> 21:24.133 align:left position:10% line:5% size:80% I'm going through a list of the songs 21:24.133 --> 21:25.366 align:left position:10% line:5% size:80% that are gonna be played 21:25.366 --> 21:27.433 align:left position:10% line:5% size:80% and coming up with what visual look 21:27.433 --> 21:29.400 align:left position:10% line:5% size:80% we're going to have on stage. 21:29.400 --> 21:32.200 align:left position:10% line:5% size:80% I got into doing visuals 21:32.200 --> 21:34.200 align:left position:10% line:5% size:80% the year before I started med school. 21:34.200 --> 21:37.833 align:left position:10% line:5% size:80% Found it really fun and started doing it as just a hobby, 21:37.833 --> 21:41.633 align:left position:10% line:5% size:80% slowly developed into something I kind of had not predicted. 21:41.633 --> 21:42.500 align:left position:10% line:5% size:80% - Let's go. 21:42.500 --> 21:44.966 align:left position:10% line:5% size:80% (upbeat music) 21:44.966 --> 21:47.866 align:left position:10% line:5% size:80% - The uniqueness of being a med student, 21:47.866 --> 21:51.466 align:left position:10% line:5% size:80% VJ has really taught me the importance 21:51.466 --> 21:53.900 align:left position:10% line:5% size:80% of having balance in life. 21:53.900 --> 21:56.966 align:left position:10% line:5% size:80% Understanding that balance is so important 21:56.966 --> 21:59.733 align:left position:10% line:5% size:80% for helping your patients find that balance. 21:59.733 --> 22:01.000 align:left position:10% line:5% size:80% (upbeat music) 22:01.000 --> 22:02.400 align:left position:10% line:5% size:80% When I first started med school, 22:02.400 --> 22:06.166 align:left position:10% line:5% size:80% was the first time I experienced a lot of anxiety 22:06.166 --> 22:07.333 align:left position:10% line:5% size:80% and things like that. 22:07.333 --> 22:09.366 align:left position:10% line:5% size:80% I had never really experienced that before, 22:09.366 --> 22:13.033 align:left position:10% line:5% size:80% like severe anxiety, and VJing gave me an outlet 22:13.033 --> 22:15.133 align:left position:10% line:5% size:80% to treat that anxiety. 22:15.133 --> 22:16.666 align:left position:10% line:5% size:80% And so I think 22:16.666 --> 22:18.800 align:left position:10% line:5% size:80% one does not exist without the other, for me. 22:21.500 --> 22:25.100 align:left position:10% line:5% size:80% This is a creative monster. This is a sleepy monster. 22:25.100 --> 22:29.066 align:left position:10% line:5% size:80% For me, I really define or think, in terms of disability, 22:29.066 --> 22:30.733 align:left position:10% line:5% size:80% I think a lot about mental health. 22:30.733 --> 22:33.633 align:left position:10% line:5% size:80% This is a happy monster. 22:33.633 --> 22:34.866 align:left position:10% line:5% size:80% (chuckles) 22:34.866 --> 22:37.600 align:left position:10% line:5% size:80% In COVID, I got into the NFT community 22:37.600 --> 22:40.866 align:left position:10% line:5% size:80% and was making digital art 22:40.866 --> 22:43.166 align:left position:10% line:5% size:80% and I came up with a concept 22:43.166 --> 22:48.233 align:left position:10% line:5% size:80% for really wanting to address mental health in children. 22:48.866 --> 22:50.333 align:left position:10% line:5% size:80% A sad monster. 22:50.333 --> 22:54.466 align:left position:10% line:5% size:80% When COVID hit, we saw a five times increase 22:54.466 --> 22:55.966 align:left position:10% line:5% size:80% in the amount of kids 22:55.966 --> 22:57.800 align:left position:10% line:5% size:80% that were coming into the emergency room 22:57.800 --> 23:00.000 align:left position:10% line:5% size:80% with mental health complaints. 23:00.000 --> 23:02.466 align:left position:10% line:5% size:80% Sometimes it's hard to communicate 23:02.466 --> 23:04.633 align:left position:10% line:5% size:80% the types of emotions you're having, 23:04.633 --> 23:07.866 align:left position:10% line:5% size:80% so my idea was coming up with these little monsters 23:07.866 --> 23:10.133 align:left position:10% line:5% size:80% that each represented a different emotion. 23:10.133 --> 23:11.233 align:left position:10% line:5% size:80% The goal around the project 23:11.233 --> 23:12.966 align:left position:10% line:5% size:80% was really to bring attention 23:12.966 --> 23:16.433 align:left position:10% line:5% size:80% to talking about emotions and feelings. 23:16.433 --> 23:19.633 align:left position:10% line:5% size:80% What I found was it was not just a valuable tool 23:19.633 --> 23:21.100 align:left position:10% line:5% size:80% with kids and mental health, 23:21.100 --> 23:25.133 align:left position:10% line:5% size:80% but also people that had difficulties communicating. 23:25.133 --> 23:28.133 align:left position:10% line:5% size:80% So this could be people with language barriers, 23:28.133 --> 23:32.866 align:left position:10% line:5% size:80% people with, who may be neurodiverse. 23:32.866 --> 23:35.200 align:left position:10% line:5% size:80% Confused monster, I like this one. 23:36.466 --> 23:39.400 align:left position:10% line:5% size:80% I did a rotation at a hospital, 23:39.400 --> 23:41.366 align:left position:10% line:5% size:80% and this is something I don't like to admit, 23:41.366 --> 23:42.966 align:left position:10% line:5% size:80% but like the staff was arguing 23:42.966 --> 23:44.766 align:left position:10% line:5% size:80% about who was going to have to take the patient 23:44.766 --> 23:46.433 align:left position:10% line:5% size:80% with a mental health disorder. 23:46.433 --> 23:49.833 align:left position:10% line:5% size:80% It didn't come from a place of hatred, 23:49.833 --> 23:53.100 align:left position:10% line:5% size:80% it just came from a place of not understanding. 23:53.100 --> 23:56.433 align:left position:10% line:5% size:80% I created a whole like emotional support pet, 23:56.433 --> 23:59.233 align:left position:10% line:5% size:80% so all of the monsters have pets. 23:59.233 --> 24:01.700 align:left position:10% line:5% size:80% My own experiences with mental health 24:01.700 --> 24:05.500 align:left position:10% line:5% size:80% as well as like my experiences in rotations, 24:05.500 --> 24:09.300 align:left position:10% line:5% size:80% really changed my course in what I wanted to study. 24:09.300 --> 24:12.733 align:left position:10% line:5% size:80% Because initially I was planning to do neurosurgery 24:12.733 --> 24:15.666 align:left position:10% line:5% size:80% and neurology, and it guided me 24:15.666 --> 24:19.000 align:left position:10% line:5% size:80% into wanting to do mental health and psychiatry. 24:20.366 --> 24:25.266 align:left position:10% line:5% size:80% Medicine, it's very set up to cater towards an average 24:26.466 --> 24:30.333 align:left position:10% line:5% size:80% rather than an individualized care plan. 24:30.333 --> 24:35.166 align:left position:10% line:5% size:80% I don't think it's always very successful as a result, 24:35.166 --> 24:39.500 align:left position:10% line:5% size:80% because we're all so unique and diverse. 24:39.500 --> 24:44.300 align:left position:10% line:5% size:80% And I think it also alienates the most diverse people 24:44.300 --> 24:47.200 align:left position:10% line:5% size:80% from getting the type of care that they need. 24:47.200 --> 24:49.733 align:left position:10% line:5% size:80% This is a shy monster. 24:49.733 --> 24:52.133 align:left position:10% line:5% size:80% If we can break down the barriers 24:52.133 --> 24:55.333 align:left position:10% line:5% size:80% of seeing things in a certain box, 24:55.333 --> 24:57.766 align:left position:10% line:5% size:80% then we can kind of progress 24:57.766 --> 25:00.733 align:left position:10% line:5% size:80% towards a better future in medicine. 25:00.733 --> 25:03.200 align:left position:10% line:5% size:80% (calm music) 25:11.966 --> 25:13.166 align:left position:10% line:5% size:80% - I'm Michael Kim. 25:13.166 --> 25:15.666 align:left position:10% line:5% size:80% I am the assistant dean for student affairs 25:15.666 --> 25:18.266 align:left position:10% line:5% size:80% at the medical school, and I'm a physician. 25:18.266 --> 25:20.800 align:left position:10% line:5% size:80% And I practice internal medicine, pediatrics. 25:22.700 --> 25:24.366 align:left position:10% line:5% size:80% So I have history of depression. 25:24.366 --> 25:26.233 align:left position:10% line:5% size:80% The demands of medical school 25:26.233 --> 25:29.100 align:left position:10% line:5% size:80% really made my depression flare up. 25:29.100 --> 25:30.366 align:left position:10% line:5% size:80% Happy to say 25:30.366 --> 25:32.400 align:left position:10% line:5% size:80% that I was able to go to the mental health clinic 25:32.400 --> 25:36.033 align:left position:10% line:5% size:80% here at the University of Minnesota and get counseling 25:36.033 --> 25:39.800 align:left position:10% line:5% size:80% and medical treatment, which really helped me be successful. 25:41.166 --> 25:44.033 align:left position:10% line:5% size:80% Having experienced challenges 25:44.033 --> 25:46.366 align:left position:10% line:5% size:80% with depression as a medical student 25:46.366 --> 25:48.900 align:left position:10% line:5% size:80% has really helped me provide a better support 25:48.900 --> 25:50.033 align:left position:10% line:5% size:80% for students here. 25:50.033 --> 25:51.733 align:left position:10% line:5% size:80% And so when I'm meeting with a student, 25:51.733 --> 25:53.466 align:left position:10% line:5% size:80% I can really show that empathy 25:53.466 --> 25:55.900 align:left position:10% line:5% size:80% of someone who's been through a similar course. 25:57.200 --> 25:59.433 align:left position:10% line:5% size:80% What's important to think about in disability 25:59.433 --> 26:01.766 align:left position:10% line:5% size:80% is that psychological disabilities, 26:01.766 --> 26:04.733 align:left position:10% line:5% size:80% like depression, anxiety, are really disabilities, 26:04.733 --> 26:07.666 align:left position:10% line:5% size:80% that they should be accommodated and considered 26:07.666 --> 26:10.133 align:left position:10% line:5% size:80% similarly to other disabilities. 26:10.133 --> 26:12.900 align:left position:10% line:5% size:80% Approximately 10% of our students 26:12.900 --> 26:15.466 align:left position:10% line:5% size:80% have accommodations during medical school. 26:15.466 --> 26:17.566 align:left position:10% line:5% size:80% That is the highest number of students 26:17.566 --> 26:21.033 align:left position:10% line:5% size:80% of any medical school in the country that I am aware of. 26:21.033 --> 26:25.566 align:left position:10% line:5% size:80% There are many reasons why we really want to encourage, 26:25.566 --> 26:27.166 align:left position:10% line:5% size:80% promote, support, 26:27.166 --> 26:31.100 align:left position:10% line:5% size:80% and get people with disabilities as physicians. 26:31.100 --> 26:34.266 align:left position:10% line:5% size:80% Primarily, because we know from studies 26:34.266 --> 26:36.100 align:left position:10% line:5% size:80% that physicians with disabilities 26:36.100 --> 26:38.866 align:left position:10% line:5% size:80% provide better care for patients with disabilities. 26:38.866 --> 26:42.066 align:left position:10% line:5% size:80% But not only that, there's evidence to suggest 26:42.066 --> 26:43.833 align:left position:10% line:5% size:80% that if you're a physician 26:43.833 --> 26:46.500 align:left position:10% line:5% size:80% and you have a colleague you work with who has a disability, 26:46.500 --> 26:49.566 align:left position:10% line:5% size:80% you also provide better care to patients with disability. 26:49.566 --> 26:51.633 align:left position:10% line:5% size:80% And then, finally, we learn so much more 26:51.633 --> 26:54.633 align:left position:10% line:5% size:80% when we have a diverse workforce. 26:54.633 --> 26:58.866 align:left position:10% line:5% size:80% I think about all the patients who come into a clinic 26:58.866 --> 27:01.600 align:left position:10% line:5% size:80% and potentially see a physician 27:01.600 --> 27:06.066 align:left position:10% line:5% size:80% who has a mobility disability or has a sensory disability. 27:06.066 --> 27:09.566 align:left position:10% line:5% size:80% These are amazing things for our patients to be able to see. 27:09.566 --> 27:12.200 align:left position:10% line:5% size:80% And to have that trust in our profession, 27:12.200 --> 27:15.566 align:left position:10% line:5% size:80% that is so important in providing the best possible care. 27:15.566 --> 27:18.033 align:left position:10% line:5% size:80% (calm music) 27:19.366 --> 27:22.366 align:left position:10% line:5% size:80% - Everyone's experiences in life are unique 27:22.366 --> 27:26.733 align:left position:10% line:5% size:80% and shaped by everything from race, gender, and citizenship 27:26.733 --> 27:29.466 align:left position:10% line:5% size:80% to family roles, religious beliefs, 27:29.466 --> 27:32.466 align:left position:10% line:5% size:80% and where in the nation or world you live. 27:32.466 --> 27:33.900 align:left position:10% line:5% size:80% - Even within our communities, 27:33.900 --> 27:36.566 align:left position:10% line:5% size:80% we may have experiences and knowledge 27:36.566 --> 27:38.100 align:left position:10% line:5% size:80% that differ from others. 27:38.100 --> 27:40.866 align:left position:10% line:5% size:80% This is also true of disabled people. 27:40.866 --> 27:42.633 align:left position:10% line:5% size:80% - The Americans with Disability Act 27:42.633 --> 27:44.300 align:left position:10% line:5% size:80% and the World Health Organization 27:44.300 --> 27:46.100 align:left position:10% line:5% size:80% acknowledges many, many 27:46.100 --> 27:48.333 align:left position:10% line:5% size:80% different disability experiences 27:48.333 --> 27:52.600 align:left position:10% line:5% size:80% mental, physical, emotional, congenital or acquired. 27:52.600 --> 27:55.966 align:left position:10% line:5% size:80% Disability as we know it is a mixture of these identities 27:55.966 --> 27:58.800 align:left position:10% line:5% size:80% and shape our daily lives in distinct ways. 27:58.800 --> 28:02.033 align:left position:10% line:5% size:80% (calm music) 28:02.033 --> 28:04.100 align:left position:10% line:5% size:80% - There's a spectrum of the many ways 28:04.100 --> 28:09.166 align:left position:10% line:5% size:80% in which us folks with disabilities are in this world, 28:09.966 --> 28:11.400 align:left position:10% line:5% size:80% in existence in this world. 28:11.400 --> 28:13.866 align:left position:10% line:5% size:80% - I'm at the age where I'm not really sure 28:13.866 --> 28:16.266 align:left position:10% line:5% size:80% what is the disability and what is aging. 28:16.266 --> 28:18.066 align:left position:10% line:5% size:80% You wear stuff out. 28:18.066 --> 28:20.466 align:left position:10% line:5% size:80% Try to wear a pair of shoes for 72 years. 28:20.466 --> 28:22.600 align:left position:10% line:5% size:80% - The disability is complicated. 28:22.600 --> 28:26.466 align:left position:10% line:5% size:80% The experience of a person with one disability 28:26.466 --> 28:29.466 align:left position:10% line:5% size:80% is gonna be quite different from a different person 28:29.466 --> 28:30.900 align:left position:10% line:5% size:80% with the same disability. 28:30.900 --> 28:34.600 align:left position:10% line:5% size:80% - My autism, my ADHD, my OCD 28:34.600 --> 28:36.533 align:left position:10% line:5% size:80% helps me collaborate ideas 28:36.533 --> 28:38.866 align:left position:10% line:5% size:80% about vast numbers of the cosmos, 28:38.866 --> 28:41.366 align:left position:10% line:5% size:80% the neurotypical people just don't understand. 28:41.366 --> 28:42.966 align:left position:10% line:5% size:80% - These are labels and stuff, 28:42.966 --> 28:47.766 align:left position:10% line:5% size:80% but ultimately it's part of who I am. 28:47.766 --> 28:50.000 align:left position:10% line:5% size:80% It's written in the stars for me to be who I am. 28:50.000 --> 28:53.166 align:left position:10% line:5% size:80% - It's a component of me. It's not all of me. 28:54.700 --> 28:57.200 align:left position:10% line:5% size:80% (calm music) 29:06.966 --> 29:09.633 align:left position:10% line:5% size:80% - Heaven is all goodbyes, but I hope it's soft. 29:11.233 --> 29:13.933 align:left position:10% line:5% size:80% Softness of skin, softness of thought. 29:13.933 --> 29:16.400 align:left position:10% line:5% size:80% Call me soft and I'll send you a heart. 29:16.400 --> 29:19.133 align:left position:10% line:5% size:80% Won't do fisticuffs, just brisket cuts. 29:19.133 --> 29:22.333 align:left position:10% line:5% size:80% When people called me soft, I found I'd be ashamed. 29:22.333 --> 29:25.600 align:left position:10% line:5% size:80% Now I call myself soft, to rebuke that disdain. 29:25.600 --> 29:28.533 align:left position:10% line:5% size:80% Autistic, sensitive to everything. 29:28.533 --> 29:31.266 align:left position:10% line:5% size:80% Autistic, we don't speak the same. 29:31.266 --> 29:34.266 align:left position:10% line:5% size:80% Autistic, in every poem I sing. 29:34.266 --> 29:36.666 align:left position:10% line:5% size:80% Autistic, in every song I cry. 29:36.666 --> 29:40.100 align:left position:10% line:5% size:80% Using tears to wipe ink smudge from my pants cuffs. 29:40.100 --> 29:42.066 align:left position:10% line:5% size:80% Drowning in words, living for life. 29:42.066 --> 29:45.233 align:left position:10% line:5% size:80% Heard it once told that life is wasted on the living. 29:45.233 --> 29:47.633 align:left position:10% line:5% size:80% And death isn't something we should dwell on. 29:47.633 --> 29:49.066 align:left position:10% line:5% size:80% All I know for certain is 29:49.066 --> 29:52.266 align:left position:10% line:5% size:80% life exists on the fence between hope and hopelessness. 29:52.266 --> 29:54.766 align:left position:10% line:5% size:80% It's like a seesaw, being Autistic, 29:54.766 --> 29:57.733 align:left position:10% line:5% size:80% swinging from joy to a meltdown. 29:57.733 --> 30:01.400 align:left position:10% line:5% size:80% Sensory overwhelm, need something soft to calm me down. 30:01.400 --> 30:03.300 align:left position:10% line:5% size:80% The good Lord blessed me with soft skin. 30:03.300 --> 30:05.200 align:left position:10% line:5% size:80% So, I caress myself for comforting. 30:05.200 --> 30:08.533 align:left position:10% line:5% size:80% My masseuse, 20 years in the game, once said, 30:08.533 --> 30:10.033 align:left position:10% line:5% size:80% I had the softest skin. 30:10.033 --> 30:11.933 align:left position:10% line:5% size:80% The softest skin she'd ever felt. 30:11.933 --> 30:14.533 align:left position:10% line:5% size:80% Like velvet, like felt. 30:15.733 --> 30:17.166 align:left position:10% line:5% size:80% I took the compliment. 30:17.166 --> 30:20.333 align:left position:10% line:5% size:80% But deep down, I knew Autism was to thank. 30:20.333 --> 30:22.233 align:left position:10% line:5% size:80% Autism and Allah. 30:22.233 --> 30:25.700 align:left position:10% line:5% size:80% One of the primary features of EDS, Ehlers-Danlos Syndrome, 30:25.700 --> 30:27.166 align:left position:10% line:5% size:80% is velvet soft skin. 30:27.166 --> 30:30.433 align:left position:10% line:5% size:80% EDS is associated with ASD. 30:30.433 --> 30:33.800 align:left position:10% line:5% size:80% I hate how white people attach syndrome or disorder 30:33.800 --> 30:35.333 align:left position:10% line:5% size:80% to everything they don't understand, 30:35.333 --> 30:37.466 align:left position:10% line:5% size:80% and I hate how negative connotations 30:37.466 --> 30:39.466 align:left position:10% line:5% size:80% are attached to those attachments. 30:39.466 --> 30:42.366 align:left position:10% line:5% size:80% Which perhaps explains the negative connotations 30:42.366 --> 30:46.866 align:left position:10% line:5% size:80% I attach to my-same- self-said-Said-Saciid-name. 30:46.866 --> 30:49.066 align:left position:10% line:5% size:80% What's a shorter word for connotation? 30:49.066 --> 30:52.066 align:left position:10% line:5% size:80% How about, bro pass me the cream cheese and a light. 30:52.066 --> 30:54.200 align:left position:10% line:5% size:80% Pass me the hookah and a sprite. 30:54.200 --> 30:57.433 align:left position:10% line:5% size:80% Pass me fatty food and bring to stummy great delight. 30:57.433 --> 31:00.466 align:left position:10% line:5% size:80% Better yet, pass me a prescription for my ADHD. 31:00.466 --> 31:02.000 align:left position:10% line:5% size:80% So I don't have to self-medicate just to get through life. 31:02.000 --> 31:03.933 align:left position:10% line:5% size:80% just to get through life. 31:03.933 --> 31:06.866 align:left position:10% line:5% size:80% And if you can spare it, pass me that peace of mind. 31:11.033 --> 31:14.366 align:left position:10% line:5% size:80% Right behind two lost lovers stuck between time. 31:14.366 --> 31:16.966 align:left position:10% line:5% size:80% And the metronome which hangs over us all. 31:16.966 --> 31:20.266 align:left position:10% line:5% size:80% Ticking, tocking, clicking, clocking. 31:20.266 --> 31:23.300 align:left position:10% line:5% size:80% Bombs over Baghdad, bombs over Baidabo. 31:23.300 --> 31:26.633 align:left position:10% line:5% size:80% Bombs over Kyiv, bombs over Kurdish Peshmerga. 31:26.633 --> 31:28.633 align:left position:10% line:5% size:80% Young (beep), ever a learner. 31:28.633 --> 31:30.066 align:left position:10% line:5% size:80% Never have I clutched a burner. 31:30.066 --> 31:32.533 align:left position:10% line:5% size:80% That's a lie, but I was born in the land 31:32.533 --> 31:34.566 align:left position:10% line:5% size:80% where AKs are cheaper than grains of sand. 31:34.566 --> 31:36.500 align:left position:10% line:5% size:80% And sand is all we understand. 31:36.500 --> 31:38.366 align:left position:10% line:5% size:80% The sun is all we have. 31:38.366 --> 31:41.233 align:left position:10% line:5% size:80% The Blackness of our skin, protecting us from it. 31:41.233 --> 31:43.966 align:left position:10% line:5% size:80% White people colonized Africa but 400 years 31:43.966 --> 31:46.300 align:left position:10% line:5% size:80% after the Dutch erected limp castles on our land, 31:46.300 --> 31:49.666 align:left position:10% line:5% size:80% their descendants' skin still peels off in the sun. 31:49.666 --> 31:51.733 align:left position:10% line:5% size:80% They can't even protect skin from sun, 31:51.733 --> 31:53.500 align:left position:10% line:5% size:80% yet we're the inferior ones? 31:55.266 --> 31:56.066 align:left position:10% line:5% size:80% Anyway. 31:57.000 --> 31:59.100 align:left position:10% line:5% size:80% None of that matters anyway. 31:59.100 --> 32:01.666 align:left position:10% line:5% size:80% I just pray I get to see heaven one day. 32:01.666 --> 32:04.200 align:left position:10% line:5% size:80% Wish heaven on earth for all my people. 32:04.200 --> 32:06.366 align:left position:10% line:5% size:80% Wish heaven was easier to get into. 32:06.366 --> 32:09.066 align:left position:10% line:5% size:80% But as the prophet PBUH be up on him once said, 32:09.066 --> 32:10.933 align:left position:10% line:5% size:80% the road to heaven is paved with hardship, 32:10.933 --> 32:12.966 align:left position:10% line:5% size:80% the road to hell paved with ease. 32:12.966 --> 32:14.700 align:left position:10% line:5% size:80% So if this life is any testament, 32:14.700 --> 32:16.800 align:left position:10% line:5% size:80% heaven just may be in our future. 32:16.800 --> 32:17.766 align:left position:10% line:5% size:80% At least we hope. 32:18.866 --> 32:20.100 align:left position:10% line:5% size:80% And hope is all I have these days, 32:20.100 --> 32:23.233 align:left position:10% line:5% size:80% when nights turn to day, turn to nights again. 32:23.233 --> 32:26.333 align:left position:10% line:5% size:80% When the blood moon serenades my waking dreams. 32:26.333 --> 32:29.500 align:left position:10% line:5% size:80% When Larry Levis' ghost writes living poems in Fresno, 32:29.500 --> 32:31.533 align:left position:10% line:5% size:80% Modesto, San Diego. 32:31.533 --> 32:34.100 align:left position:10% line:5% size:80% Takes the form of dirt devils, sand tornados, 32:34.100 --> 32:36.266 align:left position:10% line:5% size:80% uses wind to carve poems about nothing 32:36.266 --> 32:38.466 align:left position:10% line:5% size:80% into still more nothing. 32:38.466 --> 32:41.166 align:left position:10% line:5% size:80% Migrant farmers step over stillborn poems 32:41.166 --> 32:43.433 align:left position:10% line:5% size:80% as they pluck fruit destined to be tossed 32:43.433 --> 32:45.000 align:left position:10% line:5% size:80% from suburban fridges. 32:45.000 --> 32:46.166 align:left position:10% line:5% size:80% I got cousins back home 32:46.166 --> 32:48.433 align:left position:10% line:5% size:80% who've never seen strawberries or fridges. 32:48.433 --> 32:49.966 align:left position:10% line:5% size:80% I don't know what that means, 32:49.966 --> 32:52.266 align:left position:10% line:5% size:80% but I should probably cherish something. 32:52.266 --> 32:54.166 align:left position:10% line:5% size:80% At least while I still can. 32:54.166 --> 32:56.100 align:left position:10% line:5% size:80% Lord knows they could be on their way. 32:56.100 --> 32:59.433 align:left position:10% line:5% size:80% Shoot, I think they knocking on my door right now. 32:59.433 --> 33:00.900 align:left position:10% line:5% size:80% No knock raid. 33:00.900 --> 33:02.633 align:left position:10% line:5% size:80% Ain't that how the last brother got tased? 33:02.633 --> 33:03.800 align:left position:10% line:5% size:80% I mean shot. 33:03.800 --> 33:07.266 align:left position:10% line:5% size:80% Shoot, I mistook their guns for tasers. 33:07.266 --> 33:08.466 align:left position:10% line:5% size:80% Ain't that what they said 33:08.466 --> 33:09.666 align:left position:10% line:5% size:80% about the brother they killed before him? 33:09.666 --> 33:13.066 align:left position:10% line:5% size:80% He was shot, a nine millimeter Glock taser? 33:13.066 --> 33:14.900 align:left position:10% line:5% size:80% This is Minnesota, bro. 33:14.900 --> 33:17.833 align:left position:10% line:5% size:80% All we export is frigid ice and police lies. 33:17.833 --> 33:19.000 align:left position:10% line:5% size:80% Murder too, tho. 33:19.000 --> 33:21.400 align:left position:10% line:5% size:80% We export a lot of murder here. 33:21.400 --> 33:25.633 align:left position:10% line:5% size:80% Shoot, am I next? 33:27.300 --> 33:29.566 align:left position:10% line:5% size:80% I wonder what lie they'll export about my murder, 33:29.566 --> 33:30.533 align:left position:10% line:5% size:80% about my death. 33:31.666 --> 33:33.466 align:left position:10% line:5% size:80% I pray I'm not next. 33:33.466 --> 33:36.366 align:left position:10% line:5% size:80% And every one of my brothers prays he's not next. 33:36.366 --> 33:39.233 align:left position:10% line:5% size:80% In a country that values our bodies only in death. 33:39.233 --> 33:42.533 align:left position:10% line:5% size:80% Where we know every traffic stop could be our death. 33:42.533 --> 33:44.533 align:left position:10% line:5% size:80% In the land of never quite making rent. 33:45.933 --> 33:48.533 align:left position:10% line:5% size:80% Hmm, this place is hell. 33:49.600 --> 33:51.300 align:left position:10% line:5% size:80% But is that such a bad thing? 33:52.533 --> 33:55.800 align:left position:10% line:5% size:80% Hell is hard and hardship leads to heaven. 33:55.800 --> 33:59.100 align:left position:10% line:5% size:80% And heaven is all we have to keep us going. 33:59.100 --> 34:02.266 align:left position:10% line:5% size:80% Heaven is all goodbyes, but I hope it's soft. 34:02.266 --> 34:04.366 align:left position:10% line:5% size:80% I hope heaven is softer than this life. 34:05.466 --> 34:07.500 align:left position:10% line:5% size:80% And I hope I see you on the other side. 34:07.500 --> 34:10.333 align:left position:10% line:5% size:80% (cheerful music) 34:14.000 --> 34:16.466 align:left position:10% line:5% size:80% (calm music) 34:35.900 --> 34:37.233 align:left position:10% line:5% size:80% - [Interpreter] I remember when I was little 34:37.233 --> 34:39.800 align:left position:10% line:5% size:80% and the Sunday newspaper had that comics insert 34:39.800 --> 34:41.766 align:left position:10% line:5% size:80% and they were called the funnies back then. 34:41.766 --> 34:44.500 align:left position:10% line:5% size:80% I always looked forward to the newspaper arriving on Sunday. 34:44.500 --> 34:46.000 align:left position:10% line:5% size:80% And when it would come 34:46.000 --> 34:48.300 align:left position:10% line:5% size:80% I would open up that big section of the newspaper. 34:48.300 --> 34:49.933 align:left position:10% line:5% size:80% And even as a small child, 34:49.933 --> 34:52.266 align:left position:10% line:5% size:80% I would lay on the floor and take it all in 34:52.266 --> 34:54.666 align:left position:10% line:5% size:80% fascinated with the colors and the storylines 34:54.666 --> 34:55.866 align:left position:10% line:5% size:80% that the strips showed. 34:58.266 --> 35:02.233 align:left position:10% line:5% size:80% Growing up I would observe how people interacted around me. 35:02.233 --> 35:03.600 align:left position:10% line:5% size:80% After becoming a parent, 35:03.600 --> 35:06.800 align:left position:10% line:5% size:80% I saw those interactions play out in my own life 35:06.800 --> 35:09.100 align:left position:10% line:5% size:80% and some funny situations would occur. 35:10.433 --> 35:12.766 align:left position:10% line:5% size:80% I wanted to take that humor and put it on paper 35:12.766 --> 35:15.066 align:left position:10% line:5% size:80% as part of showing what my life is like 35:15.066 --> 35:16.466 align:left position:10% line:5% size:80% as a Deaf individual. 35:18.033 --> 35:20.266 align:left position:10% line:5% size:80% When I think of art and how I use art, 35:20.266 --> 35:22.433 align:left position:10% line:5% size:80% it's powerful and visual. 35:23.533 --> 35:26.466 align:left position:10% line:5% size:80% The stimuli comes in and we experience it. 35:26.466 --> 35:29.666 align:left position:10% line:5% size:80% Of all the information we get through our eyes visually 35:29.666 --> 35:32.233 align:left position:10% line:5% size:80% it comes across in vibrations in our body. 35:32.233 --> 35:33.900 align:left position:10% line:5% size:80% So how I think about the world 35:33.900 --> 35:36.533 align:left position:10% line:5% size:80% and how I view art is so much different. 35:38.733 --> 35:41.700 align:left position:10% line:5% size:80% I think the key theme for me is communication. 35:43.033 --> 35:44.966 align:left position:10% line:5% size:80% I struggled to communicate when I was growing up. 35:44.966 --> 35:47.833 align:left position:10% line:5% size:80% It became then a reoccurring theme in my life and in my work 35:47.833 --> 35:50.533 align:left position:10% line:5% size:80% because of my desire to want to connect with others. 35:51.966 --> 35:53.833 align:left position:10% line:5% size:80% I want to communicate visually. 35:55.133 --> 35:58.400 align:left position:10% line:5% size:80% I feel the direct impact that visuals have on my life. 35:58.400 --> 36:01.700 align:left position:10% line:5% size:80% My work is intended to reflect this impact to others 36:01.700 --> 36:04.700 align:left position:10% line:5% size:80% so that they can experience it for themselves as well. 36:04.700 --> 36:06.633 align:left position:10% line:5% size:80% When I started out drawing comics, 36:06.633 --> 36:09.033 align:left position:10% line:5% size:80% the dialogue bubbles or word balloons 36:09.033 --> 36:12.533 align:left position:10% line:5% size:80% would be filled with English text and this felt jarring. 36:12.533 --> 36:15.366 align:left position:10% line:5% size:80% I don't walk around in my daily life speaking English. 36:15.366 --> 36:17.266 align:left position:10% line:5% size:80% I speak American Sign Language. 36:17.266 --> 36:19.566 align:left position:10% line:5% size:80% I tried drawing ASL inside the panels, 36:19.566 --> 36:22.266 align:left position:10% line:5% size:80% but the frozen words took up too much space 36:22.266 --> 36:23.633 align:left position:10% line:5% size:80% and it wasn't enough. 36:23.633 --> 36:26.466 align:left position:10% line:5% size:80% I wanted the same conversational ease that English has 36:26.466 --> 36:27.866 align:left position:10% line:5% size:80% within those word balloons. 36:27.866 --> 36:29.400 align:left position:10% line:5% size:80% After some time researching, 36:29.400 --> 36:32.433 align:left position:10% line:5% size:80% I came across a potential method of written ASL 36:32.433 --> 36:34.100 align:left position:10% line:5% size:80% that fit what I was looking for. 36:34.100 --> 36:36.133 align:left position:10% line:5% size:80% I spent some time learning that method. 36:36.133 --> 36:37.866 align:left position:10% line:5% size:80% It wasn't fully developed then. 36:37.866 --> 36:40.000 align:left position:10% line:5% size:80% So I worked with the written ASL community 36:40.000 --> 36:41.700 align:left position:10% line:5% size:80% to develop a stable version 36:41.700 --> 36:43.033 align:left position:10% line:5% size:80% that would be on equal footing 36:43.033 --> 36:44.533 align:left position:10% line:5% size:80% with the English in my comment. 36:44.533 --> 36:47.133 align:left position:10% line:5% size:80% I feel so much better now being able to write in ASL. 36:48.433 --> 36:50.333 align:left position:10% line:5% size:80% It doesn't matter what language you're thinking of, 36:50.333 --> 36:52.933 align:left position:10% line:5% size:80% there's always different nuances. 36:52.933 --> 36:56.433 align:left position:10% line:5% size:80% As an English user, you have your own traditions, thoughts, 36:56.433 --> 36:59.266 align:left position:10% line:5% size:80% worldviews based off the language that you use. 36:59.266 --> 37:00.733 align:left position:10% line:5% size:80% It's the same idea for a person 37:00.733 --> 37:02.533 align:left position:10% line:5% size:80% that uses American Sign Language. 37:02.533 --> 37:06.066 align:left position:10% line:5% size:80% It doesn't have the same structure as English whatsoever. 37:06.066 --> 37:08.533 align:left position:10% line:5% size:80% (calm music) 37:09.666 --> 37:12.533 align:left position:10% line:5% size:80% Many people reach out to me and ask, 37:12.533 --> 37:14.500 align:left position:10% line:5% size:80% "How do you work with a Deaf individual?" 37:14.500 --> 37:18.333 align:left position:10% line:5% size:80% If you're hearing, don't impose your expectations on us. 37:18.333 --> 37:20.100 align:left position:10% line:5% size:80% If you're reaching out to a Deaf artist, 37:20.100 --> 37:22.033 align:left position:10% line:5% size:80% you need to be seeking for equal footing, 37:22.033 --> 37:23.366 align:left position:10% line:5% size:80% seeing us eye to eye, 37:23.366 --> 37:25.300 align:left position:10% line:5% size:80% try to communicate with us 37:25.300 --> 37:27.733 align:left position:10% line:5% size:80% and we can grow a relationship from there. 37:32.066 --> 37:35.200 align:left position:10% line:5% size:80% - And these are gonna be strikers. 37:35.200 --> 37:37.866 align:left position:10% line:5% size:80% And strikers is where you hold matches. 37:37.866 --> 37:40.600 align:left position:10% line:5% size:80% 'Cause, you know, I'm about ready for the barbecue season. 37:42.000 --> 37:45.500 align:left position:10% line:5% size:80% First of all, I was born Blind. 37:45.500 --> 37:48.433 align:left position:10% line:5% size:80% I don't let my disability stop me from being a potter. 37:48.433 --> 37:52.233 align:left position:10% line:5% size:80% And what drew me to it is the fact that I like tactile. 37:52.233 --> 37:53.433 align:left position:10% line:5% size:80% Like you're always picking up, 37:53.433 --> 37:56.933 align:left position:10% line:5% size:80% touching everything, that's me at the store. 37:56.933 --> 37:59.066 align:left position:10% line:5% size:80% Everything that you see in life 37:59.066 --> 38:00.566 align:left position:10% line:5% size:80% or that you experience and touch, 38:00.566 --> 38:03.100 align:left position:10% line:5% size:80% it inspired me to figure out what I'm gonna make. 38:04.766 --> 38:06.033 align:left position:10% line:5% size:80% Your mind keeps saying, 38:06.033 --> 38:07.966 align:left position:10% line:5% size:80% well let me see what it takes to build it. 38:07.966 --> 38:10.400 align:left position:10% line:5% size:80% These are berry bowls and believe it or not, 38:10.400 --> 38:11.766 align:left position:10% line:5% size:80% this is a soup container 38:11.766 --> 38:13.666 align:left position:10% line:5% size:80% that comes off of those packaged soups. 38:13.666 --> 38:17.166 align:left position:10% line:5% size:80% And I take my berry bowl and I set it up this way. 38:18.533 --> 38:20.766 align:left position:10% line:5% size:80% When I say that I do pottery 38:20.766 --> 38:25.166 align:left position:10% line:5% size:80% or they see me working and doing pottery, they're shocked. 38:25.166 --> 38:26.666 align:left position:10% line:5% size:80% Traditionally, 38:26.666 --> 38:28.466 align:left position:10% line:5% size:80% there's not that many women and especially women of color 38:28.466 --> 38:29.866 align:left position:10% line:5% size:80% or people with disabilities, 38:29.866 --> 38:33.566 align:left position:10% line:5% size:80% I don't know any Blind female Black women in pottery 38:33.566 --> 38:37.233 align:left position:10% line:5% size:80% to tell you the truth, I've never met one yet. 38:37.233 --> 38:38.133 align:left position:10% line:5% size:80% (chuckles) 38:38.133 --> 38:40.600 align:left position:10% line:5% size:80% (calm music) 38:40.600 --> 38:42.033 align:left position:10% line:5% size:80% I like texture. 38:42.033 --> 38:45.200 align:left position:10% line:5% size:80% Texture is my way of knowing what's around me. 38:45.200 --> 38:48.466 align:left position:10% line:5% size:80% So your mind is always trying to figure out 38:48.466 --> 38:50.966 align:left position:10% line:5% size:80% exactly how is it supposed to be. 38:50.966 --> 38:53.600 align:left position:10% line:5% size:80% And that's part of the reason why I got into pottery 38:53.600 --> 38:56.433 align:left position:10% line:5% size:80% was because I wanted to always figure it out 38:56.433 --> 39:00.466 align:left position:10% line:5% size:80% and not just live in the world of a woman with a disability. 39:00.466 --> 39:02.000 align:left position:10% line:5% size:80% You can live in the world 39:02.000 --> 39:04.266 align:left position:10% line:5% size:80% but you need to exist in the world that you live in. 39:04.266 --> 39:05.766 align:left position:10% line:5% size:80% And the only way that can happen 39:05.766 --> 39:07.933 align:left position:10% line:5% size:80% is that you actually get out there and you touch things 39:07.933 --> 39:11.466 align:left position:10% line:5% size:80% and you feel things and you don't let people say 39:11.466 --> 39:13.533 align:left position:10% line:5% size:80% what your world is supposed to be. 39:13.533 --> 39:16.900 align:left position:10% line:5% size:80% And I just start putting that coat on there somewhere. 39:16.900 --> 39:20.066 align:left position:10% line:5% size:80% A disability does not mean no ability. 39:20.066 --> 39:22.200 align:left position:10% line:5% size:80% Disability is about ability. 39:22.200 --> 39:24.266 align:left position:10% line:5% size:80% Using the abilities that you have to create. 39:24.266 --> 39:26.266 align:left position:10% line:5% size:80% And if you really wanna do it, 39:26.266 --> 39:28.333 align:left position:10% line:5% size:80% you'll figure out how to do it. 39:28.333 --> 39:29.566 align:left position:10% line:5% size:80% I want in the future 39:29.566 --> 39:33.166 align:left position:10% line:5% size:80% to make sure that I stay doing public art 39:33.166 --> 39:36.033 align:left position:10% line:5% size:80% with communities of individuals with disabilities 39:36.033 --> 39:38.866 align:left position:10% line:5% size:80% so that we can become visible in the art world. 39:42.966 --> 39:46.566 align:left position:10% line:5% size:80% - Folks with disabilities are constantly adapting to a world 39:46.566 --> 39:49.566 align:left position:10% line:5% size:80% that was not created with us in mind. 39:49.566 --> 39:52.566 align:left position:10% line:5% size:80% How can we become more active in the planning? 39:52.566 --> 39:54.433 align:left position:10% line:5% size:80% If we're to have a seat at the table, 39:54.433 --> 39:58.300 align:left position:10% line:5% size:80% how do we create the table we all can use? 39:58.300 --> 40:02.366 align:left position:10% line:5% size:80% Where we aren't simply invited, but part of its construct. 40:02.366 --> 40:07.266 align:left position:10% line:5% size:80% The poet Rumi said, "Before right doing, before wrong doing, 40:07.266 --> 40:10.866 align:left position:10% line:5% size:80% there is a field and I will meet you there." 40:10.866 --> 40:13.633 align:left position:10% line:5% size:80% The arts can also help create a neutral zone, 40:13.633 --> 40:17.433 align:left position:10% line:5% size:80% a unique perspective of language and experience, 40:17.433 --> 40:20.300 align:left position:10% line:5% size:80% a place of mutual recognition. 40:20.300 --> 40:23.833 align:left position:10% line:5% size:80% (indistinct chatters) 40:23.833 --> 40:26.066 align:left position:10% line:5% size:80% - One thing that I have learned through the years 40:26.066 --> 40:28.000 align:left position:10% line:5% size:80% that's been absolutely amazing 40:28.000 --> 40:31.733 align:left position:10% line:5% size:80% in helping me communicate about having an autoimmune disease 40:31.733 --> 40:33.500 align:left position:10% line:5% size:80% is spoon theory. 40:33.500 --> 40:37.233 align:left position:10% line:5% size:80% What spoon theory says is that most regular people 40:37.233 --> 40:38.833 align:left position:10% line:5% size:80% can just wake up 40:38.833 --> 40:41.400 align:left position:10% line:5% size:80% and they'll have the energy to do the things they need to do 40:41.400 --> 40:42.900 align:left position:10% line:5% size:80% to get through their day. 40:42.900 --> 40:44.700 align:left position:10% line:5% size:80% And they don't have to think about it very much. 40:44.700 --> 40:46.666 align:left position:10% line:5% size:80% But when you're dealing with chronic illness, 40:46.666 --> 40:49.666 align:left position:10% line:5% size:80% you have a limited amount of energy. 40:49.666 --> 40:53.100 align:left position:10% line:5% size:80% And most people say you have about 12 spoons, 40:53.100 --> 40:55.966 align:left position:10% line:5% size:80% and each spoon represents a unit of energy. 40:55.966 --> 40:59.033 align:left position:10% line:5% size:80% So a day with my spoons might look like this. 41:00.233 --> 41:04.633 align:left position:10% line:5% size:80% I wake up in the morning and I spend one spoon. 41:04.633 --> 41:05.866 align:left position:10% line:5% size:80% What? You might be saying, 41:05.866 --> 41:07.433 align:left position:10% line:5% size:80% you spend a spoon just to wake up. 41:07.433 --> 41:09.200 align:left position:10% line:5% size:80% I don't even think about it. 41:09.200 --> 41:12.966 align:left position:10% line:5% size:80% Yes, one spoon, showering, 41:12.966 --> 41:16.333 align:left position:10% line:5% size:80% and heaven forbid I have to wash my hair or shave, 41:16.333 --> 41:18.366 align:left position:10% line:5% size:80% especially above the knee too, 41:19.366 --> 41:21.933 align:left position:10% line:5% size:80% add a couple more spoons. 41:21.933 --> 41:25.366 align:left position:10% line:5% size:80% One spoon, eating breakfast. 41:25.366 --> 41:27.800 align:left position:10% line:5% size:80% One spoon, taking my meds 41:27.800 --> 41:30.366 align:left position:10% line:5% size:80% and dealing with the side effects for the day. 41:30.366 --> 41:32.800 align:left position:10% line:5% size:80% One spoon, driving to work. 41:32.800 --> 41:34.433 align:left position:10% line:5% size:80% Better hope the roads are good. 41:34.433 --> 41:36.600 align:left position:10% line:5% size:80% One spoon, walking to my office. 41:36.600 --> 41:39.166 align:left position:10% line:5% size:80% It is 0.6 miles from where I park 41:39.166 --> 41:41.533 align:left position:10% line:5% size:80% to where I park my butt for the day. 41:41.533 --> 41:44.200 align:left position:10% line:5% size:80% So for those of you keeping track at home, 41:44.200 --> 41:46.666 align:left position:10% line:5% size:80% I am just sitting down to start work 41:46.666 --> 41:50.233 align:left position:10% line:5% size:80% and I have spent half of my spoons. 41:50.233 --> 41:53.400 align:left position:10% line:5% size:80% So now I start work, they usually say about a spoon per hour 41:53.400 --> 41:54.666 align:left position:10% line:5% size:80% about a spoon per hour 41:54.666 --> 41:56.266 align:left position:10% line:5% size:80% depending on what you do for work, 41:56.266 --> 41:58.433 align:left position:10% line:5% size:80% so a couple spoons goes to work. 41:58.433 --> 42:01.700 align:left position:10% line:5% size:80% Then I might wanna get some lunch, 42:01.700 --> 42:03.033 align:left position:10% line:5% size:80% and all of a sudden 42:04.200 --> 42:06.233 align:left position:10% line:5% size:80% I start to have to make really hard decisions 42:06.233 --> 42:07.633 align:left position:10% line:5% size:80% for the rest of the day. 42:07.633 --> 42:09.933 align:left position:10% line:5% size:80% I have to work a few more hours. 42:09.933 --> 42:12.966 align:left position:10% line:5% size:80% And, you know, even sitting there for a long time 42:12.966 --> 42:15.566 align:left position:10% line:5% size:80% can really cause a lot of pain. 42:15.566 --> 42:17.066 align:left position:10% line:5% size:80% I know that seems silly, 42:17.066 --> 42:21.666 align:left position:10% line:5% size:80% but really sitting in the same position is hard on my body. 42:21.666 --> 42:24.666 align:left position:10% line:5% size:80% And I mean, no matter what, I still have to drive home, 42:24.666 --> 42:27.600 align:left position:10% line:5% size:80% and evening rush hour is always worse. 42:27.600 --> 42:28.933 align:left position:10% line:5% size:80% And then when I get home, I mean, 42:28.933 --> 42:30.700 align:left position:10% line:5% size:80% I probably wanna make a meal. 42:30.700 --> 42:32.166 align:left position:10% line:5% size:80% And maybe it's like super healthy, 42:32.166 --> 42:33.900 align:left position:10% line:5% size:80% so I'm doing a lot of chopping and stuff. 42:33.900 --> 42:36.066 align:left position:10% line:5% size:80% And then, you know, I wanna do dishes, 42:36.066 --> 42:39.766 align:left position:10% line:5% size:80% and I should probably like do laundry and clean the house, 42:39.766 --> 42:42.733 align:left position:10% line:5% size:80% and heaven forbid I wanna spend some time with friends 42:42.733 --> 42:43.766 align:left position:10% line:5% size:80% and have some fun. 42:43.766 --> 42:46.600 align:left position:10% line:5% size:80% And the story is, 42:47.933 --> 42:50.133 align:left position:10% line:5% size:80% there are just never enough spoons. 42:51.566 --> 42:54.500 align:left position:10% line:5% size:80% And in March of 2020, I mean, I'll be honest, 42:54.500 --> 42:57.133 align:left position:10% line:5% size:80% I had a pretty great setup. 42:57.133 --> 42:59.400 align:left position:10% line:5% size:80% I was working part-time. 42:59.400 --> 43:02.466 align:left position:10% line:5% size:80% I only went into the office every Monday and Tuesday, 43:02.466 --> 43:05.133 align:left position:10% line:5% size:80% and then I worked from home the rest of the week. 43:05.133 --> 43:07.466 align:left position:10% line:5% size:80% And, you know, my coworkers like they were like okay, 43:07.466 --> 43:09.033 align:left position:10% line:5% size:80% they weren't great about remembering 43:09.033 --> 43:11.433 align:left position:10% line:5% size:80% to dial me into meetings all the time, 43:11.433 --> 43:13.966 align:left position:10% line:5% size:80% 'cause I was the only one not in the office. 43:13.966 --> 43:18.066 align:left position:10% line:5% size:80% And on March 10th, my boss came to visit me in my cubicle. 43:18.066 --> 43:20.466 align:left position:10% line:5% size:80% We can hear people like coughing 43:20.466 --> 43:23.133 align:left position:10% line:5% size:80% and sneezing all around me. 43:24.233 --> 43:26.366 align:left position:10% line:5% size:80% And she said, "You should go home. 43:26.366 --> 43:28.400 align:left position:10% line:5% size:80% You don't want that to get you." 43:28.400 --> 43:33.200 align:left position:10% line:5% size:80% Seven days later, everybody was sent home for two years. 43:34.900 --> 43:39.466 align:left position:10% line:5% size:80% All of a sudden, something sort of magical happened. 43:39.466 --> 43:41.000 align:left position:10% line:5% size:80% (chuckles) 43:41.000 --> 43:44.133 align:left position:10% line:5% size:80% All of a sudden, everyone was at home all the time. 43:44.133 --> 43:46.566 align:left position:10% line:5% size:80% All of a sudden, I'm invited to every meeting. 43:46.566 --> 43:49.000 align:left position:10% line:5% size:80% All of a sudden, we're all on camera. 43:49.000 --> 43:52.933 align:left position:10% line:5% size:80% We're all wearing our pajamas. It doesn't matter why. 43:52.933 --> 43:57.066 align:left position:10% line:5% size:80% And all of a sudden, every show, every conference, 43:57.066 --> 43:59.600 align:left position:10% line:5% size:80% everything was online. 44:00.800 --> 44:02.333 align:left position:10% line:5% size:80% And here's the thing, 44:07.266 --> 44:08.966 align:left position:10% line:5% size:80% this is what my new days look like. 44:11.066 --> 44:14.466 align:left position:10% line:5% size:80% One spoon, waking up. 44:14.466 --> 44:15.966 align:left position:10% line:5% size:80% I can tell it's gonna be a rough day. 44:15.966 --> 44:19.866 align:left position:10% line:5% size:80% So I just stay right where I am and I pop my computer open 44:19.866 --> 44:22.000 align:left position:10% line:5% size:80% and start working. 44:22.000 --> 44:24.000 align:left position:10% line:5% size:80% I work for a couple of hours. 44:25.066 --> 44:26.933 align:left position:10% line:5% size:80% And then when I'm ready to, I go downstairs 44:26.933 --> 44:28.966 align:left position:10% line:5% size:80% and I make some food for breakfast, 44:28.966 --> 44:31.666 align:left position:10% line:5% size:80% save enough to eat for lunch later. 44:31.666 --> 44:34.233 align:left position:10% line:5% size:80% And, you know, then I come back and work again. 44:34.233 --> 44:36.866 align:left position:10% line:5% size:80% And if I'm feeling good enough, I can take a shower. 44:36.866 --> 44:38.633 align:left position:10% line:5% size:80% But honestly, like, I don't have to. 44:38.633 --> 44:42.166 align:left position:10% line:5% size:80% And it really does make a difference 44:42.166 --> 44:45.600 align:left position:10% line:5% size:80% if I get the choice of when I do this during my day. 44:45.600 --> 44:47.766 align:left position:10% line:5% size:80% (all laugh) 44:47.766 --> 44:51.366 align:left position:10% line:5% size:80% And then, you know, I can work for a couple more hours, 44:51.366 --> 44:53.833 align:left position:10% line:5% size:80% and I can move around as I want to. 44:53.833 --> 44:57.166 align:left position:10% line:5% size:80% So I'm not getting sore, I'm not getting this brain fog, 44:57.166 --> 44:58.533 align:left position:10% line:5% size:80% I'm feeling good. 44:58.533 --> 44:59.766 align:left position:10% line:5% size:80% And, you know, in the afternoon 44:59.766 --> 45:01.966 align:left position:10% line:5% size:80% I can take my dog out for a walk. 45:01.966 --> 45:05.500 align:left position:10% line:5% size:80% And holy crap you all, if you're keeping track at home, 45:05.500 --> 45:08.466 align:left position:10% line:5% size:80% I still have a bunch of spoons left. 45:08.466 --> 45:09.933 align:left position:10% line:5% size:80% I can have dinner. 45:09.933 --> 45:12.433 align:left position:10% line:5% size:80% I mean, I can get online and play games with friends. 45:12.433 --> 45:14.433 align:left position:10% line:5% size:80% And I still like have a spoon 45:14.433 --> 45:16.333 align:left position:10% line:5% size:80% to deal with the stress of the pandemic 45:16.333 --> 45:18.000 align:left position:10% line:5% size:80% without totally tapping out. 45:18.000 --> 45:20.866 align:left position:10% line:5% size:80% (audience laugh) 45:20.866 --> 45:24.933 align:left position:10% line:5% size:80% And so the best thing about all of this 45:26.466 --> 45:29.000 align:left position:10% line:5% size:80% was everyone was in it with me. 45:29.000 --> 45:32.733 align:left position:10% line:5% size:80% Nobody was judging my situation anymore. 45:32.733 --> 45:37.266 align:left position:10% line:5% size:80% There was a lot to appreciate during that time. 45:37.266 --> 45:38.533 align:left position:10% line:5% size:80% I realized about a month in 45:38.533 --> 45:40.966 align:left position:10% line:5% size:80% that I actually didn't have any pain anymore, 45:40.966 --> 45:44.100 align:left position:10% line:5% size:80% 'cause I was so in control of how I moved. 45:44.100 --> 45:45.566 align:left position:10% line:5% size:80% And I'm definitely not saying this 45:45.566 --> 45:47.800 align:left position:10% line:5% size:80% to like minimize the terror of the pandemic, right? 45:47.800 --> 45:50.500 align:left position:10% line:5% size:80% 'Cause I was like, holy crap, scared of dying 45:50.500 --> 45:52.866 align:left position:10% line:5% size:80% every second of every day for a lot of months. 45:52.866 --> 45:53.700 align:left position:10% line:5% size:80% (chuckles) 45:53.700 --> 45:54.600 align:left position:10% line:5% size:80% But, 45:56.200 --> 45:58.100 align:left position:10% line:5% size:80% over the last year, 45:59.233 --> 46:01.000 align:left position:10% line:5% size:80% I've had to mourn all over again 46:02.333 --> 46:04.600 align:left position:10% line:5% size:80% as a lot of these opportunities disappeared. 46:05.700 --> 46:07.700 align:left position:10% line:5% size:80% And, you know, some things have stayed 46:07.700 --> 46:12.666 align:left position:10% line:5% size:80% or been added on as permanent features and that is amazing. 46:14.166 --> 46:17.766 align:left position:10% line:5% size:80% But it's a little different, because once again, 46:17.766 --> 46:19.533 align:left position:10% line:5% size:80% we're not all in it together. 46:20.866 --> 46:25.533 align:left position:10% line:5% size:80% Once again, there are haves and there are have-nots, 46:26.633 --> 46:29.133 align:left position:10% line:5% size:80% and life is navigating lots of hard choices 46:29.133 --> 46:31.200 align:left position:10% line:5% size:80% and constantly feeling judged by them. 46:32.500 --> 46:35.166 align:left position:10% line:5% size:80% And you never know what people are dealing with. 46:35.166 --> 46:38.400 align:left position:10% line:5% size:80% I'm invisible while in pain. 46:39.500 --> 46:43.700 align:left position:10% line:5% size:80% I'm invisible while on fire. 46:45.333 --> 46:48.366 align:left position:10% line:5% size:80% I will keep my blaze burning. 46:49.700 --> 46:50.633 align:left position:10% line:5% size:80% Thank you. 46:50.633 --> 46:54.133 align:left position:10% line:5% size:80% (audience applaud) 46:54.133 --> 46:56.166 align:left position:10% line:5% size:80% - American culture teaches us 46:56.166 --> 46:59.600 align:left position:10% line:5% size:80% that we should be self-reliant and self-sufficient. 46:59.600 --> 47:02.000 align:left position:10% line:5% size:80% That this is the goal of normal people 47:02.000 --> 47:03.900 align:left position:10% line:5% size:80% and has been the goal of medicine, 47:03.900 --> 47:07.033 align:left position:10% line:5% size:80% independence and a freedom from needing care. 47:07.033 --> 47:10.733 align:left position:10% line:5% size:80% - But this is not the lived reality for any of us, 47:10.733 --> 47:12.466 align:left position:10% line:5% size:80% not just disabled people. 47:13.833 --> 47:17.500 align:left position:10% line:5% size:80% - Unlearning in medicine is leaning into the understanding 47:17.500 --> 47:22.266 align:left position:10% line:5% size:80% that we are a part of and not apart from community. 47:22.266 --> 47:25.766 align:left position:10% line:5% size:80% - Throughout our lives in big ways and small, 47:25.766 --> 47:27.733 align:left position:10% line:5% size:80% we all need care. 47:27.733 --> 47:31.900 align:left position:10% line:5% size:80% In disability culture, we call this interdependence, 47:31.900 --> 47:34.900 align:left position:10% line:5% size:80% acknowledging that to survive and thrive, 47:34.900 --> 47:38.333 align:left position:10% line:5% size:80% humans need each other, to care for each other 47:38.333 --> 47:40.400 align:left position:10% line:5% size:80% and to be cared for in return. 47:40.400 --> 47:43.433 align:left position:10% line:5% size:80% And we find this care in community. 47:43.433 --> 47:47.500 align:left position:10% line:5% size:80% - It is within community that we eat, laugh, plan, 47:47.500 --> 47:49.766 align:left position:10% line:5% size:80% share our struggles and triumphs. 47:49.766 --> 47:53.066 align:left position:10% line:5% size:80% We learn, we grieve, and we celebrate. 47:53.066 --> 47:55.900 align:left position:10% line:5% size:80% We come face-to-face with our own humanity 47:55.900 --> 47:58.233 align:left position:10% line:5% size:80% and the humanity of others. 47:58.233 --> 48:03.066 align:left position:10% line:5% size:80% - Resiliency is defined as maintaining one shape. 48:03.066 --> 48:05.266 align:left position:10% line:5% size:80% While needing to be resilient 48:05.266 --> 48:08.366 align:left position:10% line:5% size:80% is a difficult topic for many marginalized people, 48:08.366 --> 48:11.733 align:left position:10% line:5% size:80% because we often gain resiliency through adverse, 48:11.733 --> 48:14.100 align:left position:10% line:5% size:80% unjust experiences. 48:14.100 --> 48:17.866 align:left position:10% line:5% size:80% Through community, we learn to maintain our shape 48:17.866 --> 48:19.600 align:left position:10% line:5% size:80% after it's been compromised 48:19.600 --> 48:22.100 align:left position:10% line:5% size:80% by changes to our bodies and minds, 48:22.100 --> 48:24.833 align:left position:10% line:5% size:80% and most often by the society we live in. 48:25.933 --> 48:27.900 align:left position:10% line:5% size:80% - As science and history tells us, 48:27.900 --> 48:31.166 align:left position:10% line:5% size:80% a species is defined by its similarities, 48:31.166 --> 48:35.466 align:left position:10% line:5% size:80% but it survives by its differences to others 48:35.466 --> 48:37.000 align:left position:10% line:5% size:80% and those within its group. 48:37.000 --> 48:40.133 align:left position:10% line:5% size:80% That means we may not agree all the time, 48:40.133 --> 48:43.233 align:left position:10% line:5% size:80% but a community is a space where I bring who I am 48:43.233 --> 48:46.533 align:left position:10% line:5% size:80% to who you are, our herd, our flock, our pack, 48:46.533 --> 48:49.666 align:left position:10% line:5% size:80% a place we all belong. 48:49.666 --> 48:51.766 align:left position:10% line:5% size:80% (calm music) 48:51.766 --> 48:53.166 align:left position:10% line:5% size:80% - For me, 48:53.166 --> 48:55.333 align:left position:10% line:5% size:80% what's unique about disability culture and community- 48:55.333 --> 48:57.933 align:left position:10% line:5% size:80% - Disability culture is helping me understand 48:57.933 --> 49:00.733 align:left position:10% line:5% size:80% coping with my autism and helping me understand 49:00.733 --> 49:02.700 align:left position:10% line:5% size:80% what's like who am. 49:02.700 --> 49:05.233 align:left position:10% line:5% size:80% - Is that we kick butt. 49:05.233 --> 49:06.666 align:left position:10% line:5% size:80% (chuckles) 49:06.666 --> 49:11.133 align:left position:10% line:5% size:80% - You're with other people that have lived the experience. 49:12.200 --> 49:14.566 align:left position:10% line:5% size:80% - We all kind of understand each other 49:14.566 --> 49:16.833 align:left position:10% line:5% size:80% in a way that is relatable. 49:16.833 --> 49:19.666 align:left position:10% line:5% size:80% - How much unparalleled support there is. 49:19.666 --> 49:22.533 align:left position:10% line:5% size:80% - The thing that's unique about disability culture 49:22.533 --> 49:24.766 align:left position:10% line:5% size:80% and community is that we just get it. 49:24.766 --> 49:27.266 align:left position:10% line:5% size:80% (calm music) 49:28.566 --> 49:31.766 align:left position:10% line:5% size:80% - Art has the power to transform us 49:31.766 --> 49:33.833 align:left position:10% line:5% size:80% by allowing us to experience 49:33.833 --> 49:35.800 align:left position:10% line:5% size:80% a different viewpoint in the world 49:35.800 --> 49:38.033 align:left position:10% line:5% size:80% from a non-judgmental space. 49:38.033 --> 49:39.433 align:left position:10% line:5% size:80% And the music that we write 49:39.433 --> 49:41.533 align:left position:10% line:5% size:80% is really just the human experience. 49:41.533 --> 49:44.000 align:left position:10% line:5% size:80% (calm music) 49:48.566 --> 49:50.600 align:left position:10% line:5% size:80% My music is primarily folk music. 49:50.600 --> 49:53.933 align:left position:10% line:5% size:80% I'm really into lyrics and melodies and harmonies 49:53.933 --> 49:55.166 align:left position:10% line:5% size:80% in the folk tradition. 49:55.166 --> 49:56.733 align:left position:10% line:5% size:80% And then I also have some influences 49:56.733 --> 49:58.733 align:left position:10% line:5% size:80% from Celtic music, specifically. 49:59.866 --> 50:01.600 align:left position:10% line:5% size:80% But because of a looping pedal, 50:01.600 --> 50:05.800 align:left position:10% line:5% size:80% there's also this element of experimental ambient sounds. 50:05.800 --> 50:08.800 align:left position:10% line:5% size:80% And so it's sort of a blending of different traditions. 50:08.800 --> 50:11.266 align:left position:10% line:5% size:80% (calm music) 50:12.066 --> 50:13.400 align:left position:10% line:5% size:80% I think the role of art 50:13.400 --> 50:16.066 align:left position:10% line:5% size:80% is to connect with our creative energy. 50:16.066 --> 50:18.366 align:left position:10% line:5% size:80% I think something in us, very human, 50:18.366 --> 50:21.366 align:left position:10% line:5% size:80% is just this desire to play and create 50:21.366 --> 50:22.866 align:left position:10% line:5% size:80% and experience new things 50:22.866 --> 50:24.833 align:left position:10% line:5% size:80% and I think art accomplishes all of that. 50:24.833 --> 50:27.333 align:left position:10% line:5% size:80% (calm music) 50:30.566 --> 50:34.300 align:left position:10% line:5% size:80% And also helps us to express emotions 50:34.300 --> 50:35.366 align:left position:10% line:5% size:80% that we might not have words for. 50:35.366 --> 50:37.933 align:left position:10% line:5% size:80% And it's a really human thing 50:37.933 --> 50:42.000 align:left position:10% line:5% size:80% to wanna express what's inside of us in a creative way. 50:42.000 --> 50:46.100 align:left position:10% line:5% size:80% ♪ Can you see me, way in the back here ♪ 50:46.100 --> 50:50.433 align:left position:10% line:5% size:80% ♪ I've been waiting, I've been waiting in line ♪ 50:50.433 --> 50:52.333 align:left position:10% line:5% size:80% ♪ It's been a long time 50:52.333 --> 50:54.566 align:left position:10% line:5% size:80% ♪ Can't get no service 50:54.566 --> 50:59.533 align:left position:10% line:5% size:80% ♪ Still I'm hoping, I am hoping for a sign ♪ 51:02.466 --> 51:05.233 align:left position:10% line:5% size:80% ♪ That one day things will change ♪ 51:05.233 --> 51:10.300 align:left position:10% line:5% size:80% ♪ And we can finally take our place ♪ 51:11.133 --> 51:13.966 align:left position:10% line:5% size:80% ♪ That history won't forget us 51:13.966 --> 51:18.000 align:left position:10% line:5% size:80% ♪ Or try to minimize our pain 51:18.000 --> 51:20.100 align:left position:10% line:5% size:80% ♪ And so I wait 51:20.100 --> 51:23.400 align:left position:10% line:5% size:80% I got started in music in fifth grade. 51:23.400 --> 51:26.433 align:left position:10% line:5% size:80% There was an orchestra that came to our elementary school 51:26.433 --> 51:27.933 align:left position:10% line:5% size:80% and played for us. 51:27.933 --> 51:29.766 align:left position:10% line:5% size:80% And I loved the sound of all the strings together. 51:29.766 --> 51:31.666 align:left position:10% line:5% size:80% And I knew that that's what I wanted to do. 51:31.666 --> 51:34.566 align:left position:10% line:5% size:80% And so we figured out a way that I could hold the violin. 51:34.566 --> 51:36.666 align:left position:10% line:5% size:80% I hold it in front of me like a small cello. 51:36.666 --> 51:38.033 align:left position:10% line:5% size:80% And I've been playing ever since. 51:38.033 --> 51:41.833 align:left position:10% line:5% size:80% ♪ Did you know that when I get angry ♪ 51:41.833 --> 51:45.733 align:left position:10% line:5% size:80% ♪ I breath fire, I can burn this place down ♪ 51:45.733 --> 51:50.000 align:left position:10% line:5% size:80% ♪ You may not realize all of the small ways ♪ 51:50.000 --> 51:54.500 align:left position:10% line:5% size:80% ♪ I am not welcome, but just take a look around ♪ 51:54.500 --> 51:58.733 align:left position:10% line:5% size:80% Disabled people are resilient, we're adaptable, 51:58.733 --> 52:03.066 align:left position:10% line:5% size:80% we're creative, and I think we see the world 52:03.066 --> 52:06.633 align:left position:10% line:5% size:80% and our relationships in it through a different lens. 52:06.633 --> 52:10.966 align:left position:10% line:5% size:80% To me, that is the essence of disability culture. 52:10.966 --> 52:13.000 align:left position:10% line:5% size:80% ♪ Pushing up, pushing up 52:13.000 --> 52:15.233 align:left position:10% line:5% size:80% ♪ Through the dirt just like a seed ♪ 52:15.233 --> 52:17.633 align:left position:10% line:5% size:80% ♪ But you're never quite a flower ♪ 52:17.633 --> 52:19.766 align:left position:10% line:5% size:80% ♪ You feel more just like a weed ♪ 52:19.766 --> 52:22.766 align:left position:10% line:5% size:80% ♪ Driving through, driving through ♪ 52:22.766 --> 52:24.733 align:left position:10% line:5% size:80% ♪ You don't know where you are going ♪ 52:24.733 --> 52:27.533 align:left position:10% line:5% size:80% ♪ But the windshield's always dirty ♪ 52:27.533 --> 52:30.433 align:left position:10% line:5% size:80% ♪ And you never get to see 52:30.433 --> 52:34.966 align:left position:10% line:5% size:80% ♪ What makes you think that you'll ever get there? ♪ 52:34.966 --> 52:40.033 align:left position:10% line:5% size:80% ♪ What makes you think you deserve to know? ♪ 52:40.566 --> 52:44.200 align:left position:10% line:5% size:80% ♪ Who are you really, are you so important? ♪ 52:44.200 --> 52:46.600 align:left position:10% line:5% size:80% ♪ Take a look around 52:46.600 --> 52:51.666 align:left position:10% line:5% size:80% ♪ and watch the world unfold 52:52.600 --> 52:56.300 align:left position:10% line:5% size:80% ♪ Watch the world unfold 52:59.533 --> 53:02.366 align:left position:10% line:5% size:80% Disability culture has been like an evolving thing for me, 53:02.366 --> 53:04.400 align:left position:10% line:5% size:80% just like realizing that it's out there 53:04.400 --> 53:05.566 align:left position:10% line:5% size:80% and that you're not alone. 53:05.566 --> 53:07.866 align:left position:10% line:5% size:80% - I feel like there's this aspect 53:07.866 --> 53:12.033 align:left position:10% line:5% size:80% of like we are creating the culture as we make art 53:12.033 --> 53:14.000 align:left position:10% line:5% size:80% and as we connect with people. 53:14.000 --> 53:16.766 align:left position:10% line:5% size:80% - One thing that's been really important to me 53:16.766 --> 53:21.066 align:left position:10% line:5% size:80% in the last few years is nurturing a sense of community 53:21.066 --> 53:22.933 align:left position:10% line:5% size:80% among other disabled artists. 53:22.933 --> 53:24.300 align:left position:10% line:5% size:80% Part of it is because 53:24.300 --> 53:26.600 align:left position:10% line:5% size:80% we haven't been amplified in our society, 53:26.600 --> 53:28.833 align:left position:10% line:5% size:80% so a lot of us felt very isolated, 53:28.833 --> 53:31.866 align:left position:10% line:5% size:80% because we were navigating the music industry 53:31.866 --> 53:35.133 align:left position:10% line:5% size:80% in a way that it was not very accessible right now. 53:35.133 --> 53:36.566 align:left position:10% line:5% size:80% - For a lot of my life, 53:36.566 --> 53:40.600 align:left position:10% line:5% size:80% I lived in a world not designed for me. 53:40.600 --> 53:41.833 align:left position:10% line:5% size:80% - Yep. 53:41.833 --> 53:44.133 align:left position:10% line:5% size:80% - And so I hid it for a long time. 53:44.133 --> 53:46.366 align:left position:10% line:5% size:80% And it wasn't until I understood that, hey, 53:46.366 --> 53:50.466 align:left position:10% line:5% size:80% I'm not gonna get anywhere in life without asking for, 53:50.466 --> 53:52.666 align:left position:10% line:5% size:80% not help, but, hey, support. 53:52.666 --> 53:57.600 align:left position:10% line:5% size:80% And being open and becoming vulnerable with other people. 53:57.600 --> 54:00.166 align:left position:10% line:5% size:80% - I love thinking about disability culture, 54:00.166 --> 54:03.366 align:left position:10% line:5% size:80% because it reframes disability from something negative 54:03.366 --> 54:08.166 align:left position:10% line:5% size:80% into just a form of diversity that really can be celebrated. 54:08.166 --> 54:13.233 align:left position:10% line:5% size:80% - It lets other people into the world and into the culture, 54:14.466 --> 54:16.300 align:left position:10% line:5% size:80% because we're all just different bodies and we're all- 54:16.300 --> 54:17.833 align:left position:10% line:5% size:80% - Exactly. 54:17.833 --> 54:19.233 align:left position:10% line:5% size:80% - Trying to figure out how to be in the same space together. 54:19.233 --> 54:20.466 align:left position:10% line:5% size:80% - Well, what I love about this 54:20.466 --> 54:21.966 align:left position:10% line:5% size:80% is that we've built a bit of culture here. 54:21.966 --> 54:23.600 align:left position:10% line:5% size:80% We are a culture of three. We are a community of three. 54:23.600 --> 54:25.166 align:left position:10% line:5% size:80% - Mhm-mm. - Right. 54:25.166 --> 54:29.833 align:left position:10% line:5% size:80% ♪ Who are you really, are you so important ♪ 54:29.833 --> 54:32.566 align:left position:10% line:5% size:80% ♪ Take a look around 54:32.566 --> 54:37.333 align:left position:10% line:5% size:80% ♪ and watch the world unfold 54:37.333 --> 54:42.333 align:left position:10% line:5% size:80% ♪ Watch the world unfold 54:42.333 --> 54:46.966 align:left position:10% line:5% size:80% ♪ Watch the world unfold 54:46.966 --> 54:50.533 align:left position:10% line:5% size:80% ♪ Watch the world unfold 54:53.933 --> 54:58.100 align:left position:10% line:5% size:80% - We hope this exploration of disability and medicine 54:58.100 --> 55:00.233 align:left position:10% line:5% size:80% through the arts was insightful, 55:00.233 --> 55:04.300 align:left position:10% line:5% size:80% and helped open up new ideas and new perspectives for you. 55:04.300 --> 55:07.866 align:left position:10% line:5% size:80% - Joy is a big part of disabled experience 55:07.866 --> 55:10.333 align:left position:10% line:5% size:80% and human experience. 55:10.333 --> 55:13.433 align:left position:10% line:5% size:80% - So as we close, we pose one more question 55:13.433 --> 55:18.100 align:left position:10% line:5% size:80% to our artists and providers, what brings you joy? 55:21.033 --> 55:22.833 align:left position:10% line:5% size:80% - Things that bring me joy... 55:23.866 --> 55:25.300 align:left position:10% line:5% size:80% (chuckles) 55:25.300 --> 55:27.900 align:left position:10% line:5% size:80% - Uh, what brings me joy? Oh... 55:30.100 --> 55:31.133 align:left position:10% line:5% size:80% - Oh, that's a good question. 55:31.133 --> 55:32.700 align:left position:10% line:5% size:80% I like seeing construction work. 55:32.700 --> 55:35.866 align:left position:10% line:5% size:80% I like seeing big use construction machines being built. 55:35.866 --> 55:40.166 align:left position:10% line:5% size:80% - Being outside, discovery, taking care of people. 55:40.166 --> 55:43.433 align:left position:10% line:5% size:80% - The spring in Minnesota, I mean, the sun. 55:43.433 --> 55:46.800 align:left position:10% line:5% size:80% - My cat, Indiana Jones. She's adorable. 55:46.800 --> 55:48.366 align:left position:10% line:5% size:80% What brings me joy? 55:48.366 --> 55:52.500 align:left position:10% line:5% size:80% - Ice cream. Thank goodness for ice cream. 55:52.500 --> 55:56.000 align:left position:10% line:5% size:80% - My family brings me a lot of joy, my friends. 55:56.000 --> 55:59.466 align:left position:10% line:5% size:80% - My ability to help people and make a difference. 55:59.466 --> 56:03.933 align:left position:10% line:5% size:80% - Anytime I see patients taking steps towards thriving. 56:03.933 --> 56:09.000 align:left position:10% line:5% size:80% - What really brings me joy is helping others. 56:10.300 --> 56:13.866 align:left position:10% line:5% size:80% - Is the ability to capital B, capital E, BE. 56:13.866 --> 56:15.333 align:left position:10% line:5% size:80% - Life brings me joy. 56:15.333 --> 56:18.600 align:left position:10% line:5% size:80% - Just having fun, that's what brings joy to me. 56:18.600 --> 56:21.100 align:left position:10% line:5% size:80% (calm music) 56:23.800 --> 56:26.200 align:left position:10% line:5% size:80% - [Announcer] This program was produced in collaboration 56:26.200 --> 56:27.966 align:left position:10% line:5% size:80% with the Center for the Art of Medicine 56:27.966 --> 56:30.466 align:left position:10% line:5% size:80% at the University of Minnesota Medical School. 56:30.466 --> 56:33.800 align:left position:10% line:5% size:80% And funded by the Minnesota Arts and Cultural Heritage Fund 56:33.800 --> 56:35.600 align:left position:10% line:5% size:80% and the citizens of Minnesota. 56:36.533 --> 56:39.100 align:left position:10% line:5% size:80% (calm music)